Anyone have luck oral ABX?

So looking around here and elsewhere on the net, I am having trouble finding many examples of success or even improvement using oral ABX. Not to mention the confusion with all the different types and classes. HAs anyone here had success or improvement with any particular oral ABX protocol?

Well, it appears DS is improving using oral abx from Lyme and slowly from mycoplasma. Our LLMD place, a well-known one, seems to start all pediatric patients on orals and even some adults depending on the severity of the symptoms, how long patient has had tick diseases etc. It is a whole protocol of pulsing various abx in different combos. We are too early in to say it's a success plus DS is on supplements, some herbs etc as well. Hopefully some longer term patients will speak up.

bluelyme what do you think, how long a person needs to be on IV abx to have results? and is it possible to be one month on IV abx, then take oral, and after that again IV?

I've been on doxy, rifampin, azithromycin, and nystatin for 9 months and haven't noticed any improvements. I started taking shots of rocephin about 4 months ago, and haven't noticed any improvements.

I herx pretty hard on Spooky2. So much so, I stopped using it. But, if I had free time to be sick, I'd use it again to see if it could cure me.

I also started experimenting with flagyl. I have neuro-lyme, and I did notice pretty good mental herxing. I think oral flagyl might help neuro-lyme, but I need to experiment with it more.

Honestly, I think a lot of people who have success with abx don't even bother looking through forums like this because their healing comes quickly and easily once they find an LLMD.

I had a friend who went undiagnosed for over a year. No one knew what was going on, and he was really struggling with day to day activities.

He finally figured it out and got to a good LLMD. He got oral abx, and 4 months after starting the abx, he said he woke up one day and just knew he was getting better. A month or two later he was pretty much symptom free. No special diets, no herbals.

So the people you see hanging out around here are, for the most part, people who have been sick for a while, for various reasons, and need to dig a little deeper.

Thanks for chiming in everybody. There is just so many variables with different dosages not to mention coinfections. This is beyond complex and i'm trying hard to simplify and focus my approach and reduce it to something that is doable. I just want to believe that western medicine would have a linear protocol that would work and i'm just not able to find it. I find a lot of posts here as well as blogs and other sites where Some people treat for multiple years with little or no success. But it seems there has to be something to the ABX right? I mean ILADS and IDSA can't BOTH be dead wrong. I just wish there were more examples of success being published. I get that people who are healed get back to their lives and move on, but you'd think they would post what ABX worked for them, if in fact they did heal.

-CreativeGirl- I have heard others mention the mino/tindy pulsing every other day. There were some posts by Lyme Pickle a couple years back mentioning some moderate success on this protocol. Your supps for adrenals sound interesting. With the desbio plus the herbals it sounds like you've struck a nice balance between the 'herbal' and traditional routes. Maybe I need to be open minded enough to do something similar. Whatever your doing keep it up. Wish I was able to play tennis in this heat.

Mustardseed- That's exactly what I want to believe/hear. Again I just wish there were more examples of this type of healing. The whole holistic approach just seems far too complex for me. I know that holistic can be of benefit, but Trying to listen to Klinghart protocols and follow those is like decoding advanced trigonometry, more than my brain can handle. Sometimes I think he and others just throw so many things in the mix just to baffle you with BS so to speak. Theres already enough variables in this disease. Not to knock people's healing methods but with all these overly complex natural herbal protocols and special diets with so many things added, how would you know what's helping and what's not? Plus Anytime I'm on Amazon looking at houtinyaya, cryptolepis and Japanese Knotweed and teasel, I just have a hard time convincing myself that A $10-$20 'tincture' is going to be of much benefit to a disease that people are remortgaging their house and spending thousands to treat. I guess i'm just frustrated by the complexity of all this and taking it out on the 'herbies.'

Not that ABX are that much simpler like I said in OP, with pulsing and all the different types, but at least it makes sense from a theoretic standpoint. I would like to think I could have some success using traditional protocols to simply attack the bacteria and get into remission.

Maybe i'm just wrong and I may just have to learn to adapt because so many on this site and others swear by these complex herbal protocols and crazy limiting diets. I've always been a meat and potatoes guy and I just wish I could beat this the old fashioned American way by chasing some drugs with a steak.

I guess you just have to pick your poison so to speak. It's either crazy drugs that you can't pronounce or crazy herbs you can't pronounce. Or both.

Man I hate this ****ing disease.

Post Edited (logmoss82) : 6/28/2016 12:14:10 AM (GMT-6)

I did the standard 21 days of Doxy and I'm 99% better. It did take about 8 months after ABX to feel this way. Lots of time to heal soft tissue damage. I was undiagnosed for about 7 months and prayed for death during that time.

I think for those who are less sick (please don't get angry at this comment- I am just trying to get my point across) and have been sick for less time, antibiotics can work very well. For those who are sick for a long time, meaning years, borrelia and co-infections have burrowed themselves too deep into the cells/tissues of our bodies for abx to be rendered truly effective. I know there are those out there that have seen results with antibiotics so it's not to say they're not useful and I know people do a combo of abx and herbals with success. As some have mentioned herbal protocols are very potent and powerful and can do a lot that abx simply can't.

If someone has a messed up gut, mold toxicity, parasites, viruses that are now activated after being dormant, mitochondrial dysfunction, hormonal imbalance...antibiotics won't do anything for these areas. They can certainly attack different morphologies of borellia and company; they can also do damage to the gut and immune system.

So it comes down to a personal choice of whether you feel abx will help. Personally- I have been on abx for a year without any real change. I am going back to an herbal protocol/rifing amongst other things to help.

I hope that wasn't too long winded.

Hi,

Also, regarding the herbs I take for adrenals, they are all recommended from Buehner for either neurolyme and/or bartonella. I probably will be on then a really long time, as long as there are no side effects.

My college roommate is the editor for Dr. Horowitz's books. She is working on his next book "Here's how you get better", the sequel to "Why Can't I get better". He goes into pulsing extensively in this next book.

If you don't have too much of a lyme brain, you can read that book. He answers you question and why some people need to fix other things first before their Lyme goes away. For me, it was my mold situation. I had to fix that first.

Cheers!

Mustard Seed

do you think a person can take Uncaria Rhynchophylla and Sida Acuta while on abx or not?

Mustard Seed what a great post! Now I think I understand :) Thank you very much for this explaination.
I have two more concerns:

1. So, for example, it would not be good to use cat's claw and some of these abx?

2. And another question. Is this mean only not to take them together (like dairy is not recommended 2 hours before of after some abx) or during the whole day - whole period on abx protocol - it is not recommended to take them?

Thank you very much :)

I have been on oral certain BID amid azithromycin M. W. F since November 1 and I would say I am about 50% better though the spirochete damage in my joints has required a rip hip labral repair, and trochanteric bursectomy. Next is my left shoulder which shows labral fraying, bursitis, calcific tendinitis, acromial impingemt and a rotator cuff tear.

My EKG is still abnormal with "T wave inversions in all leads". I had an angiogram the end of October which showed my heart was "perfectly normal". Ha!

Fatigue, weakness, brain fog and small joint pain are improved. So oral atbx have helped me some.

Yup azithromycin is fine:

medicine.iupui.edu/clinpharm/ddis/main-table

This list specifically mentions that, and I've read it elsewhere.
Not sure why though.

Haha blue, this stuff isn't boring, it's the best!