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Knees are achy these days ..disappointing

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Posted 7/13/2016 6:54 PM (GMT 0)
Hi everyone,

So.. I've had lyme for about a year and a half now. I'm 27 yrs old.
Had some really good patches where I was taking full buhner protocol and lots of supplements. I've started college now in LA and haven't found the time to take my supplements like I used to. Consequently (or not..?) my Lyme has been flaring up big time lately. I was really hopeful that I had 'eliminated' it, but now my knees ache worse than they ever have. I have persistent middle upper back pain, which has always been a symptom for me.

Question is..should I go on antibiotics, I've only ever done low doses of 3 days on- 2 weeks off Flagyl. I am very weary of ABX but I am slightly terrified of having long term damage to my joints. I guess I need to get back full on Buhner protocol?
My next appt with my LLMD isn't till September 28th, I may need to find an LLMD I can see sooner. (may do separate post).
I'm out here without my family in LA, and I'm scaaaaared.
I really just want to be well! I'm sure you guys relate ;))
Thanks so much for reading
Flo
Posted 7/13/2016 6:57 PM (GMT 0)
I would definitely restart the Buhner herbs and other supplements - since that's what you were taking when you felt better.
You can always make the decision about taking antibiotics in September when you see your LLMD.

By that time, the herbs may be helping you again, and you may decide just to do the Buhner herbs.
Posted 7/13/2016 7:49 PM (GMT 0)
I second girlie, if they were benefitting before they should help you again.

Is there a way to make taking supplements more convenient for you?
Organizing the weeks pills beforehand in a pill box? If you make smoothies as part of your diet you could mix the liquids into that?
Posted 7/13/2016 7:51 PM (GMT 0)
And don't forget to make time for taking those supplements that were helping too! Plus don't forget that you need to be doing plenty of detoxing. If you need help with suggestions on any of those things, be sure to ask!

And I agree with Girlie- the easiest and quickest thing to help yourself would be to restart the Buhner protocol that you were using. Then you can talk about the abx with your LLMD when you see them.
Posted 7/13/2016 7:55 PM (GMT 0)
Were you doing the Buhner protocol for a year and a half? If so how long ago did you stop everything?
Posted 7/13/2016 8:24 PM (GMT 0)
Girlie: Thanks for the reassuring advice. My main issue right now is that I am unsure about my LLMD. She didn't go into enough detail and she gave me a protocol that seemed good ( essential oils, Restor energy multiplex, l-glutathione, smilax)The main issue was the practicality of taking the essential oils. As they have to be put into empty capsules, and that's about 10 separate essential oils, it gets fiddly. Plus the smilax has to be mixed in water and I can't carry around this big tincuturr bottle everywhere I go. I'm definitely going full on back on the buhner protocol though (not my LLMDs advice) it's just much more practical and I know it works. Also, I booked an appt by accident on the wrong day, and she rang me up and was very rude with me, so now I feel weird about going back.

Itislyme - Yeah you're spot on, that's exactly what I should do. Most of the time I'm late and rushing out the door, so if I can grab a pre-loaded box of pills - much better. Smoothies is another thing I've been considering for a while. But gotta get better at time management. Do you juice or blend? Do you use fruits? I'm keeping my diet low sugar as possible.

Traveler - Yes i gotta get strict with the supplements again..however, the issue is, I was taking so many supplements at one time that I don't know which ones were benefiting me!
I was taking Diametaceous earth, but maybe not for long enough to get the full benefits of it. Can anyone recommend this? I definitely need to get back on the detoxing.

Krimpet - I started the Buhner protocol in January this year, so I was on it for about 6 months. I've been still taking the pills but sporadically here and there. Do you know if the Buhner protocol really heals the lyme or does it just send them into hiding? I guess I do remember hearing the advice somewhere that you should take the herbs for 2 months after you feel better. I guess I didn't do that, and paid the price! Although my LLMD actually did tell me to go off them, I think I will ignore her.
Posted 7/13/2016 8:38 PM (GMT 0)
I believe most people stay on the protocol for at least 6 months past feeling well depending on their circumstances. Personally for me, when I do get to that place of healing, I may just stay on a few of them longer.

Also a large component of this is your immune system being strong enough to keep these infections in a dormant state. We've got to get our immune systems strong.

And here is information on detoxing. www.tiredoflyme.com/detox-methods.html
Posted 7/13/2016 8:42 PM (GMT 0)
".....essential oils, Restor energy multiplex, l-glutathione, smilax..."

Is that your entire protocol for treating lyme (per your LLMD?)

I'm surprised that is coming from a LLMD.

Personally I don't know if that's 'enough' to treat it.

I think it would be better for you to take Buhner herbs. Or maybe slowly add them back in to what you're currently taking...
I'm not saying you can't heal from essential oils alone..but I have not heard of anyone healing with that alone (not yet, anyway).

And...it's just my opinion from what I have read/resesarched ....and discussed with people treating lyme.
Posted 7/13/2016 8:46 PM (GMT 0)
Wouldn't that be great if we could heal from essential oils? But I do agree with Girlie that they just may not be enough. Actually, we don't even need to tell you that. You've been around the block on this one....so you know exactly what your body was responding to before. In my opinion, that's half the battle.
Posted 7/13/2016 8:51 PM (GMT 0)
Girlie - that was my feeling too. That is pretty much everything she gave me, plus a restor medicine gut health tonic with lithione (doesn't seemed to have helped though)The essential oils include oregano, thyme, clove, cinnamon, peppermint, frankinsense, lemon, tea tree, I may have forgotten 1. So some are antimicrobials, but in all my research on treating lyme, essential oils never rated too highly. However, I do like the idea of the Buhner protocol combined with the essential oils.
Posted 7/13/2016 8:54 PM (GMT 0)
Krimpet - haha yep! I just really needed some support and guidance knowing that I am doing the right thing by going back.
Now I definitely have a good direction to head in 👍👍👍
Posted 7/13/2016 8:57 PM (GMT 0)
We've got your back!!!!! We are here, when you need us.
Posted 7/13/2016 10:23 PM (GMT 0)
You guys are the best X
Posted 7/13/2016 10:45 PM (GMT 0)
I've been using pretty much the same essential oils since the Fall. No clue if they are helping but I guess they can't really be hurting either. I'm like you I just have been throwing everything at it and not sure what works and what doesn't. I even tried to cut back some but I'll be darned if I'm back up to a ton of supplements, etc.

I have a friend who did 18 months of abx which she said got her about 80%, but said it was the oils that got her the rest of the way. I feel like I hit a wall with abx too in about Feb. so I looked for other things. Since everyone is different all this may not mean much but I think hitting the different TBDs with different things seems prudent since there is still so much to learned about our lovely friends Lyme and co.

I would definitely go back on what you know and find a new doc. No room for rudeness and egos when we are fighting for our lives. I've already fired one guy who 'cured' me.
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