Confined muscle twitching with lyme?

So does anybody else here get pretty constant muscle twitching with their lyme that seems to be only or mostly in one limb? I've had twitching in my right eyelid and then occasional twitching all over, but now it seems to be happening in my left leg most of the time when I'm at rest.

I know that twitching is very common with lyme and co as well as fibromyalgia, but I've always heard it can also be an early sign of MND which has been freaking me out a bit lately... Been trying to tell myself that can't be the case for someone my age, but my anxiety tends to get the better of me.

Hi Denikeef, thanks for the reassuring response. :)


I also get the buzzing in my feet and ankles along with pretty severe pain so I'm thinking it might be peripheral neuropathy associated with lyme.

I guess my only concern with the twitching is that it seems to be localized in my left calf and thigh most of the time. I guess it's just part of the infection moving around though.

As for testing, I haven't received a positive result yet. Only had one Elisa test done at a local lab which came back false negative. And of course, regardless of my symptoms, my pcp insisted that because of the negative it couldn't possibly be lyme. I am seeing a neurologist who is said to be an llmd next month though, so I'm hoping to get an official diagnosis from her.

I hope you can get the answers you need! Don't give up.

I had two Elisa's which were negative and then a couple years later tried the Western Blot through Igenix which confirmed the suspicions.

This is a test that you could do on your own. You just need to order it through Igenix lab in Calif. and then have a Doc sign off on it and take it to a lab. My chiro signed off on mine.

Something I have noticed with a lot of people is that symptoms are often on one side only. Most of mine are the left side.

Another thing you should know is that people are often diagnosed with other diseases when in actuality it is Lyme. You can spend years searching just to find out it is Lyme so I am glad you are considering Lyme. Also I know that many neurologist say that they are Lyme friendly and will dismiss Lyme. I am not saying that yours will. But if she does, find someone else. Don't waste your money on a lot of tests till you rule out Lyme. :)

When people say "buzzing" do you all basically mean that weird limb falling asleep or waking up feeling?

I've had right eyelid twitching for 8 months now. It comes and goes. I also have leg, head and shoulder jerking that keeps me awake for 2-3 hours every night. I've been on probably 10-12 different antibiotics for the Lyme to try to help the jerking. The only one that helped was IV Rocephin, and then only the last 4 days I was on it. In the last few weeks I have increased the amount of Magnesium that I get in my foods and that might be helping. I could not tolerate (stomach pains) the Magnesium glycinate my LLMD told me to use.

I owe someone on this forum my life. The neurologist I went to more or less accused my husband of domestic violence. Someone on here had just had a similar experience and if I remember correctly got really upset. That did no good, just made the neurologist think he was correct. Anyway, as my neurologist was accusing my husband of domestic violence I just kept repeating in my head "HealingWell" and I kept my cool. It's a wonder I didn't beat him up!!! He referred me to a psychiatrist, which I never went to. He also sent a letter to my regular doctor basically saying I was crazy and thought I had PTSD. NOPE!!!

Thanks for all the responses guys :). I'm actually having that same thought regarding the neurologist, many of them claim to be llmds yet actually know very little truth about lyme from what I hear, but I'm hoping mine might just be an exception lol.


Russ504, I had the exact same eye twitching you described for roughly the same amount of time believe it or not. Knock on wood, it seems to have stopped finally, although it seems to have just jumped to my left leg now lol.

And that's awful regarding your neuro, I thought I had it bad when my pcp told me it was just anxiety and treated me like a hypochondriac. That's awful he'd make such accusations. Absolutely mind boggling how air headed some docs can be.


Dacarte3, I'm sure you're right, based on my signs and symptoms everything points to lyme and co so Im sure that's what's causing my localized twitching. Plus I'm sure its nearly impossible that I'd have anything like MND at my age (22). I just need to quit googling my symptoms anytime something new starts happening lol

As for fibro, I always knew that lyme is a common cause but I never knew that it was considered a symptom rather than a condition in itself. In that case, with the pain, joint popping, neck cracking and muscle twitching I get, I definitely have it as a symptom.