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Posted 5/28/2016 7:08 PM (GMT 0)
Anyone else find that their hands fall asleep at night when sleeping?

This has been occurring every night for the past 2 weeks.

It only happens when I'm sleeping and simply moving my fingers or pumping my fist will wake my hands back up. I'm wondering if it's a blood circulation or could it be neuro?
Posted 5/28/2016 7:23 PM (GMT 0)
Hi Kirky98 :)

Yes! I'm also constantly noticing this and it's clearly not a result of sleeping on them (as my doctor seems to think) as I always seem to wake up with my hands at my side or on my lap everytime they go numb.

I also noticed my legs, feet and ankles have been falling asleep more easily and more frequently since my symptoms started.
Posted 5/28/2016 7:45 PM (GMT 0)
It's always been the arm or leg that's on top of my body that falls asleep, so I'm not laying on it.

I've learned to use pillows - one between my arms and one between my knees. The one between my knees keeps my hips "aligned" and the one between my arms seems to keep the pulling on my arms to a minimum.

I've never been sure if it's been a circulation issue or a nerve issue, or (what I think) a combination of the two.
Posted 5/28/2016 8:15 PM (GMT 0)
Oh yes, this was a big one for me. My feet, hands/arms, and even face and neck went numb. It's gotten a lot better lately. It's been a year...Now it's mostly just hands but not every night.
Posted 5/28/2016 9:32 PM (GMT 0)
Yes. Common lyme and co symptom. It happens to me only when I sleep as well. Why only when we sleep? I don't know. Lyme is always a mystery.
Posted 5/28/2016 9:36 PM (GMT 0)

Lifelover93 said...

I also noticed my legs, feet and ankles have been falling asleep more easily and more frequently since my symptoms started.

Yes, this was one of my earliest symptoms now that I look back on it (didn't know it at the time). If I cross my legs, they fall asleep SO fast.

At first I just thought it was part of "getting older". But hindsight is 20/20 and I now know it was the lyme creeping up before the lyme really hit.
Posted 5/28/2016 9:40 PM (GMT 0)
Big symptom for me as well. Not just at night, but also when reading, like holding a book up, my hands would go numb.
Posted 5/28/2016 10:51 PM (GMT 0)
Mine are falling asleep
And also tingling
And not just when I sleep
Sleeping seems to help it a little and make them stronger

I thought it was circulation at first
Now it feels more like nerves
Like little pins and needles
Posted 5/29/2016 12:34 AM (GMT 0)
I used to think it was just my nervous system being harmed by lyme or bart....but then I read that it can be a blood circulation issue affecting the nerves. I found this information on vasculitis (National Institute of Neurological Disorders and Stroke)


What is vasculitis?
Vasculitis is an inflammation of blood vessels, which includes the veins, arteries, and capillaries. Depending on the type, vasculitis can affect blood vessels of any type, size, or location. Inflammation occurs with infection or is thought to be due to a faulty immune system response. Dysfunction may occur due to the inflammation itself or over time as the blood vessel walls swell, harden, thicken, and develop scar tissue. This narrows the passage through which blood can flow. As the condition progresses, it can slow or completely stop the normal flow of blood.

How does vasculitis affect the nervous system?
Vasculitis can cause problems in any organ system, including the central (CNS) and peripheral (PNS) nervous systems. Vasculitic disorders, or syndromes, of the CNS and PNS are characterized by the presence of inflammatory cells in and around blood vessels, and secondary narrowing or blockage of the blood vessels that nourish the brain, spinal cord, or peripheral nerves. Any type or size of blood vessel may be involved—arteries, arterioles, veins, venules, or capillaries.
Posted 5/29/2016 5:39 PM (GMT 0)
This has been happening to me a lot lately too. Sometimes it carries over to when I am eating breakfast as I lift my hands up to eat, but then it usually goes away later in the day. Last time I saw my LLND she told me she thought it was Babesia related.
Posted 5/29/2016 5:45 PM (GMT 0)
It used to happen to me a lot before I had researched lyme. I found I couldn't undo jars anymore and not much strength in my hands and arms, couldn't write very well. My whole body sometimes felt like it hadn't 'woken up' properly the hands going to sleep would happen almost every evening and my elbows would be painful to touch. Not had that for a couple of years but the last couple of days my hands are feeling weak and a bit sleepy again. Some symptoms come and go, some remain and some return, its a long, circuitous journey with lyme !!
Posted 5/29/2016 5:56 PM (GMT 0)

Kirky98 said...

Girlie said...
I used to think it was just my nervous system being harmed by lyme or bart....but then I read that it can be a blood circulation issue affecting the nerves. I found this information on vasculitis (National Institute of Neurological Disorders and Stroke)


What is vasculitis?
Vasculitis is an inflammation of blood vessels, which includes the veins, arteries, and capillaries. Depending on the type, vasculitis can affect blood vessels of any type, size, or location. Inflammation occurs with infection or is thought to be due to a faulty immune system response. Dysfunction may occur due to the inflammation itself or over time as the blood vessel walls swell, harden, thicken, and develop scar tissue. This narrows the passage through which blood can flow. As the condition progresses, it can slow or completely stop the normal flow of blood.

How does vasculitis affect the nervous system?
Vasculitis can cause problems in any organ system, including the central (CNS) and peripheral (PNS) nervous systems. Vasculitic disorders, or syndromes, of the CNS and PNS are characterized by the presence of inflammatory cells in and around blood vessels, and secondary narrowing or blockage of the blood vessels that nourish the brain, spinal cord, or peripheral nerves. Any type or size of blood vessel may be involved—arteries, arterioles, veins, venules, or capillaries.

Girlie,
I'm starting to think the same thing... I was discussing some of my symptoms the other day with a naturopath and the first thing she said was it sounds like a blood circulation problem, your veins could be inflamed. So that very well could be it. How to treat is the next question?

Treating the infection(s) is key. But, also supporting the circulatory system. I take Hawthorn and CoQ10 daily.
Posted 5/29/2016 6:22 PM (GMT 0)
Been there fixed that.

Here IS WHATS GOING ON:

Your hand nerves may be impinged as well anywhere from your neck yo your wrists- possibly from internal muscle tightening FROM the infections.

Three nerves run from your head, under the collar bone to your hands, the ulnar, median, and radial, when they get impinged, you feel it in the hands. This is proven.

Killing the infection takes time, your working on it, but- what immediate releaf NOW? :

Go to you-tube and look for hand/neck/arm NERVE GLIDES. Also look for hand/arm/neck/ shoulder myofacial release.

Your Drs wont know this stuff, a good PT (very few are good) will know this.
Posted 5/29/2016 6:39 PM (GMT 0)
My arm falls asleep if i lean too far foward ..i thought it was structural with my bad back as when i straighted up it came blood back i thinknit is in the shoulder cutting off the veins to the arm..at cardio the nurse said her athlete friend had surgury because this was happenning from repetition. .i think it is our joints being eaten by xyz bugs and then shoulder is free to pinch nerve circulation etc . It is one of the reasons i opted for port over picc...yes girlie rhuemy said it looks like small vessel vasculitis which could have been caused by sulfa or by bugs . I am licky he did not steroid me...it can be caused by any of infections cpn ,bart ,rmsf,myco,even osp to borrelia it self ..it can shed while drilling thru then body is like oh there they are/were and start immune response to veins (vasculitis ) to thyriod ( hashi) to cns (ms als) gut (chrohn) joints (arthritis) eyes (mac degeneration ) brain ( alzheimers) etc etc
astro i will ask my pt help...thanks
Posted 5/29/2016 6:40 PM (GMT 0)
I will add, I had this condition off and on for 15-20 years.

Regular Drs will just say its carpel tunnel syndrome. But that only happens if you have physically repetitive job, computer work can do it too.

So if you have lyme, this happens way easier than in other people.

Get some wrist splints at the neoprene athletic support area at thr drug store, sleep with these and it will help at night till this goes away.

Low thyroid is KNOWN to do this too. And lyme causes hypothyroid.

I had NO help 20 years ago, (no internet and dumb Drs) , hopefully these tips will get you through this.
Posted 5/29/2016 6:44 PM (GMT 0)
I have been doing nerve glides for my upper left side - and when I'm really bad...it helps the severity of it...but I am still left with nerve pain most of the time...

My PT works on me, too...and it feels better...but doesn't completely alleviate it...just helps somewhat.


Astro - Is it perhaps a combination of vasculitis and nerve issues?

The reason I see it as infection...and maybe not impingement of nerves...is I will have days where I don't have the nerve pain/tingling at all - not very often - maybe a day or two a week.

And, in my case...it's more nerve pain...not as much numbness and tingling....

I find the nerve pain worse than my joint pain (and the muscle pain I used to have)


it's so difficult to figure out.... confused
Posted 5/30/2016 3:40 AM (GMT 0)
vasculitis- I dont know. But I dont have tingling hands anymore.

I'm sure veins and nerves can be impinged from muscle knots, or inflammation. Too bad we dont have Drs who can figure this out.

In my case, days with it or without somewhat depended on what I did the day before and the position I slept.

Tingling and hot areas in my experience were the first steps of nerve pain, the worse it got, the more piercing it would be. My sciatica pain would change between those too. And I have fixed 75% of that with years of myofacial release and then slow re-strengthening. When it comes on, I can usually ward it off, in the past it would mean a day off work- in pain.

Its amaising the medical community has all these terms for certain ailments like vasculitis, yet very few Drs who know what they are.

I went to a hemo (blood) Dr after my clot last year, wanting some extra testing since I'm sore all the time. The specialist was CLUELESS about odd blood flow issues / disorders.

So I went to an internist and she found my clot gene , which the hemotologist didnt even bother to think about.

But if I was having a heart attack, they could probably save me.

Oh, here I am ripping on Drs again, shame on me for being so honest.
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