call from non llmd doctor upsetting

doctor called me not a llmd his nurse said it was mild lyme diease i said theres no such thing she didnt say anything for 5 seconds then she came back with only 3 out of 10 bands were reactive i said still dont mean anything the body can simply stop making antibodys to lyme if i do witch im pretty sure i do considering the brain fog the chills and tingling muscel spasm sore sholder joint and hips pain and the radmon pain iget point of the story he didnt reffur me to the id doctor so im just going to have to finsh this 200mg a day of doxy and go in for a appt with him and explain everything i have learnd and try to get a refualler anybody elus only have 23 41 and 66 reactive and know u have lyme

Just stopping by to agree with Krimpet on this. You can also use an herbal protocol that you can do at home if need be.

Is this infection recent? If so I would not go herbal at first but find an LLMD asap. Not that I have anything against herbs, but this is the easiest point to treat this infection and we frankly understand antibiotics better than herbs. If it is chronic, then I would still find an LLMD as well as research herbal protocols and try and make a sophisticated game plan. In either case you need to get out of the mainstream healthcare system and stop wasting time on infectious disease doctors. Those kinds of physicians are downright useless

as of the infection i only rember getting bit by two ticks withc was 2 or 3 years ago they gave me to doses of amoxi and sai di would be fine the one had to be on my back for a while becuase it hurt and was black and blue as of that i dont remember being bitten

Did you recover from that infection and relapse recently? Or did your symptoms persist for the 2-3 years? If the latter, then an herbal protocol will be a good idea if you can't afford to see an LLMD. The doxy alone is useless at this point no matter what the dose and an ID is never going to give you anything with lasting benefit. Doxy is mostly effective against cell division meaning it only works for acute infections where the majority of organisms are metabolically active and proliferating. Or so is my understanding. You really need a more comprehensive plan

Lynnkyle though you will receive a lot of opinions, please remember that this is your body and your decision at the end of the day. We do like that members exchange experiences and knowledge that they have learned along the way, but our bodies (genes, mutations, chemistries), etc., are all different, so what may work for one may not work for another. We do try to encourage one another in order to get on the path to wellness.

Post Edited (Krimpet) : 7/13/2016 2:42:40 PM (GMT-6)

lynnkyle said...
i was good untill june first of this year and it just hit me

Okay, well in that case it's a little more complicated. You might be reinfected or have had latent illness from the last bite. A lot of people get lyme with no knowledge of a bite so it really could be either one or even both. Since it could be recent then ignore what I said about the doxy. It might still be useful, though more effective in the context of a comprehensive plan. As Krimpet said, everyone has a unique path to wellness and I won't tell you what you NEED to do. But I do have to urge the LLMD in the initial stages due to how critical this point in the illness is. Early illness is potentially curable whereas late illness is very difficult to get rid of (though not necessarily impossible). I'm normally weary of aggressive treatment, but in the initial stages I personally feel that being overly conservative (what your doc is doing) is too risky. Doxycycline is a very useful tool, but a very bad "cure" for lyme. Many LLMD's will put you on something like Doxy, zithromax and tinidazole or some other multi-drug regimen to try and cover more tissues/compartments as well as various morphological forms of the bacteria.

lynnkyle said...
CDC positive = if two of the following bands are present:

23-25non
39non
4non

You were reactive on 23 and 41.

i was in the hospital 7 times and doctors 10 finally i said test m for lyme and ig i have it the worst part of it is just the wierd body senation and the feeling like my body shutting down / dying still alive but havnt been out of bed in 40 dyas

Don't even go my ID said i had 2 false positives. Look for an LLMD.