went and talk to a neurologist bad news as always

first told him whats all ben happening show him lyme results saids i dont have lyme becuase only 3 band out of 10 band were postive he told me it siad right here has to be 5 i said this test has so many false postives and negtives u shouldnt rule it of that i said 23 is lyme spefic he said well i dont treat lyme but i dont think you got it but the real resaon i was in there was becuase of this pressure in the right side of my head that neveer goes away and has ben ther non stop for 5 months and when it getts bad it starts to throb and go under my eye and then sometimes it sound like a soda fizzing in my head and some of the pressure was release so he said sence the mri and catscan came back neg and the physical nuro test was find it was a tension headache even tho tension headaches all at the back of the head from muscles i just feel so helpless when i shake my head it feel like theres something in there preventing y brain from moving or my brain in rcok solid and hitting the skull i just feel like crap and like im dying but i see the psychologist tommrow hopefully he can help me and some way

Your appointment with the neurologist was about like mine. I was angry that I had to pay for such nonsense.

I never did go to a psychologist.

My internal medicine doctor knows I am not a baby and I have a very high pain tolerance. He tried to help by giving me narcotics but they did not even touch the pain. All I could do was cry and I was miserable.

I had the same fizzy sounds in my head. My neck would grind like there was no fluid on the ball bearings and I had just run through sand.

Here are the things that helped me and I hope they work for you because I know how badly you are feeling.....

1. Cold shower with the water running on my head. Eased the inflammation. And sometimes I just did a gel ice pack on my head.

2. Japanese Knotweed tincture. slowly did drops in a little water and chugged it. Great for inflammation.

3. Red Root tincture. This got my lymph system moving and made a lot of the inflammation move on out of my head area.

4. Turmeric. I got it organic and fresh and just shaved some into my eggs.

5. Lymph massage. Easy to do anywhere. I started out very slow, only 10 times a day and now can do it anytime. If you can't do the massage, just standing up and swinging your arms will get the lymph moving.

I hope this helps. I remember all too well how horrible it is to have that head pain. Doctors gave me all kinds of meds and none of them ever did anything.

/www.youtube.com/watch?v=QA-wi0d7-Ro

I don't know why anyone here still goes to conventional allopaths other than for prescription seeking haha. They have not done a darned thing for me. My experience with them ever since high school for acne is that they are, generally speaking, utterly incompetent in the healing profession. I remember my first app with a neurologist for lyme. He looks at me, hits my knee with a hammer, and writes a prescription for cymbalta then tells me he will do an MRI to rule out MS but he's positive it will come back clean and there's nothing else he can do. Brought my fiance to the next appointment and we started to ask him how we could look deeper for answers and he basically just walked out mid-question leaving 4 baffled med-students awkwardly behind in the room with us. Saw a gastroenterologist who then diagnosed me with chronic inflammatory demyelinating polyneuropathy. I mean, who's doing who's job here? But of course, insurance didn't want to cover her visit. She's too good. She might find things.

I feel for you lynnkyle. Hang in there and get yourself a real doctor!

petza can u feel your when u shake your head it feel like my lefth side of my brain is free and my rigth isnt and a week ago i got this wierd sensation like my brain viberatd or like popped and also ive tryed taking 400mg of tylnoal and it does nothing the pressue is still there

Post Edited (lynnkyle) : 7/19/2016 10:48:35 AM (GMT-6)

Psilociraptor said...
I don't know why anyone here still goes to conventional allopaths other than for prescription seeking haha. They have not done a darned thing for me. My experience with them ever since high school for acne is that they are, generally speaking, utterly incompetent in the healing profession. I remember my first app with a neurologist for lyme. He looks at me, hits my knee with a hammer, and writes a prescription for cymbalta then tells me he will do an MRI to rule out MS but he's positive it will come back clean and there's nothing else he can do. Brought my fiance to the next appointment and we started to ask him how we could look deeper for answers and he basically just walked out mid-question leaving 4 baffled med-students awkwardly behind in the room with us. Saw a gastroenterologist who then diagnosed me with chronic inflammatory demyelinating polyneuropathy. I mean, who's doing who's job here? But of course, insurance didn't want to cover her visit. She's too good. She might find things.

I still see my regular Dr. for anything unrelated to Lyme. She can't treat my lyme, but she is good for any testing I need to have done...or referrals.
I have a LLND and if he gives me a lab req - I will have to pay for the tests. (not the case if my GP fills out the lab req)

lynn--

ALSO... My neurologist (who happens to be awesome AND lyme-friendly, but most of all just carried himself professionally and was compassionate... how novel!) shared that he felt that most of the pain/discomfort symptoms most lyme patients are struggling with are due to inflammation so since then I've been suggestion that people with the neuro symptoms explore inflammation as a possible trigger for all this crazy neuro business.

-p

Clean diagnostic ..get copies of mri as neuro said my was clean not ms but did have hypoperfusion of t1 t2 ..lyme brain ...

with the exception of pirouette s doc most neuros are are arrogant gerbils ...and kudos for psilo gastro ...it was a gastro that told me to find an a good functuonal doc

Mine too! "AG"

When I went back to my Arrogant Gerbil of a neurologist (head of the dept of neurology and who told me I had fibromyalgia) and told him I was feeling much better after getting two months treatment for Lyme he said (and I kid you not) "Well, the placebo effect can be quite strong."

I'm going to write the head of the hospital a letter.

What are some of the signs of inflammation in the brain?

My husband is having severe neuro issues with poor memory, typing, speaking sometimes and narcolepsy.

Went to a neurologist this week for the narcolepsy and was told that he was a drunk and was passing out and should come off all his meds. Didn't care or think that Lyme had anything to do with any of it. I felt so bad. Trying to get into a LLMD but need help with the narcolepsy immediately bc it is just destroying his life. He's been able to tolerate the pain and everything else for 20 years but this narcolepsy is so limiting and scary and neurologists just don't get it or care.