HealingWell
Search Close Search
☰

Newbie with lyme

Support Forums
>
Lyme Disease
✚ New Topic ✚ Reply
❬ ❬ Previous Thread |Next Thread ❭ ❭
Posted 8/31/2016 3:59 AM (GMT 0)
Hi Everyone,
I just fond out last week that I have Lyme and 2 co infections to go along for the ride. My hormone levels are out of whack. I have candita and I heavy metal poisoning. AmI going to die?
I am so stressed out. I have been not stop researching. I am so afraid of the Herxs that does happen with antibiotics . I have read that some people haven't had bad reactions but then some bloggers went to the hospital. It scares me so much!!! I am not sure even how long I have had this. I have severe headache, brain fog, tingling all over my body. I find it hard using my fingers. I have been having pain in my right knee that hurts when I walk. Just not myself at all.
I live in Ontario, Canada. I will be going to the United States to see a Lyme Doctor there.
We are thinking maybe in 2009 is when this happened. We were there on a family vacation in North Carolina.
How do you cope each day with knowing how long the journey will take?
I have two young children, I am scared that I won't be able to look after them once my treatment starts... cry
Posted 8/31/2016 5:32 AM (GMT 0)
It not always a life sentence ...people heal ...there is herbs ,bvt ,rife ,silver ,mms ,ozone ,uv ,hbot ..it aint cheap ...welcome congratuladolences ...there are some here who have als like sx some withs some in wheelchairs ..be thankful in all circumstance and now your enemy has a name ....read mitchels post on mdjuction ,check out microscpe thread on lymenet ,watch underour skin with your fam and a fellow canadian justinandcristie.ca. ..she is a trooper . The reasearch will wear of in 9 months or so ...do it all buy a scope ,get lots of funds and best of luck
Posted 8/31/2016 6:26 AM (GMT 0)
Hi Bunsie, welcome to our community!

I am a fellow Canadian from B.C. We get better care here when it comes to lyme disease. I'm not sure why Ontario is so far behind.

To help with the herxes...you should be doing multiple methods of detoxing - daily. The detoxing will help flush out the toxins that are created with the die-0ff of bacteria. Flushing out the toxins will help alleviate the herx symptoms.

You can start now...so that when you start the antibiotics, you have a good detox protocol going.

Here is a link to a website with a lot of good detoxing ideas:

www.tiredoflyme.com/detox-methods.html

The first three methods I do (along with others):

Activated charcoal
alka seltzer gold
Apo- Hepat


Activated charcoal is a binder. It will bind to the toxins in your digestive tract and usher them out. It needs to be taken a couple hours away from everything else - food, supplements, antibiotics.
So you need two hours on either side of taking it.

Alka seltzer gold - I don't think it's available in Canada...I order mine from either Amazon or iHerb.
It helps to make our system more alkaline.

Apo-Hepat is a liver detox.

In addition, I also take warm epsom salt baths.
I dry brush my skin before the baths.

Drinking minimum 8 glasses of water daily, is also important.

If you're not already taking probiotics...I suggest you start now...and continue throughout your treatment.

So, when you start detoxing...start with one or two...and add in a new method ever couple of days.

How do I cope not knowing when I will get better? Well, some days are better than others. On bad days...it's a struggle - emotional, and physically.
But, this is why this forum is so great. We are here to support each other through this....sharing our ups and downs along the way.

Hang in there...there's a lot to learn...please ask any questions that you have...we'll be here to help you.
Posted 8/31/2016 3:14 PM (GMT 0)
Bunsie, welcome to our forum. I am so sorry you have Lyme :-(

Lyme is not a death sentence. But being committed to treatment is a must if you don't want to continue on a path of worsening symptoms.

Keep in mind that your treatment is your choice. If the antibiotics (abx) cause you to herx, you can back off or go to herbs which you have more control over. Your treatment is entirely up to you. Many even do herbs and abx. The forum is a great place to get information on how to handle any herx you may have. Girlie pointed out detox, which I would start before any treatment. Get your body used to that first. And eat healthy!

I can say that I had the same fear. But I have not herx'd to the point of being severely sick. I have to say though that I do herbs only. I can tell you that in the last year I have had to take abx for other reasons and when I did, I did have a worsening of symptoms. But it was manageable. And now that I know about detoxing I have been able to manage any herx I have had.

I wish you the best in finding the right treatment for you. Please feel free to use this forum as often and you need to. It has helped me immensely!

Also I would suggest that you read the "New to Lyme-start here" at the top of the page. You will find a lot of useful information there.
Posted 8/31/2016 3:21 PM (GMT 0)
Hi Bunsie!
Welcome to our community! I'm so glad you found us.

You've been given some really great information already, so I just wanted to stop by and welcome you to our community!

And I do want to emphasize that this is not a death sentence, as Denikeef said, although it can be a long journey for some of us, no one knows how long it will truly be for each of us.
Posted 8/31/2016 10:56 PM (GMT 0)
Thank you all so much for the great information. I feel so much better already . It is good when you know people that have gone through similar situations. I don't know anyone that have had Lyme to be treated so it's really refreshing to have found this group. Thank you all again.
Posted 9/1/2016 12:26 AM (GMT 0)
Bunsie,

I would also like to make the suggestion that with whatever you do, do it slowly. With two young ones you need your strength. Get rest whenever you can. Nap if possible. I know that is easier said than done when you are a mom, but even if its just resting while reading them a story it will help. Rest is critical to healing.

If you work, then I would suggest not making a lot of plans on your off time while you are healing. You need to work on getting well! And when people don't understand you can rant to us because we do!
Posted 9/1/2016 12:28 AM (GMT 0)
Welcome to our community. Please feel free to post any questions you have, anytime. We are all here to support you in your journey to healing.
Posted 9/1/2016 12:45 AM (GMT 0)
Bunsie,

Welcome. Sorry you are sick. A lot of us have kids and I don't think I'm overstating if I say we have all been scared. I am a newbie, on here since July, but like you also now think I may have had Lyme for a longer time. I was petrified of herxing (still am). I'm super sensitive and things effect me more than most. I have been ok. The first few weeks of abx. were the hardest. I was weak and had no energy and lots of anxiety. I did the bare minimum. This board saved me. The wisdom, caring, and unlimited support humbles me. These lyme-angel-experts know more than most doctors and are always here no matter how many questions you will have. And when lyme brain fog sets in and you ask the same question more than once (guilty as charged) they never seem to mind. They are polite angels to boot! There is no judgment on this board either. Try to stay calm, detox, get on your abx. if that is what you are doing and ask for help. Diet helps. We all would like to know when we will feel better but everyone is different. I was so desperate to know that I consulted a psychic and an astrologer in July. They both said I'll be fine by September 1. So there you go tomorrow I'll be all better tomorrow -LOL!
Posted 9/1/2016 2:38 AM (GMT 0)
Hi bunSie. What part of Ontario are you in?
Posted 9/1/2016 3:50 AM (GMT 0)
Thank you all so much again for the support. It feels great to talk to people that have been there and done that or are still doing it and have so much knowledge. I don't feel isolated at all anymore.
I live in Oshawa, Ontario, to answer the above question.
I just got back from my NP today from a hour of vitamin C IV therapy. I will be going now for the next 8weeks until I can get to see the Dr. in the states. I have been seeing A NP since January when I got really sick. My previous family doctor (for 20 years) said I was severely depressed and had anxiety ,plus Dx me with fibromyalgia. They wanted me to pop steriods and go on anti depressants. I knew that wasn't going to happen. I started to be my own advocate and here I am. It is upsetting to find out what is finally wrong with you BUT I am glad to know so I can get better with all of your kind words. I wasn't losing my mind,even thought some days it felt like it.
I am on all kinds of herbal remedies already that are helping me and getting my immune system ready.
I have been doing the paleo way of eating now for five weeks and I am starting to notice the difference already. Never realize what you put in your mouth is really killing you slowly. Do anyone have any good web pages or books that are good with Lyme? I am trying to get through the some of the post on here but I cannot stay on too long due to my eyes going funny and getting headaches.
My doctor told me today to exercise some if I could to keep the circulation going. I am going to try that tomorrow.
I will face everything and rise(love that ).
I will not be or play the victim. (:
Posted 9/1/2016 12:35 PM (GMT 0)
Bunsie,

You are in the right place and you know your body better than anyone else. I kept going to doctors and was given three different RX for Prozac and also told I was depressed. Even though I kept saying "I am NOT depressed, something is going on." Also told I have fibromyalgia or that I was fine and imagining it all. I was like "WHY would I make this up? It's not like I can hang out in bed and watch TV, I still have to do everything." So stay centered, vitamin IVs really help with energy, as does diet, sleep, support (this board!), and when you start treatment you will be ready. Please keep us posted.
Posted 9/2/2016 1:06 AM (GMT 0)
Does anyone have a good webpage or a book that can help with cooking for Lyme. I need to mix it up a bit...
Posted 9/2/2016 1:46 AM (GMT 0)
Bunsie,

I can give you some tips tomorrow but I'm tired tonight and going to bed. If you let me know what you are eating now I will give you some ideas tomorrow.
Posted 9/2/2016 4:16 AM (GMT 0)
I mostly eat protein and vegetables, and not enough at times. I need to eat more. I have lost 20 lbs in 5 weeks. I do have a vegan shake in the morning with berries and almond butter . I am just tried of all of it. I miss sweet stuff the most. I use to make these energy balls of oats,hemp,Flax seed ,dark chocolate chips , coconut and peanut butter. I want to make those Lyme freindly. So can I have oats ? I will use almond butter instead. They were the best. Every web page gives you different things. That is why I am confused. I love to bake so I want to find stuff so I don't feel like I am missing out while my entire family are eating the good stuff I cannot have. Also potatoes? Some pages say no, some say yes. The carbs are the ones that confuse me the most. I wasn't sure so I haven't eaten anything. Plus I don't want sugar back in my body and have to go through that withdraw again,that was the worst. Any help would be awesome.. cool
Posted 9/2/2016 12:04 PM (GMT 0)
Bunsie,

Sorry. I know the diets are contradictory and overwhelming. The true candida diet is no oats, no rice, no potatoes. You will find sites that tell you otherwise. The lyme diet is very different from the candida diet. On the lyme diet you can have oats. Make sure to buy whole-gluten free oats. Put them in blender/vitamix for a minute, then soak them overnight. Cook in the morning. On lyme diet you can also have yeast free rye bread and sweet potato. I don't have these because I want to do a full candida diet. I'll link recipes for home made almond milk and 'bread' those keep the weight on, well I don't lose any! I used the almond milk as my smoothie base for extra calories - I add in a powder called Mediclear (for all the vitamins/amino/nutrients) and add a heaping teaspoon of Spriulina/manna by Healthforce, ice cubes, 1/2 frozen avocado (peel before freezine), a drop of stevia (make sure it doesn't have agave), ice, blend. A few hours later I heat up a piece of 'coconut bread' and then spread almond butter (make sure your AB has no sugar). I cook a ton of vegetables and have salmon or a little organic chicken with vegetables. Yes it's boring. Snacks: Komboucha, avocado mash on Mary's gluten free crackers, goat kefir with cinnamon/drop of stevia, hard boiled egg with trumeric or cayenne, bone broth with a scoop of hydrolized collagen, zucchhini chips (slice and place in bowl with a little olive oil and sea salt) toss, bake until golden brown. Egg cups: whisk egg, veggies of your choice, red pepper flakes, bake in cupcake trays. I'll try and think of more. Here is bread recipe: COCONUT BREAD:
1 cup coconut flour
1 cup shredded coconut flakes
1 cup almond flour
1 can Native Forest light coconut milk
1/2 cup coconut oil
4 eggs
1/2 teaspoon sea salt
1 teaspoon vanilla extract*
1 teaspoon baking powder
Sprinkle ground cinnamon
6-8 stevia packets (make sure it doesn’t have agave in it)
Grease baking pan with coconut oil, cook at 350 degrees for 30 minutes
*It gets boring so I change up the ‘flavor’ last batch I used lemon rind and lemon extract to make a lemon ‘cake’ for sweet craving. Other times I add cumin for a more savory taste.
Posted 9/2/2016 8:43 PM (GMT 0)
thanks Huddie, those are some great tips ... smilewinkgrin
✚ New Topic ✚ Reply