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Posted 9/12/2016 2:35 PM (GMT 0)
Hello and hugs to all fellow lymies.Just a quick note to vent (sorry).In such bad shape today(as most).This morning my husband drove me in to the Dean Tick Borne Ctr in Charlestown,mass.Almost a 2 hr. ride of which when finally reaching my destination,were parking 10 min. before my appointment and got a call saying the dr. had to leave and had to reschedule.This is the second time they have cancelled ,only the last time I wasn't 2 minutes away.It has been almost 2 yrs in waiting to see a dr here.I can not believe (oh,but I do) they still don't take this disease seriously!!! Would they call ti cancel a chemo treatment?I doubt it.Well,getting ready for my 2 hr drive home now...... mad mad mad mad mad mad mad
Posted 9/12/2016 2:39 PM (GMT 0)
Hi Lymenotok,

Wow, that is frustrating. do you have an Igenex test? if you know your positive, try to get a local doc to get on Doxy ? Also, look into the Buhner herbal protocol.

I started on Buhner while I could find a doc and it helped, and it's forward progress. that would be my recommendation. what are your biggest symptoms?

Caramba
Posted 9/12/2016 2:44 PM (GMT 0)
Oh nooooooo!!!! Wow, talk about frustrating!! I'm so very sorry.

I too would ask if you would be interested in starting Buhner's or another herbal protocol while you wait - and don't forget you can start detoxing right away as well!!
Posted 9/12/2016 2:58 PM (GMT 0)
Thx guys....way ahead of you.dx 18 mos ago.started w/oral abx then doxy iv. now iv rocephin,oral alinia and rafampin.Also on herbal protocol and detoxing.Still,I am not doing good at all.I also have two llmds and have appts set up with ANOTHER gastro (this makes16)and nutritionist.My gastro system is flat from lyme and years of endometriosis
Posted 9/12/2016 3:06 PM (GMT 0)
I realize you are on the road right now, but when you are up to it and have the time, can you explain what "My gastro system is flat" means? Is it not working? Are you having specific issues?

I'm so sorry about the endometriosis!!! That's miserable.

I don't know if you have seen this before, but it's a great article by Virginia Sherr on Bell's palsy of the gut:
www.publichealthalert.org/palsy-of-the-gut-and-other-gi-manifestations-of-lyme-and-associated-diseases.html
Posted 9/12/2016 3:25 PM (GMT 0)
It has no muscle tone,no peristalsis ,as seen on laparotomy during endo surgery.Abd yes,I did have an igenex test positive for lyme and several coinfections
Posted 9/12/2016 3:45 PM (GMT 0)
I'm so sorry, I have had those same issues, but fortunately (I think) mine was short lived. I say I think because it was replaced by intestinal cramping - but at least those muscles are working, right?

I would encourage you to read that article I posted above when you have the chance - it will make a lot of sense to you!
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