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Recieved help, but what do I need to do now?

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Posted 7/7/2016 8:32 AM (GMT 0)
Hello everyone hope your doing well, last year around last May/ June 2015 I was bite by a tick in the Kentucky Indiana border and I had developed a rash about a few days after improperly removing a tick from my chest.

Soon after a month of dealing with the symptoms I was rushed to the hospital due two server head aches involving my neck and head. I was tested multiple times from white blood cell and red coming back negative of anything bad and thus prescribe 14 doxxcycline 100mg for 14 days on July 27th 2015. This helped but only so long and so soon after the medication ran out I was about to get another course of doxycyline 100mg for 28 days on August 13th 2015 which helped cure a lot of the problems I had faced.

But now with it almost a year 2016 my headaches can come back from time to time and leave without explanation but fortunately it has gotten better. And so my question to you all would be what should I do now?


I am 21 and because of this I have been eating healthier and taking care of myself(although I was already concise due to being a chef). And have painstakingly looked into information regarding these issues, but what I wanted to ask is what advice can you all give on where to go from here? I have the doctors ready to give me more doxycyline when need be and I am slowly turning to cannabis (medicinal use) to help the healing process. So if you all have any tips or advice I am more than welcoming to hear them thanks and God Bless!
Posted 7/7/2016 12:32 PM (GMT 0)
Hey Boba!

Glad you have come back to the forum! I'm a bit unclear on the amount of doxy you were taking. Was it 100mg 2x/day for 14 days, with a renewal of 100mg 2x/day for another 28 days? The concentration of antibiotics and duration is particularly important during those days, given the fact you started antibiotics after about 7-9 weeks of the tick bite. Was your rash a classic EM rash? Did you ever end up doing an Igenex Lab test?

Also, I would recommend looking into herbs. They can be very supportive, especially when you are showing few symptoms sparsely. I would recommend Buhners book, Healing Lyme second edition to learn more about these herbs - it really is a very good read!

I see you have made posts on other forums, and I wanted to let you know that your symptoms could be lyme related with the leg pain and anxiety. Most of us end up with anxiety. I would look into seeing an LLMD if it is an option for you. If you are in Canada or somewhere else let us know and we can direct you to a properly trained medical professional! You can also use the link below.

http://ilads.org/ilads_media/physician-referral/

I'm glad that you have a Dr who is willing to work with you, he sounds like he is very open minded and that can be the biggest difference!

Post Edited (Asmoline) : 7/7/2016 6:38:23 AM (GMT-6)

Posted 7/7/2016 12:54 PM (GMT 0)
Thanks! and yeah sorry I was on that exact course of antibiotics 100mg of doxycycline two times a day for both courses. And okay I will look into herbs. The issue with anxiety has started LONG before I was bit by this tick I am afraid, however a symptom though that was forsure caused by the tick was very bad headaches I have had ever since and a bull's-eye rash where I was bite. This is was prompted the doctors in giving me doxycyline so quickly and for as long. So I had all the tell tale apprances of Lyme
Posted 7/7/2016 1:39 PM (GMT 0)
Boba, Asmoline gave you some very good advice.

If you had a bullseye rash you definitely have lyme. It is quite likely that the course of antibiotics were not enough to wipe out the infection completely. You definitely need to seek more help. Preferably with a LLMD (Lyme literate medical doctor).

The testing that they use is often not accurate. Igenix is one of the few labs that specialize in Lyme detection. But considering you had a bullseye rash it would probably not be necessary unless you just want confirmation.

I am sorry you have to deal with Lyme. But this is a good place to come for conversation with people who understand it.
Posted 7/7/2016 2:04 PM (GMT 0)
Welcome Boba! You are a fortunate one that had a bull's eye rash and that is conclusive for lyme disease. There is no other disease that gives a bull's eye rash.

Asmoline and Denikeef both gave you great information.

Where is your head ache located on your head? I ask because I thought mine were head aches and come to find out mine were swollen lymph nodes. No wonder the pain meds didn't work.

Welcome again, ask any questions and it is nice to have a chef here. I love to cook, not chef quality, but dang good tasting healthy food is my style.
Posted 7/7/2016 2:07 PM (GMT 0)
I suggest you have an appointment with LLMD. Those meds you got were not enough.
Posted 7/7/2016 2:53 PM (GMT 0)
Were you ever tested or evaluated for Babesia? Both Babesia and Lyme can cause some of the worst headaches/migraines I've ever experienced. If the headache doesn't start off with a stiff neck, then it could be Babesia and Doxy doesn't treat Babesia at all.

You would be much better off to see a LLMD to help evaluate you for all of these infections and get you on the meds needed to heal you. If you need help in finding one, please do let us know!!
Posted 7/7/2016 5:33 PM (GMT 0)
Thanks for the advice everyone! But to answer some questions the headaches I get start at the base of my skull and neck and will usually work it's way to to my forehead. It will be a dull pain where as before I was on doxycyline it was a sharp burning pain that occurred a few weeks after the bit and rash. Now that immense pain is gone due to being on doxy.

The pain first start occurring in my neck start out minor but than gradually shifted to my head and forehead where it gave a number tingling feeling and than it grew into acute sharp pain. But like I said due to the doxy it made it into just a dull somewhat irritating pain nothing too extreme.

Fortunately as well I have been in in contact with people that have provided names of doctors in the area that are LLMD along with some doctors I meet on the way that have seen me and aided in getting me the medicine.

And no I wasn't ever tested for Babesia
Posted 7/7/2016 6:37 PM (GMT 0)
My first symptoms were neck pain. Not horrible crying neck pain, but like maybe I slept wrong?? Then my ears felt plugged, as if I had gone in an airplane and ascended too quickly. Very annoying.

I had head pain in the back of my head on the right side behind my ear. Horrible pain and this one brought tears on numerous days. I would handle it for a bit and then it was overwhelming and narcotics did nothing.

I also got lightening bolts of pain in the top of my head. Those were there and gone but so very scary and very sharp pains.

And the pains behind my eyes. I would put a cold wash cloth on those. I had no idea what to do.

A couple of things helped me. Japanese Knotweed, Red Root and lymph work. Low and slow on the Japanese Knotweed tincture and the Red Root. Our lymph system has no pump - we are the pump. I would stand and swing my arms back and forth to get it a pumping. I also found this great video on lymph massage. /www.youtube.com/watch?v=QA-wi0d7-Ro

I did the massage as instructed 50 times and it made me feel sick. I went down to 10 times and felt better and slowly worked up to 50 times. So take a warning from me to start slow on this one.

I don't know if this will help you, we are all so different, but if not you, then maybe it will help someone else that is reading this.

Let me know.
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