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Posted 6/29/2016 11:27 PM (GMT 0)
NO FRIED FOOD even pasta....start going Paleo or similar,you may have Candida issues??

Candida alone can make you feel like S&%t.

Lots of water......then...try to find a Dr to test for this....along with other Lyme cos.

r

ps candida loves junk food,sugars and such.
Posted 6/29/2016 11:37 PM (GMT 0)
Reminder
yes I know but had to eat that because couldnt do anything on my own. Got much worse so now I am juicing and will continue with Paleo like I always did. I was a lot better but not cured. I have Borrelia,Babesia,Bartonella,Mold,Candida,Mycoplasma,Chlamydia,EBV,herpes simplex,parasites. Just too much going on and I won't be able to take antibiotics :(
Posted 6/29/2016 11:43 PM (GMT 0)

RadkaCZ said...
Traveler,
that sounds great! Acupuncture did nothing to me. I was going for couple months when I started to have first symptoms. Now they moved mostly to my brain so it's even worse. I can't feel emotions,feel dead inside and disoriented :(
Now I cannot even do acupuncture. I freak out from needles,I never cared about needless oh well.
That's great with kefir! I will keep drinking it then. I love it and its liquid. I like liquid stuff now because my stomach is not hungry anymore and I get nausea a lot.
Yes I want to work on detoxing and diet now. I still have some herbs and essential oils here so have to figure out how to use them because I have no more money and who knows how long this disability will take :-/
I cannot find the herbs she was using. Can you please find it for me. Maybe I have something similar here.
Thank you

Okay, I'm really tired now - what herbs that who was using??? LOL! I'm confused!! smilewinkgrin

The no feelings, no emotions is part of advanced Lyme, so don't panic, it will come back as you heal.

Have you ever tried drinking fresh ginger tea 3 times a day - especially just before you eat? I had to do that and stuck with it for 3 weeks before my nausea let up, but it worked! Any time my nausea or digestion is off, I go back to drinking my ginger tea or eat slices of ginger for a quick fix.
Posted 6/30/2016 12:12 AM (GMT 0)
Traveler,
yes mine is really advanced it's really bad. Yes I used to drink ginger tea too. Now I started juicing and add small piece if ginger and yes nausea is gone but brain too :-/

I meant what kind of herbs was your Chinese practitioner using to detox?
Thanks
Posted 6/30/2016 12:24 AM (GMT 0)
Oh! LOL! Sorry!! blush I did most of the detoxing on my own with the methods that we encourage members to use, actually. Most doctors don't know as much about detoxing as we do. wink

It took a lot of diet changes as things with my body changed (those baby steps I was talking about), I used a foot soak daily, dry skin brushing, making sure my bowels moved at least once a day (sorry if it's TMI!) pushing myself to drink at least 64 ounces of lemon water each and every day, liver/gall bladder flushes (all natural), oil pulling, taking activated charcoal and keeping the amount of stress in my life at a bare minimum. I have now added in Alpha lipoic acid, Quercetin, Apple cider vinegar, and I think something else? LOL! As I said, I'm pooped, so my brain is starting to give up on me.
Posted 6/30/2016 1:44 AM (GMT 0)
Doctors don't do detoxing. They do the opposite :-/

Ok I will keep working on diet again,skin brushing,lemon water.
I will add charcoal. Liver flushes I cannot do anymore. Oil pulling again. This is never ending battlešŸ˜£
How do you take ALA? Small doses every 3 hours?
Thank you
Posted 6/30/2016 2:30 AM (GMT 0)
I started out with each thing I take on VERY small doses, lol! Call me chicken!! I started ALA at 500 mgs once daily, and I slowly increased my doses starting with a second dose later in the day. I also waited 5 days between adding in more. I'm now up to 1500 mgs in 2 divided doses. That is what I have found to be most helpful for me. You will have to start low and see what works best for you.

And yes, it can certainly feel like it's a never ending battle! But you now have all of us to lean on, ask questions of and to help with suggestions when we can.
Posted 6/30/2016 3:11 AM (GMT 0)
Traveler,
what??? I was just trying Andrew Cutler protocol and just couldn't do it. I was taking only 1.5mg DMSA or DMPS and it almost killed me. I am not sure why. It seems like I am the only one with this issue because the dose is small. I just got my amalgam removed so have to wait 3 months and then I can take ALA but I will start 1mg
and still not sure if I will tolerate it. It's soo weird how we are all different.
Posted 6/30/2016 5:15 PM (GMT 0)
Well, DMSA or DMPS is for chelating heavy metals, not for the kind of detoxing most of us are talking about here. We mostly talk about detoxing ammonia and other types of toxins. If someone is talking about detoxing heavy metals, they usually say so in the post somewhere.

Do be sure to follow any restrictions with the heavy metal detoxing. That's something I never had to go through for some reason. It was thought I would (I had a mouthful of amalgam fillings from a small child due to poor enamel), but when I was finally strong enough to handle chelation, it was no longer needed - now that was me, it surely doesn't mean no one else needs to go through the heavy metal detoxing! It's just for once, I got lucky!!
Posted 6/30/2016 7:22 PM (GMT 0)
Traveler,
yes I know it's for chelating heavy metals. I tried to start with chelation but couldn't do it at all. I just got very sick even if doing it right and taking the lowest dose. So I am surprised you were fine on such a high dose. I hear people getting sick even on small doses ALA. ALA is suppose to chelate mercury from brain and Ive heard its dangerous to take in high doses.well probably not in your case :)
I am not even sure if I will go back to chelating. Its making me too sick :(
Posted 6/30/2016 7:53 PM (GMT 0)
Oh and I am still juicing. 6 days now. Something improved like digestion. I don't sweat and smell bad anymore,hair not falling but exhaustion,swollen lymph nodes and still feeling brain dead :(
Posted 6/30/2016 7:58 PM (GMT 0)
You may be able to finish it once you have some good healing from these infections - or you may find that you don't need it.

Well, now, I didn't know that it was supposed to chelate mercury from the brain!! Cool! I've been concerned about that, but there isn't anyone that I would trust to do chelation in my area. The one doc I would have trusted had to close her office so she could take care of her elderly parents.

So, how's your detoxing going for these infections? Things seem to be going well on that?

And here's a video on doing lymph massages - only you don't need to do it 50 times or whatever she says! LOL! Only do it for a bit, until they get sore, then stop. Just remember to do it a few times a day.
/www.youtube.com/watch?v=QA-wi0d7-Ro
Posted 6/30/2016 8:26 PM (GMT 0)
Well I started doing chelation because I've heard its important to do it even if I have Lyme. Well I am not sure. I feel brain dead and dont know what is causing that and its going on for at least 7 months with other health issues :(
I am just on green juices 6 days now and glued to bed,digestion maybe better but no change with brain :(
I have huge apathy and not sure what to do.
Oh and I don't even like massages anymore :-/
Posted 6/30/2016 8:39 PM (GMT 0)
It's common for massages to release toxins in very sick Lyme patients - so it's no wonder you don't like them right now!

You likely just need to concentrate on detoxing right now, so keep working on that only and slowly. You can release more toxins than your body can effectively handle easily, which would cause a herx by doing too much detoxing all at once. The body can only handle so many toxins at any given time in the blood stream.

I would encourage you to start using a binder, such as activated charcoal, since you are not in treatment for anything - but do watch out for constipation!! That wouldn't be good either. But you can take up to 3 caps up to 3 times a day safely (3 caps 4 times a day is the limit). Do be sure to take any binder at least 2 hours away (before and after) from any food or supplements that you are taking, otherwise the charcoal will bind to those things instead of the toxins.

The best way I have found to remember this is to find a 4 hour time block where you won't be eating or taking any meds/supplements and take the binder in the middle of that 4 hours. I also get up to use the bathroom every night, so that's a good time to take it as well. Just be sure to drink at least 8 ounces of water with each dose to help keep that constipation at bay!
Posted 6/30/2016 9:55 PM (GMT 0)
Yes my friend gave me last massage in December. I was already pretty bad and got diarrhea right after. I am glued to bed since April.i dont like anybody touching me anymore :-/

I was thinking I might maybe just lay in front of door to sweat because I live in South Florida but not sure if its good idea and I dont like heat anymore but if it would help I would have to push myself.

I still have some Charcoal around so I will start taking it before sleep. Thanks
Posted 7/1/2016 12:04 AM (GMT 0)
Please stay in touch with us and be sure to keep asking questions!!

Now is not the time to push your body like that. You are pretty ill and you need to baby your body, not push it right now. Be kind to it, don't over do anything, including being up and moving around, since you are basically bed ridden. I was once bed ridden from these infections as well, and I can tell you it wasn't because I was bored or anything else, other than so ill I needed to be there - I figure you likely NEED to be there too.
Posted 7/1/2016 12:51 AM (GMT 0)
I am bedridden for 4 years on and off but last 7 months I am kind of in death spiral getting nowhere. So I feel like I have to do something but don't know what now when I am this sick. It was much easier 2 years ago when I was bedridden but still able to cook,bathe,read,watch TV. Now I just lay and suffer :(
Brain is gone.
Posted 7/1/2016 1:01 AM (GMT 0)
I was to that point at one point in time myself - although that was back in 2008. Detoxing was the first and only thing I did for a long time. Then I found a protocol that worked for me, which was different from what everyone else on this forum was using and they had some serious doubts about it working. Why? Because I used herbs!! And now herbs are being used frequently.

So one step at a time. You know you need to lower your toxin loads before you create any more toxins, so detoxing first. And slowly so that you don't overload your body with toxins and make you worse. It's all about balance, even when you get into treatment. We simply can't encourage more toxins into our blood stream than our body can detox out, so everything must be done slowly and at the pace the body sets.

Try to stay more positive than negative, and keep working on slowly increasing the amount of detoxing you are doing. We are here to help answer questions, hopefully to help you keep from going out of your mind (LOL!) and to vent to and get advice from. :-)
Posted 7/1/2016 1:18 AM (GMT 0)
I know but it's so hard to go slow when I feel sooooo bad.
I used to be positive and very active person but this "super bug" just turned me into depressed zombie :(
I still don't know what herbs did you use? :) I know a lot about herbs and have some here and essential oils.
But I know I have to lower toxins well easier said than done.
Thank you for help I am just crawling now :-/
Posted 7/1/2016 4:49 PM (GMT 0)
SmillingDaises

I live in South Florida in old apartment with carpet that never gets vacuumed. I dont have energy to do it. I am glad I have roof over my head again because I was homeless because of this disease.
Yes I was tested for allergies and I am allergic to dust and mold. Nothing else.
My friend who is Dr dealing with mold issues tested my saliva and its very bad. All I can do is to take some supplements. Vitamin C,Thieves oil,Cholestepure.
I am 4 years bedridden still fighting for disability so I can get treated but it might take couple more years. So no money for antibiotics or other expensive treatments.
Well I am juicing,just soaking my feet in Epsom Salt.
I have some supplements and herbs but still feeling like Living vegetable. Brain doesnt work right.
Posted 7/1/2016 9:08 PM (GMT 0)

RadkaCZ said...
I know but it's so hard to go slow when I feel sooooo bad.
I used to be positive and very active person but this "super bug" just turned me into depressed zombie :(
I still don't know what herbs did you use? :) I know a lot about herbs and have some here and essential oils.
But I know I have to lower toxins well easier said than done.
Thank you for help I am just crawling now :-/

There are so many of us here that have started off at a crawl, yet we have made progress! It's not easy to stay positive with your situation, but just keep trying - and remembering that you now have a great (wink) group of new friends that are here to help with suggestions, encouragement and will 'listen' to a rant or 5.

Now, I want to be very specific in answer your question about which herbs I used. Are we still talking about detoxing? I just looked over the notes in my record from when I was seeing the doc, and we mostly used acupuncture to help detox my organs, then moved on with supportive therapies on top of that.

I saw this doc for 6 months before I ever started any killing treatments, and I had been doing the detox routines that we suggest on here for 2 years previous to that.

Maybe if you are up to it, you could list the herbs you have access to and we can help you see if any of them will help with detoxing? That way we aren't telling you to use anything that you would have to buy. This list of detoxing routines may be of some help as well: http://www.tiredoflyme.com/detox-methods.html
Posted 7/2/2016 1:32 AM (GMT 0)
Traveler,
ok before I will put The list of my herbs together I want to make sure I feel brain dead from Lyme or it can be thyroid?
I had high TSH so want to make sure if that maybe can cause
feeling brain dead. I would have to check it again but I think its Lyme.
I am detoxing,brain same,maybe skin better but thats all.
Frustrating
Thanks
Posted 7/2/2016 4:28 PM (GMT 0)
RadkaCZ have you had a recent thyroid panel test performed? You said, "had high TSH." Sorry if may have missed it in a previous response. You should have at a minimum TSH, FT3, FT4. TSH by itself won't tell the whole story. And yes, being hypothyroid can give you that "brain dead" feeling. Often with Lyme and co's the thyroid gland is negatively effected. However as you get those critters and toxins out of your body, thyroid function can resume or at least improve significantly. Do you currently take any thyroid medications or supplements?
Posted 7/2/2016 4:32 PM (GMT 0)
Krimpet,
my TSH was 6.1 and 4.57. I am detoxing but just getting worse and more miserable :(
T4 was normal but they didnt do T3 so no treatment.
Posted 7/2/2016 4:57 PM (GMT 0)
Ok, when you say they did T4, was that free t4 (FT4). If not, I hate to say it, but total (T4) is antiquated and useless. Also they need to do FT3. If they refuse, you need a new doctor or order the test online yourself. I had a doctor tell me that he didn't think I needed to test, FT4 and FT3. I asked him if this were coming out of his pocket. If no, then why did he care? To say the least, he ordered it, I got the results, and then fired that doc.

Anyway, can you try to get another TSH, FT4, and FT3? Also if you can test for Thyroid peroxidase antibody (TPO) and Thyroglobulin antibody (TGAb). These will give an indication of whether your body is dealing with an autoimmune condition (Hashimotos) or just low thyroid function.

The thyroid area to say the least is very complex and most doctors are clueless. On appearance, it appears that you may need some thyroid support (which could just be herbs), but you won't know without clear cut tests. Please try to get this retested and have a conversation with your doctor.
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