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6 months in and just feel worse and worse

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Lyme Disease
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Posted 9/17/2016 7:46 PM (GMT 0)
I'm on my third protocol and six months into treatment and just feel worse than I did before even starting any treatment. I'm one of these gray area individuals with a negative Igm but a IND IgG and my 31 confirmation test was positive. Clinically and through muscle testing I fit criteria and most likely have had Lyme for years. Babesia seems to be an issue. I genetically have issues detoxing (mtfr and some HLA gene). I guess I just question everything right now and wonder when the pay off of feeling somewhat normal again will happen. I know it can take awhile, but at 6 months shouldn't I feel somewhat better or back to baseline?

Also, opinions on muscle testing?
Posted 9/17/2016 7:57 PM (GMT 0)
LBD - are you treating lyme only...or are you taking any other protocols. It could be a co-infection that is making you feel worse....rather than better.

Have you not 'lost' or improved in any symptoms?
Posted 9/17/2016 8:13 PM (GMT 0)
I'm treating babesia, Lyme, and virus. I've treated mold in past

AL complex, cryptolepis, cumanda, liposomal artemisinin, reboots, viragraphis,, and renelix. This is my protocol now.

In the past, I've done azithramycin, teasel, samento, and other herbs. I feel like I have added symptoms. I was way better before diving into this diagnosis.
Posted 9/17/2016 8:15 PM (GMT 0)
for what its worth i too feel alot worse than when i started treating 3 months ago...new symptoms and more severe
Posted 9/17/2016 8:21 PM (GMT 0)
LBD - maybe it's bartonella infection coming to the forefront now that you are treating babesia.
Posted 9/17/2016 9:18 PM (GMT 0)
What I'm learning is that sometimes we just aren't really giving the body what it really needs to heal. The body is not going to heal without giving it basics and in the right amounts. Vitamins, essential and non-essential amino acids, cellular repair, gut-healing etc. In some situations our bodies are so nutrient deprived that it cannot go through the repairitive and syntheses processes that are required. Remember we might be shoveling things in our bodies that aren't even being processed because of gut issues.

Many people without Lyme and co-infections suffer from leaky gut. When we have bacterias, viruses, and fungi where they don't belong, often leaky gut occurs and that alone can add symptoms. Some people think that leaky gut only results in gas and bloating, but it actually can cause great distress in the body. Brain fog, muscle aches and pains, anxiety, depression, IBS, food sensitivities. Oh and it often leads to leaky brain.

So if you are getting worse I would work with a functional medicine doc or nutritionist to possibly identify other things that could be impeding your progress. If your doctor is already familiar with these other possible issues, but if you haven't looked into them, it's worth it.
Posted 9/17/2016 9:25 PM (GMT 0)
Thanks for your input. I've done a lot of work on leaky gut and changing diet 2 years prior to tackling Lyme. I know there is more I can do and will think about talking with someone.
Posted 9/17/2016 9:36 PM (GMT 0)
That's great! I too am going through similar (negative tests, more symptoms, muscle testing) so your post was very timely. I also changed my diet 2 years ago working through leaky gut.....but I think present circumstance has weakened my gut lining so it's back to gut healing big time again.
Posted 9/17/2016 10:57 PM (GMT 0)
There's an olympic snowboarder, Angeli VanLaanen her and her extended family all had Lyme. She said she felt worse the first two years of treatment and bedbound and her family felt worse the first year and a half of treatment. Her and her aunt and cousins are all in remission now. I agree your bart may be getting killed off strongly.

My llmd does muscle testing but more so to give clues he doesnt see it as definitive. He still prefers igenex and clinical diagnosis for Lyme and co infections.
Posted 9/17/2016 11:27 PM (GMT 0)
what is muscles testing?
Posted 9/17/2016 11:50 PM (GMT 0)
hi im also feeling worse and had the same thoughts (though i did improve alot when on the IV, thats over now and symptoms returned) ive got some new symptoms i didn't have before treatment, its very disheartening but seems to be normal enough at this stage. i think we have to get to the two year mark realistically before we can doubt if we are getting better, (not to say dont keep looking for other reasons, i found out i have a virus this month which could be effecting things loads and only as i did more testing) im 7 months in now, so understand how you feel. sometimes i wonder when all this is going to end.
Posted 9/18/2016 12:54 AM (GMT 0)
LBD30-we all get stuck.
Nothing started getting better for me until I saw a biological dds and treated several cavitations that my previous dds completely missed. After that I quickly regained 60 percent of my health and became functional again. Many lyme docs suggest seeing a biological dds dental- and most of us do everything but dental.
My opinion if you are stuck for long get checked by biological dds-maybe get a cavitat scan
Now if I could just get that last 30-40 percent.
Posted 9/18/2016 2:50 AM (GMT 0)
magoo i've also heard stories of people who've seen a biological dds had some work done and they tumbled quickly. sometimes you open the box and don't know what you're going to get!

i'm 19 months into treatment and basically i've been stuck the last 10 months. no matter what i try and do, nothing seems to help. i'm almost purely going the abx route with tons of vitamins, minerals, supplements, clean diet etc. and it just doesn't seem to help. i'm beginning to question the abx route being effective for me and may look to going herbals instead. gotta keep trying stuff if we get stuck!
Posted 9/18/2016 3:03 AM (GMT 0)
Waterbee why dont you go back on iv? Perhaps it was stopped prematurely?

What do biological dds do exactly for lyme? Do you guys mean like removing metals?

Rikky you should look into trying herbals! Buhner and cowden most of their patients i believe are people who felt they didnt improve at all or enough with abx.

Also make sure you are using the proper abx protocols. For example many only supress infections but do not eradicate them. For example with bartonella rifampin supresses it but only that. You need something like zithromax added in to actually eradicate it. Good luck.
Posted 9/18/2016 3:28 AM (GMT 0)
Rikki-not sure what you are referring to with some people going downhill after going to a biological dds. Cleaning out an infection will help your body. Maybe they didn't get it all out. I always try to not travel and do two days of Vit C IVs.
If a biological dds finds infection and removed them or removes root canal or metal you will feel
better. Depending upon the infection this may and often will take more than one procedure. I have met people besides me whos health got dramatically better within two months of cleaning out their dental issue.

Proper follow up a couple months later is very important.

A root canal or small festering infection in jaw will release many toxins an inch away from your brain-clearly this helps nobody. I can help but wonder if this causes brain fog-cant help
Go to Dr Mercola's websight for more detail on this. He is a great source for info. FYI-I used his same dds.

I could find only one small study on removing metals from jaw-on average the persona immune system doubled-this-of course-would help one with many health issues. When you need dental material spend the extra money and get a Clifford blood test and see what your body is allergic to-don't let some dds just jam some material in your body forever
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