HealingWell
Search Close Search
☰

Feeling drained

Support Forums
>
Lyme Disease
✚ New Topic ✚ Reply
❬ ❬ Previous Thread |Next Thread ❭ ❭
Posted 6/18/2016 10:28 PM (GMT 0)
By drained I mean no get go, no giddy up. Just ...blah. Still having occasional digestive issues. Like today, again, feel like the need for bowel movement and nothing. My muscles feel like they are atrophying. Especially my legs, like hamstrings, calves and quads. My hands and fingers are tingling right now.

I go back to my LLMD this thursday. That'll be just short of 2 months on Ceftin, Biaxin and Bactrim for Lyme and Bartonella. Im wondering if he will prescribe new meds, or carry on with those 3. I did feel better at first, but now im not so sure. I actually have a feeling of doom today. Not like im all of a sudden going to drop over. But like something just isnt right, almost like im deteriorating. I slept a lot today. After waking from 5 hours sleep, I ended up watching tv for a half hour then was out again for 3-4 hours. Rolled over, looked at the clock, and went to sleep again for 2 hours.

I just got a shower and plan on taking a drive. No one else I know is around, theyre all doing things with family, or at the beach. But I feel like, even though im low on energy, getting into something. Antsy if you will. Its a weird combo of sorts. Feeling drained, yet wanting to do something also. Never felt like this before.

Something odd and out of character for me, earlier I actually got a thought of sitting by a campfire and smoking pot. Just getting ripped and taking it all in. I havent smoked pot since I was in my 20's. Just a weird weird day to say the least. I cant put it all together, what im feeling, or whats happening to me.

Did you ever have a day like this? I probably wont respond until tomorrow. Im gonna try to go for a ride and get this antsy feeling out of me..lol. Take care every one!
Posted 6/18/2016 10:40 PM (GMT 0)
I hope you do take a drive! Get out. You could be herxing because we have a full moon coming.
That may be affecting you!
I think that Eleuthero has helped me a lot with the energy bit as well as the Japanese Knotweed. You could ask your LLMD about them.

I have never smoked pot, (well tried it once, hated it), but I can see where it could entice you, especially if it is in front of a campfire!

I had that feeling of doom last Mon. I am not sure why but there are just times when things seem hopeless and yet other days it seems fine. This too shall pass.
I am glad you will be seeing your LLMD on Thurs.
Hope you feel better soon!
Posted 6/18/2016 10:55 PM (GMT 0)
trader, I am having an almost identical day.

This afternoon, I couldn't get out of bed. 2:00pm may as well have been 2am for my body. I'm not grumpy, but something is weird, I'm just ...nothing... haha if that makes sense.

I'm forcing myself to go for a walk now.
Posted 6/19/2016 2:04 AM (GMT 0)
Trader -

I hate to say this but 2 months is barely a dent for most of us.
It takes a long time to hit all the infection a long time to repair damage, a long time to heal and feel normal again.

And to give you some context, there is fatigue like you described and there is exhaustion that knocks you out for days! So at least you're only fatigued.

You are probably herxing and need to increase detox to keep up with the antimicrobials. You're also on a pretty intensive treatment and it may be too much too fast. If you don't get some relief you might need to ease up a bit.

You should also listen to your body... Maybe smoking a little would ease anxiety. Also, being anxious but physically drained are signs of adrenal fatigue so that is something else you should look into.

Hope you had a nice drive...

-p

Post Edited (Pirouette) : 6/18/2016 9:45:05 PM (GMT-6)

Posted 6/19/2016 2:20 AM (GMT 0)
Sometimes those weird thoughts that just pop out of nowhere have to do with neurotransmitters and those endotoxins that affect the brain, thus agfecting the neurotransmitters. Typically those types of thoughts are a decrease in dopamine. Neurotransmitter levels do change especially dueing physical and menral challenges. Also as P stated adrenals can be involved but pretty much anything on that HPA axis. This mess takes a toll on hormones which is also why we just feel just plain out of balance sometimes. And hormones also are ever changing depending on what the body is dealing with.
Posted 6/19/2016 3:38 AM (GMT 0)
I had a very sad day.... super emotional.... then my grandson called me and told me his troubles. I wonder if I was feeling his sadness and despair.

Or is it the full moon that both of us were feeling???
Posted 6/19/2016 4:47 AM (GMT 0)
I'm with you Trader, feeling blah with no get up...

I'm starting a parasite cleanse today to see if they are starting to bloom again..

Have you been checked for parasites or on anything for them?
Parasites and viruses tend to make symptoms worse around the full moon.
Posted 6/19/2016 4:56 AM (GMT 0)
I was having thoughts of drinking....I am not and never have been much of a drinker. On occasion I'd have a small glass of wine or a mixed girlie drink but rarely finished them. But I've actually had days that I wanted a drink so badly - I could taste it. I totally get how you are feeling!

I've never been into drinking or drugs although in my younger years I tried lots of different things but nothing ever stuck - I just didn't like the way they made me feel. Too bad they can't clone my DNA for addicts - it would be big business! LOL
Posted 6/19/2016 5:18 PM (GMT 0)

ItisLyme said...
I'm with you Trader, feeling blah with no get up...

I'm starting a parasite cleanse today to see if they are starting to bloom again..

Have you been checked for parasites or on anything for them?
Parasites and viruses tend to make symptoms worse around the full moon.

So...so true. I'm getting ready to retest for those things. It is my follow-up to a test I did in November. I think Pirouette did a long post on viruses and I think anyone who isn't feeling better after a point in time or begin to feel much worse should look into testing. Please though do a stool test. Blood often misses those buggers.
Posted 6/19/2016 5:35 PM (GMT 0)
Yep, know those feelings all too well,Trader. For me it is not pot it's more of poor food choices ( for a Lyme infected person) and perhaps red wine to go with it. Thursday, I got up feeling blah, but like I needed to do stuff and had a tiny surge of energy?? So, I told my husband that I would go out right after breakfast.....it was 1 PM and he said " I thought you were going out right after breakfast?" Well, as it often happens, that "surge" peetered out. I still went out, but I felt SO crappy that by the time I got home, I flopped on the sofa with my handbag hanging off one shoulder and shoes on ( I never wear shoes in the house!). Anyway, I hope you ENJOY your day, Trader!!
Posted 6/19/2016 7:32 PM (GMT 0)
Lol.....yes needhelp4 we dont wear shoes in the house either but I tell you there were a couple of days where I almost said, forget it. But that is one rule I havent broken yet.

Those instances where the energy surge peeters out; I call those my false energy days. I can now tell the difference between the real energy days and those that wont hold.
Posted 6/20/2016 9:05 AM (GMT 0)
Thanks all. I had a great drive, and spent yesterday thinking things over. I am going to increase detoxing this week starting tonight after work.

I also made another decision, I am going to cancel my LLMD appointment for thursday. I will keep him as a doc, but right now, financially, I just cant afford to see him. Maybe in a month or 2. I have another months supply I just picked up of Ceftin, Biaxin and Bactrim. So ill continue with those and if something pops up I can see my new GP who is covered under insurance until I get the funds to go back to the LLMD. As I stated in another thread I am struggling financially. I make great money...when I work every day. But ive only worked one full week this year and its rough to say the least.

Question, I take those 3 abx twice/day. Would you continue or would you cut back to once per day? Besides the odd feelings that persist even today, I have lost weight again. Lowest was 142, I was maintaining at 155, but yesterday I was back at 147. And I really do think im losing muscle again. Besides work, I am still basically sedentary. Which, on my good days I try to remain active, but im usually very tired at the end of the day and struggle to remain awake.

Besides, if I went once per day with the abx, I could prolong my treatment. And if I still dont have the funds for the LLMD I can try an herbal protocol, if you all would help with that that would be great. Im sure herbal is expensive, at least compared to abx which for all 3 comes to $25 a month covered under insurance. But id be saving the docs fees, which was $235 the last visit.

Just some thoughts for today. I am positive that I am canceling the LLMD appointment for now. The rest are up for debate. Oh, and one more thing.......does anyone do smoothies? I have some frozen raspberries and strawberries, some powdered egg protein, and glutamine. Anything else I might throw in that could help? Thanks again all!
Posted 6/20/2016 11:00 PM (GMT 0)
Hi trader--

I think it's a good idea to spend another month or two with your goals in mind to increase detox and continue the abx.

Detox
I would first keep your abx doses the same and increase detox (slowy) in every way you can think of. Give that a good 3 weeks to impact things. If you feel no or not enough impact, then I would think about prioritizing the abx--what are they targeting? You might be better off treating your primary infection right now and gain some ground and once you do that, then incorporate a protocol for something else.

Pace
I have made huge changes in my treatment over the past couple of years more than once. And while I didn't really look at it as "prolonging it" that's exactly what happened and I struggled with accepting that for nearly a year. But looking back, what I was really doing is slowing it down to a pace I could manage, which has made all the difference in my management of it and proved to be more effective, too.

Herbs
I think a hybrid approach of introducing some herbs into your protocol is a very good direction. I don't think our protocols are comprehensive enough without some key herbs. You should investigate anti-inflammatory herbs and detox herbs first and foremost. Once your detox is ratcheted up a bit, then you can consider replacing one of the abx you were no with an effective antimicrobial.

I'd also look into hormones and adrenal and neurotransmitter issues. These often go hand-in-hand and can increase fatigue and the stressed mind and spent body syndrome--I think I mentioned it in my previous post. You don't necessarily need to do a bunch of testing right now, you just need to read up about it, understand the conditions and what causes them, ask your MD a few q's and make some changes in response.

It's critical to get your energy up--primarily because whatever is causing the fatigue is creating a drain on your body and that isn't good during treatment. But also, it's important for people like you to be active in some way, which can help maintain muscle. It's also very healthy to get your blood circulating and helps you feel better psychologically, too.

I don't do smoothies but you could do a search - I'm sure it's been discussed before.

Good luck and let us know how things evolve.

-p
Posted 6/20/2016 11:24 PM (GMT 0)
Trader - regarding you antibiotics.

If it were me I would do every other day - full dose (twice a day) - not only once daily every day. As that would mean every day you take them, you are only taking a half daily dose.

Many LLMD's prescribe antibiotics with a pulsing schedule.

THE Dr. J. has his patients take them M/W/F and weekends off. I don't know if that's for all of his patients. He says it allows the immune system to kick in.
✚ New Topic ✚ Reply