Had my appointment with new LLMD!

Lymies,

Hi. Just got in from my appointment with Dr. R. It was almost three hours long and worth the money. Thank you all who suggested I keep the appt. He is the most caring and understanding doctor and he really knows his way around this disease. He thoroughly went over health history from before Lyme and all the way through Lyme. He does believe that I had Lyme already and that the fibromyalgia is from Lyme. He is a fantastic listener and detective and he has a good sense of humor, which is needed with Lyme. He said normally he would put me on two different antibiotics to push out any possible remaining bacteria but he doesn't want to do that since I am very sensitive. Since I haven't had symptoms in a week he wants me to continue the Doxcy., then treat with herbs, then follow my symptoms very carefully. He does muscle testing which was fascinating. He has some type of setup invented, or passed down by Dr. K (you guys know him but his name escapes me right now Kleigharten or something), sure enough I was allergic to Burber. I am not currently showing Lyme or any co-infections - he has them all in vials and on slides. It is a little like a science lab and I love that stuff. I brought in all my herbs and asked him to test them. I can't take burber, japanese knotwood or Lion's mane. If anyone wants my bottles I will mail them to you. The Burber has been open but only four drops are missing. He didn't try to sell me anything. He likes an herbal product called Beyond Balance that he sells but after muscle testing he said that I could not take it. He is doing a lot of blood testing to check different levels in my system. I came with lots of information and he even helped my son and will treat him next. He believes my son has mold poisoning and suggested someone. I'm sure there is more and I didn't pull out my notes. If anyone is in NYC or can get here I highly recommend him. His office was also very nice - they couldn't have been sweeter. I have to have a followup in four weeks and sooner if symptoms come back. He said it will be normal if joint pain resurfaces and not to get worried. The Doxcy. has a powerful anti-inflammatory and my immune system will take over where Doxcy. left off (I'm not explaining that properly!). Bottom line is I learned a lot and feel I am in great hands.

I'm thrilled that it was such a positive experience. Sounds like you landed with exactly the right doctor.

Thanks everyone!

You lyme angels are the best. I am very happy that my son will be receiving treatment. He is going to mold specialist first (another fortune) but October is earliest visit, then will see Dr. R. My son has had so many issues and delayed growth with Dr. R. said mold (and Lyme, but he suspects more mold in this case) can do. So feeling like a pretty bad mom right about now.

I will absolutely send those herbs to you - happy to do so. Will send email to you soon.

I know that Lyme docs names are not supposed to be mentioned on the forum but can how can I find out this lyme docs name....? Can someone email it to me or his contact information?. It may be the one tht I saw 20 years ago but he was located in Greenwich then.. am I right on that? Sounds like he has come a long way since then.. THANKS

Yes, that is who I saw 20 years ago... Thanks!
Used to be in Greenwich.. Sounds like he really has kept up with things. Hoping that you will be totally well soon and loving life!
AK

Huddie said...
Ak,

Thanks. Did you like him? Did he help you? I hope i'm loving life soon but I know full well this is probably not the end of this journey. Hopefully the herbs will be enough to take over when the abx. end. If not I move to plan B.

Blueberry: Muscle testing is really cool but sounds like whoo-woo. Doctor hold is arm over mind. He puts vial of 'something' in this dish type thing and if my muscles go weak and I can't resist I can't take it. Sounds bizarre but it really worked. He doesn't do a thing it's my arm and it completely went down with things I know I could not take and he puts in a few things to fool you so you know it works (like fuel - who would be able to tolerate fuel). Love it - was so happy I took my herbs to the appt.

I wonder if that's a test we can duplicate at home?


YES! I googled it and there are several links.

How to Perform Muscle Testing - Allergy Scape
www.allergyescape.com/muscle-testing.htm

The above site might not be the best one for this, but then I'm not sure they will all make the same claim, that the tests will work if you just write the name of the substance down on a piece of paper. I find that really hard to believe.

Post Edited (julymorning) : 8/24/2016 4:10:05 PM (GMT-6)

Thank you! She figured out who he was and has even been to him.

AK, please upate us if you muscle test. His office was cool because he had a 'contraption' and had every co-infection, abx. and a vial of lyme. He had gluten, lactose, etc... it was cool. I'm a believer.

Huddie said...
Just saw the part about 'writing it down on a piece of paper' don't want to be skeptical but not sure how that can possibly work. If you are holding the actual herb or abx. I get that.

I'm with you on that. Think I'll one of the other sites.

PeteZa what did you feel when taking them?

I saw him twenty years ago and at the time the style for treatment from the LLMDs was HUMONGOUS doses of triple cocktails of abx. I was on 600 DOXY/ day, DOUBLE CEFTIN, plus Levaquin. We then went to IV. . I had such a strong reaction to the die off that, in use five days of abx, I basically lost my ability to think. I did not know where I was, stood up for five hours because I forgot how you sit down, and did not recognize my own face in the mirror. I was suicidal and confused. Did not know if a red light meant stop or go.. Drove down the wrong side of the highway...coming home from the doctors.. I just was really hit hard. . (It amazes me that with that cocktail that I could have had any bugs left and could now have had any kind of relapse,,this thing is made of Kevlar)It was not the Doctors doing .. It was just the only thing that they did then.....before the days of "let's take it slow" and let's not overburden the system. It was early in the thinking of coinfections as co conspirators. (No one even thought of coinfections then and Bartonella was rarely tested for) . I was a really difficult case and I did not stick with him because yeah as evidenced by my driving) I needed to find someone closer to home... I had two friends who went to him at the time. They loved him and he helped them. My friends mom was really sick and he got her up and running. I think that he has dedicated his life to lyme (not a young guy when I saw him 20 years ago) and I know that he has seen everything and has a pile of experience. Even twenty years ago, he incorporated alternatives. And the muscle testing while not 100%, when done properly and in good hands sure can give a practitioner an advantage. I am excited to think that you are in good hands and will be well!

Post Edited (AK) : 8/24/2016 8:06:30 PM (GMT-6)

I'm so happy for you...you've found a good Dr.!