HealingWell
Search Close Search
☰

Trouble walking- not true vertigo or dizziness

Support Forums
>
Lyme Disease
✚ New Topic ✚ Reply
❬ ❬ Previous Thread |Next Thread ❭ ❭
Posted 8/21/2016 2:38 PM (GMT 0)
I have trouble walking for the past 4 months because I feel like the floor is moving under me, I get a pushing sensation in my head, and sometimes I in my head I feel a sensation like I just dropped down in an elevator extremely fast. No doctor can figure out what could be causing these strange sensations and I am suspicious of bartonella because I have pain on the bottoms of my feet and muscle twitching. Some say that it could be babesia but I feel completely healthy other than this annoying sensation. Any one else out there with this???

Post Edited (arl1224) : 8/21/2016 9:17:44 AM (GMT-6)

Posted 8/21/2016 2:42 PM (GMT 0)
Yes it could be both. Have you changed anything in your protocol (increased, decreased, stopped)? Have you had your adrenals checked lately? What meds/herbs are you taking?
Posted 8/21/2016 2:52 PM (GMT 0)
Arl1224,

It sounds like this is newer for you, give a little of your story for us. How long since you have been diagnosed? Are you on abx/or an herbal program?

I know exactly what you are describing. Over two years ago I was hit with the permanent sensation that you have. I describe it as I am on a rocking boat anytime I am out of bed. The ground is always moving. I too felt like I was being pushed. I was given Diazapam and I lived to take the next pill, and then the next 1/2 pill so I could take it more often. I had anxiety attacks shortly before this hit permanently, do you have those? I always felt like I was on the verge of an attack. I was misdiagnosed with Migraine Associated Vertigo and a neurologist gave me Amitriptylene. It did not make the motion sickness go away but it made it more tolerable. It did get rid of the pushing sensation. It also took care of other neuro issues as well. A combo of the Cowden Protocol and Ondamed biofeedback therapy has helped the motion sickness a lot. I am also going to start Ozone Therapy this week.

Keep us updated on what you are doing for therapy. Prayers to you.
Posted 8/21/2016 2:53 PM (GMT 0)
I haven't even started treating because I have come back negative on all of my blood results for lyme and confections even with igenex so I have been running to different doctors for the past 4 months. The only reason I am still suspicious of bartonella is because I had lyme when I was 10 years old (am now 20 years old) and I know bartonella testing can be very poor. My adrenals have recently been checked and are functioning great! I have lots of energy, I just can barely walk because of the dropping/pushing sensations.

No, I do not have anxiety attacks. I am a very calm person and anxiety has never been a problem for me. I guess I could be a little anxious when the sensations get really strong, but not enough to cause panic attacks or anything even close.

Before this feeling started I had pericarditis and inflammatory bumps on my legs called erythema nodosum. I think I may have had a virus that brought out bartonella that has remained dormant in my body for 10 years??

Post Edited (arl1224) : 8/21/2016 9:19:40 AM (GMT-6)

Posted 8/21/2016 3:22 PM (GMT 0)
Actually, Lyme testing is really poor as well. I had to have a year of treatments before I finally got a CDC positive Western Blot. I'll likely never get a positive ELISA. The tests rely on the immune system to produce antibodies, but Lyme inhibits the immune function so much that there may never be enough antibodies produced to get a positive Lyme test.

Is there a reason you haven't sought out a LLMD that will diagnose you based on clinical symptoms?

Are you sure you got adequate treatment when you had Lyme at 10 yrs old?

Where your adrenals tested by using saliva or blood? Using a blood test only takes a 'snapshot' one time during the day (and may present a false picture) - saliva testing should be done 3 or 4 times during one single day so that a picture can be seen of how well your adrenals are functioning throughout the day.
Posted 8/21/2016 4:01 PM (GMT 0)
I have sought out an LLMD and even he said he isn't sure its lyme because I have almost no typical lyme symptoms. I honestly feel completely healthy. I have energy, no joint pain, sleep perfectly, no brain fog or memory loss, exc. He told me it could be bartonella but was nervous diagnosing me because he said it could be something else. I am just curious if any one else has felt anything similar to me.

Wouldn't I be tired if my adrenals weren't functioning well?

When I was 10 years old I have the typical lyme symptoms. I was tired all the time, had a bullseye rash, and a fever. I was given doxy for 3 weeks and never felt ill again.
Posted 8/21/2016 4:20 PM (GMT 0)
arl1224 a short round of an anti-malarial and/or something that hits bartonella would probably tell you fairly quickly if you're dealing with the bugs gauging by your reaction to them. a good abx for bart and babs is bactrim. maybe you can get a 10-14 day supply as a test. i know we don't like to put stuff into our bodies we're not sure we need but this disease is a lot of trial and error.
Posted 8/21/2016 4:23 PM (GMT 0)
I would agree with Rikky, if you can get your doc on board with it. You should trial meds for all three of the 'big' infections - Lyme, Bart and Babs.

When I was reinfected, I only had symptoms of Lyme, so that's all I treated for and was thanking my lucky stars that I didn't have the other infections - only to find out that as I finished my Lyme treatment, Bart and Babs symptoms were growing stronger and stronger, so I'm still in treatment.
Posted 8/21/2016 5:00 PM (GMT 0)
I had a doctor suggest taking Doxy and tindimax. Any thoughts on those?
Posted 8/21/2016 6:21 PM (GMT 0)
I just wanted to comment that I was having those sensations 5 years ago, but had no clue what it was until I was tested in March. (I had even been previously tested for lyme with negative results.) It just progressed to get worse as the years went by without a diagnoses.

I don't know how common this is but for me I do believe it is lyme. yeah
Posted 8/22/2016 4:08 PM (GMT 0)
I also have few Lyme symptoms compared to most. I have chronic knee pain, but never the debilitating all over pain, nor have I ever had the chronic fatigue that so many with this disease have.

I did test positive on my first Elisa test, and through IgeniX I tested positive as well. I don't put any stock in those tests, the bottom line was proven when I herxed on Doxy to start with and many other abx as well. I have had few herxes on the herbs but I think my toxic load was down by the time I started those. My goal now is to go after the brain barrier with ozone therapy.
✚ New Topic ✚ Reply