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lyme with energy/ no join pain?

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Posted 7/12/2016 2:21 PM (GMT 0)
has anyone else been diagnosed with lyme WITHOUT having any joint pain/ loss of energy/ or memory problems? My igm results came back negative and igg results came back indefinite, which makes sense because I did have lyme when I was 10 but was treated right away. I want to start treatment however I don't know where to begin because my symptoms are only neurological (tingling, twitching, constant tilting/off balance walking but no problem with personality or memory) which seem so different than the symptoms which are typically treated.
Posted 7/12/2016 2:51 PM (GMT 0)
arl1224, there are no "typical" lyme symptoms. They are extremely varied and ever changing.

When you were 10 you probably were treated and your lyme went into remission and was dormant for all these years. Something happened (stress, infection, the sun didn't shine, or your hat was too tight - there can be any reason, is my point) and your lyme resurfaced.

First you want to find a lyme literate medical doctor and he will take a history and do a clinical diagnosis on you. Your lyme test is just a tool and is not absolute. At the bottom of your test you should read the blurb that states: Diagnosis should not be based on laboratory rests alone. Results should be interpreted in conjunction with clinical symptoms and patient history.

If you need help finding a llmd, let us know in a new post called -- Need LLMD in __________ -- we will be glad to help you find one.

That is where to begin and also to begin detoxing. Here are some ways you can go about that. www.tiredoflyme.com/detox-methods.html

I also recommend you start a journal. It is a great way to see your improvements, keep track of your meds and dosages and just to keep notes on how you feel.

Hope this is helpful and keep asking questions.
Posted 7/12/2016 3:52 PM (GMT 0)
Yes. Me. I'm very positive through my tests and never had joint pain until recently. I had burning, shaking, blurry eyes, tingling, muscle pain, etc. Lyme is different for everybody. Sometime I wish i had brain fog instead of the body pain. I had brain fog for a little bit and compared to my physical pain that was a walk in the park...
Posted 7/12/2016 4:17 PM (GMT 0)
Yes me. Symptoms can pop up whenever they want. There is no set schedule. Treatment can also bring out symptoms that you've never experienced before.

It would be interesting if they could figure out who would be prone to what symptoms. Ha...they still have to make more accurate tests.

Post Edited (Krimpet) : 7/12/2016 10:24:42 AM (GMT-6)

Posted 7/12/2016 4:21 PM (GMT 0)
Have you been treating with antibiotics/ are you treating for confections?
Posted 7/12/2016 4:21 PM (GMT 0)
Joint pain showed up for me months later and its one of my symptoms that usually recedes pretty quickly. I didn't have any major CNS problems or fatigue until recently either and I've had this stuff for almost two years. Most of my symptoms were chest pains, muscle pains and nerve pains. I don't know of any science out currently, but in one of Sapi's talks she mentioned they noticed more biofilm colonies in the heart and nervous system or something along those lines than the joints so it's definitely not a requirement. Do you have any other syptoms? You're right that your symptoms aren't "typical". Even though there is nothing universal with lyme symptoms there are some that are certainly more common than others. Doesn't mean you don't have it, but could make diagnostics harder. As PeteZa said, find a GOOD LLMD and i recommend getting tested for coinfections. If you get back a handful of them you can almost be certain you have lyme. It may also explain some of your "atypical" symptoms
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