HealingWell
Search Close Search
☰

Severe GI issues

Support Forums
>
Lyme Disease
✚ New Topic ✚ Reply
❬ ❬ Previous Thread |Next Thread ❭ ❭
Posted 5/25/2016 10:05 PM (GMT 0)
Ok, anyone else have really, really over-active spastic colon or intestines. Mine has been going crazy for months. It looks like things wrestling around under the skin, and gurgles like mad. My GI Dr said nothing wrong, its common. Ummm, I never had this til I got sick. I even feel lethargic and nauseous. I had many tests for parasites, worms, etc, and all were neg.
Posted 5/25/2016 10:13 PM (GMT 0)
Count me in with those issues. I also had pseudo-blockages because the muscles in my intestines would cramp so hard for so long that I wouldn't be able to 'go' for weeks at a time. I too was told that it was normal - and nothing could be farther from the truth. I've lived with these issues for decades, and not one of the pharma drugs I've tried ever helped.

This is one of the best articles I've ever read about gastro issues with Lyme:
www.lymenet.de/literatur/vtsherr_gut.htm
Posted 5/25/2016 10:17 PM (GMT 0)
Thanks Traveler,

I never had any GI issues til after I got Lyme 😞
Posted 5/25/2016 10:28 PM (GMT 0)
A NOISY GI (is not necessarily normal) and is usually a gas issue and likely caused by certain foods or yeast/fungus. I had all possible causes.

Whenever my y/f flares (not because I don't know how to treat it but because I've been experimenting with different new remedies or preventions for it) - things get noisy. Certain foods can also cause trouble digesting or diarrhea, which can be a little noisy.

The palsy of the gut actually created different symptoms due to inactivity (palsy - paralyzation) - my pancreas no longer signaled creation of bile, stomach had no digestive acids to digest food... trying to digest solid foods is extremely painful. Bart treatment has helped.

Also -
tests for parasites are often wrong - stool tests are only really accurate if you're able to provide a sample from every part of your intestines, which isn't possible... but they're the best we have--just don't take the results as 100% accurate.

-p

Post Edited (Pirouette) : 5/25/2016 4:32:06 PM (GMT-6)

Posted 5/25/2016 11:43 PM (GMT 0)
I'm in the same boat. Gas, bloating, gurgling, diarrhea, loose stools, abdominal pain. Never had this issue until lyme.

Has greatly improved since I changed my diet, take antifungals, proboitics, glutamine, etc.

What are you doing to treat it beeporoni?
Posted 5/26/2016 12:59 AM (GMT 0)
Right now, I've been trying to cut out gluten and taking probiotics. This Lyme stuff is still fairly new to me
Posted 5/26/2016 1:32 AM (GMT 0)
Cut out sugar too.

What kind of probiotics? They aren't all created equal. The best probiotics is in food form. It can still be a supplement but in food form. Dead synthetically made probiotics will not work.
Posted 7/12/2016 5:42 PM (GMT 0)
As weird s it sounds, my issues started when I cut off pretty much everything out of my diet - sugar, gluten. I do not drink coffee and do not drink any alcohol... Stopped drinking even tea, except herbals...
Problems started when I eat SOOOO clean... and I've been dealing with it for over 3 weeks now... Full stomach, constant burping, hiccups, feeling food in my throat... dull ache in my upper stomach and lots of pain in my upper back....

In addition I started liquid form of mepron and Nystatin... I need to start Omniceft this week and I am scared about how am I going to do... I take good probiotics, digestive enzymes.. walk( as much as I can - sometimes no energy to step out of the office but still go...)

I also shake a lot(inner trembling), buzzing in left leg..., twitching left eye(sometimes twitches for 2 days)
I really think my issues are neuro issues that are described in the article that Traveler is referring to...
I hope it will go away eventually....
Posted 7/12/2016 6:13 PM (GMT 0)
" I've been dealing with it for over 3 weeks now... Full stomach, constant burping, hiccups, feeling food in my throat... dull ache in my upper stomach and lots of pain in my upper back.... "

Planny-

That could possibly be die off from yeast/fungal overgrowth. Try incorporating a binder. OTC versions are bentonite clay and activated charcoal - start at very low infrequent doses and titrate up as quickly as you can tolerate it. Drink lots of H2o.

A more aggressive approach is to try PURE Cholestyramine (requires an Rx and it rather expensive). And to replace whatever version of Nystatin you're on with the PURE Nystatin powder. See info in this thread for more detail:
www.healingwell.com/community/default.aspx?f=30&m=1606610&g=3644275#m3644275

Also - try incorporating different probiotic products - you might be missing something not covered in the product you're taking. And also slowly incorporate some good probiotic and enzyme foods, Bragg's apple cider vinegar.

It also does sound like you have some neuro issues. My neurologist told me that nearly all neuro symptoms are due to inflammation. What are you doing to minimize inflammation? A lot of people here have good luck with Japanese Knotweed but there are many discussions so might be worth a good search for those conversations.

-p
Posted 7/12/2016 6:42 PM (GMT 0)

Pirouette said...
" I've been dealing with it for over 3 weeks now... Full stomach, constant burping, hiccups, feeling food in my throat... dull ache in my upper stomach and lots of pain in my upper back.... "

Planny-

That could possibly be die off from yeast/fungal overgrowth. Try incorporating a binder. OTC versions are bentonite clay and activated charcoal - start at very low infrequent doses and titrate up as quickly as you can tolerate it. Drink lots of H2o.

A more aggressive approach is to try PURE Cholestyramine (requires an Rx and it rather expensive). And to replace whatever version of Nystatin you're on with the PURE Nystatin powder. See info in this thread for more detail:
www.healingwell.com/community/default.aspx?f=30&m=1606610&g=3644275#m3644275

Also - try incorporating different probiotic products - you might be missing something not covered in the product you're taking. And also slowly incorporate some good probiotic and enzyme foods, Bragg's apple cider vinegar.

It also does sound like you have some neuro issues. My neurologist told me that nearly all neuro symptoms are due to inflammation. What are you doing to minimize inflammation? A lot of people here have good luck with Japanese Knotweed but there are many discussions so might be worth a good search for those conversations.

-p

Pirouette. Thank you!

I do take Activated Charcoal and sometimes bentonite clay..., I drink lots of water, Milk Thistle tea and water with Apple Cider Vinegar.. but no, no cholesteramine... I will see if my LLMD can prescribe me PURE Nystatin powder...I have a phone time scheduled with her tomorrow.
I will revisit my probiotics, I usually buy them from the refrigerated section of the health food store..

Thank you!
Posted 7/12/2016 7:07 PM (GMT 0)
It really sounds like you are doing everything right - covering all the obvious bases... so there is something key missing. Might take a few troubleshooting efforts to figure out that missing link. Please let us know how things go!

-p
Posted 7/12/2016 7:57 PM (GMT 0)

Pirouette said...
It really sounds like you are doing everything right - covering all the obvious bases... so there is something key missing. Might take a few troubleshooting efforts to figure out that missing link. Please let us know how things go!

-p

I am afraid, if my Cranial nerve is affected by Lyme & Co, that could be causing some GERD or Dysbiosis as was mentioned in the article that Traveller referred to...
Starting Omniceft tomorrow... Will see how it goes...

1.5 years of Misery... Misdiagnosed for a year...

Thank you for your help!!!
✚ New Topic ✚ Reply