Hitting dead-ends. Need Help

Jingels1234 you have found the right place to start your journey back to health.

I and so many others here can relate to your story. It is a familiar one and do not fret, you can and will get better.

First make sure you have copies of that positive Elisa test. Second, definitely get in to see that LLMD. And third, try and be calm. Lyme love stress and the more you give it, the more symptoms it gives you back. I think one and two are easily doable, but no. 3 will be difficult with babes.

Our first thread called New to Lyme.... Start Here -- is full of information and when you can between those babies needs, try and read it.

I am so very sorry you have gone through so much and have no answer but a positive Elisa test is not false. The medical community would like you to believe that, but there is no way. Also, there is NOTHING in the world that can give you a bull's eye rash other than lyme disease. That right there is a clinical diagnosis of lyme disease.

As for your wee ones, they may have lyme, I do not know. Your llmd will help you determine that and you may get them tested. However if they start showing symptoms, you probably can just rely on them having lyme.

As for the money. Dang, this is a budget breaker, this paying for lyme. It is very difficult to find a LLMD that will take insurance in my neck of the woods. Maybe you will be lucky. Medicines can be costly mostly because lyme is not "cured" in just a round of antibiotics. It can take months and sometimes years to get lyme into remission.

Alternatives are herbal protocols that you can do all on your own and save money not going to a doctor, but it can be a challenge self-treating. But very doable. I have done it. You still have the expense of the herbs.

Anyway, you have come to a great place with lots of understanding people and even those that have treated their children.

Ask questions, that is what we are here for.

Hi Jingles!
Welcome to our community! I'm so glad you found us.

There are some things you can start doing now to help you as you go through treatments. Detoxing is a big one, and there are detox suggestions in the "New to Lyme?" thread as well as this resource:
www.tiredoflyme.com/detox-methods.html

Since you aren't in treatment right now, binders will be a good thing to add in now, as they will bind to the toxins that are causing at least part of your symptoms. Each time one of the Lyme bacteria die off, it releases more toxins into our bodies. Binders will bind to anything though, so they must be taken 2 hours away (before and after) anything else. You want to take it with at least 8 ounces of water though, to avoid constipation. The best way for me to figure out how to take a binder is to find a 4 hour time block where I'm not eating or taking anything and take it right in the middle of the time block - 2 hours in.

As far as stress, many take up meditation, but I've raised two kids myself, and I know that the likelihood of you finding some 'quiet time' could be exciting, so you need to find other ways most likely. There is one type of meditation though that you could do, it's called mindfulness meditation:
www.mindful.org/meditation/mindfulness-getting-started/

There are a handful of different diets you can look at - I won't name any as I don't know many of them, but the main goal is to remove sugar from your diet (you can use stevia, or honey), and to keep the carbs low and lots of veggies. These things are to help you avoid candida during treatment and to help you heal.

The bulls eye rash is diagnostic of Lyme all by itself, so when the LLMD asks, please be sure to tell them about that. These infections are passed by many more insects than just ticks. There is scientific evidence that several different types of mosquitoes carry and infect people as well as clinical/patient reports of having a bulls eye from biting flies of all types, mites, spiders and more. These infections are so prevalent now that many insects are capable of passing these infections.

And please do have your children evaluated for these infections as well. There is scientific evidence that they can be passed from mother to child, either while pregnant or while breast feeding. We want those babies to be healthy! As you have discovered (and many of us have), that these infections can lay dormant for many years. So keep an eye out for any signs of symptoms in your little ones. Here is a good site to go to for information of infections in children: /sites.google.com/site/drjoneskids/home

You need to be sure to not change things dramatically at any one time in order to monitor what reaction you may have, so we suggest that people not add in/raise the dose of anything new other than every 3 - 5 days. This includes new foods, new meds, new supplements and even new detoxing routines.

I would suggest that you start supplementing magnesium, as almost every person will have a magnesium deficiency due to the fact that the ground our food is grown in is deficient in magnesium:
www.globalhealingcenter.com/natural-health/types-of-magnesium/

Hang in there! This won't be quick, but we are here to help as much as we can!

Your story is like mine... muscle biopsy, all testes under the sun, boom Lyme was the answer. Get to the LLMD as soon as possible.

I have food grade diamotaceous earth that I feed to my chickens and barn cats for parasites. It's okay for human consumption? That's interesting.... I'll look into that.

I was just reading about Y/FO on the thread. I've suddenly had this just start with all the changes I've been making. What should I try to manage first? The Y/FO or the Lyme? I don't want to feel this bad anymore. Can I maybe do both, but detox like crazy? Or can that make me feel bad too?

Thanks for your help!! I really, really appreciate this!

It's food grade, Organic DE. There's just something about the name "Insect Dust" that turns me off... haha.

It's funny that I have a lot of this detox stuff in my house because we use it on the animals in order to keep everything organic. I never considered using it on me. So I just got out the chickens' apple cider vinegar and decided that this would be the first thing I add since it's apparently good for both detoxing and Y/F. It's pretty nasty. I'm not going to lie...

Thanks, again!

Just stopping by to say, welcome.

Hi, Welcome. Sorry you're feeling bad. I would get the books "Why Can't I get Better" by Horowitz and "Healing Lyme and confections" by Buehner. You need to know what you are dealing with and that will cover both pharmaceutical and herbal approaches.

Also, I don't know how to put something in quotes, but reading the Health department is refusing to order a Western Blot is making my blood boil. Maybe I will kill some Babesia while it's boiling. This is totally unacceptable and unexplainable - this denial?!?!?!?

You will find much support here.

Jingels, I am curious what State you are in? Someone (I think Traveler) posted on here yesterday about how the Minnesota Dept. of Health was suppressing its' positive Lyme cases.

I know I am NOT one of the 'counted' cases in this country...as are most of the people on this forum. It really is hard to believe that something nefarious is NOT going on with tick illnesses recognition and diagnosis. There seems to be collusion on every level from local all the way to the federal level by intentionally keeping us Lymies 'undiagnosed' and battling for our lives.

If you want a WB test done, call Igenex lab and order a test kit.

Then have your Dr. sign the lab req.

In approximately 3 weeks you will have your results.
The LymeWB IgM and IgG costs $210 for both.

Yes, you're right, it's not necessary.

Some people do want the WB anyway...so just wanted to throw it out there...I wasn't sure how much knowledge you had about testing.