I'm a mess

Sorry you're suffering with this, Bhutan boy!

How long have you been on the Rifampin? and what dosage?

Did you start low at first?

My LLND had me start with 300 mg once daily...for at least a week..then go to 300 mg twice daily.

I actually started at 150 mg - I opened up the capsule...and filled an empty cap about 1/2 full.
(my caps were 300 mg each) I did that for about 5 or 6 days, before taking the 300mg dose once daily.

Are you doing enough to detox? It does sound like a herx - I get the electrical zaps...and its from bartonella.

Are you detoxing quite a bit? That could ease those symptoms most likely if you aren't.

thanks guys. So weak dizzy etc etc hard to believe so many symtoms at once. Brain fog is inadequete my whole body mind and spirit are numb like living in a nightmare just escalating spacial unawareness. Losing hope and only 8 months in. Getting worse almost daily. Can't even leave house except when mom drives me to doctors.

My por mom paying for all this anyone else doing iv ozone treatement. Any success with neuro symptoms out there.

tim

I did IV ozone treatment for 5 weeks and it was very helpful. However, again there is a balance to everything. I started at 5 x a week, but found that I could not keep up with the die off toxins. So, I decreased to 3x a week. I was also doing other therapies as well. When I started IV ozone, my most horrible symptoms at that time were debilitating fatigue, brain inflammation, and neuro-psych symptoms. I think with all the therapies, IV ozone, Myers cocktails, MAS mat, and HOCATT treatments, it significantly helped, but you do have to detox. Some people are very sensitive to some of these therapies and others not as much. I would suggest starting slow. Build up to what your body can handle. I'm not doing any these therapies at this time, but I may go back to IV ozone perhaps 1x bi-weekly in the future. Right now I'm doing ok. I think I needed that boost in the beginning.

current symptoms
ringing in the ears, air hunger, dizziness, anxiety, sweaty hands and feet, anxiety, nausea, FEAR, spacial unawareness, difficulty balancing blurred vision

Last year I was walking 20 miles a day now can barely stand, ***!

reminder what is mthfr???

Make sure you're not drinking too much water. You want to be drinking a lot, but not A LOT. I don't mean to scare you or anything, but a person can die from over-consumption. It's like, you flood your cells with water until they burst.

Though, the more real possibility is that you could be washing out things that your body might need, such as vitamins and minerals.

Let's say you just ate, then drink a ton of water, that could slow digestion and nutrient absorption.

Again, I'm not saying you should drastically cut your intake, 'cause we do need to drink more than the average bear, but that maybe you should consider the possibility of drinking too much, and that water alone won't really do much in the way of toxins. There are toxins that it just doesn't affect much.

I drink a crap ton of water, I don't think it does anything significant.

Saunas are very good, but.. again, like.. do it right.. similar to the water, with too much going in, you could have too much going out of you via sweat as well. I worry about this myself. I've been told that it is good to "remineralize," but I am not really sure how much of an effect the sea salt I use after has.

Also, with the saunas, there's the possibility, or rather fact (I mean, raise your body to a certain temp, the body start to die, right), of you simultaneously adding to the toxin load. Isn't the sweet spot for sauna temperature like 120 F? The bacteria are gonna be angry beavers. Granted, I think you detox faster than they die though, 'cause I always feel better after being in the sauna. Still, take it slow.

It sucks.. I know, but you really can't rush anything..

Chances are you'll just end up screwing yourself over, trust me. That goes with anything in life really.. not just Lyme and whatnot..

Anyway, sorry if this post is a mess as well. Just a reflection, I guess.

You and I, two peas in a pod. But.. I guess there's everyone else here too, so.. maybe we're more like kernels of corn on the cob? Watermelon seeds, spit out by life. Haha..

You keep pushing though now, alright? We'll see each other a few months from now, and (hopefully) in better shape than today.

I was on Rifpamin for 6 weeks, along with Cedifiner. He started me off at 600 mg which in reading this was too much. Side effects I had were: agitation at night, heightened anxiety, stomach pain, headaches and feeling like I was beat up badly every morning and just feeling horrible. It was a very tough 6 weeks. I did detox and it looks like maybe I over did it. Stayed in the bath too long, too long in sauna. I think I left the house twice in those 6 weeks. I also drank tons of lemon water.

Just saw my LLMD yesterday and he wanted me to take a break from both for a month. This is the longest break I have had since treatment started 9 months ago. This round of treatment was for Barts. He wanted to give me Levaquin but I didn't want to since I already had bad neuropathy and couldn't fathom having it the rest of my life.

What are you taking it for?

While I'm grateful for the break, I' worried I will have gone through all of that for nothing and will have to start over. However, not sure how much more my body could take either. I already feel better after 12 hours. One thing that has occurred already is that my feet are on fire. But I'd rather have that then neuropathy, which could be around the corner.