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Yet another blogger dismissing chronic lyme, promoting outdated IDSA guidelines

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Posted 1/14/2016 5:06 AM (GMT 0)
Hi, I'm new here. Wanted to make you aware of this blog post;

http://www.thedailybeast.com/articles/2015/01/21/real-housewife-fake-disease.html

This guy behaves even more foolishly than denialists usually do in that he uses a celebrity with chronic lyme as an excuse for his rant. In order to get more attention for his views, perhaps? Seems likely.

What is wrong with these people? Why are they so terrified to admit the "experts" at IDSA have been shown to be wrong? They keep repeating the mantra "there is no evidence chronic lyme exists" when they have refused to even look at any evidence that contradicts IDSA. Who in their right mind thinks guidelines written in 2006 are relevant in 2016, in the face of ten years of new information? It's positively bizarre.
Posted 1/14/2016 6:04 AM (GMT 0)
Here's the website if you want to do something about it.

http://www.thedailybeast.com/


They also have a FB page.

M
Posted 1/14/2016 6:45 AM (GMT 0)
Not his first article about lyme
www.thedailybeast.com/articles/2014/09/19/predator-doctors-take-advantage-of-patients-with-chronic-lyme-scam.html

He's a pediatrician. Why not start writing about gravitational waves, too ? I heard they might have been detected. Why keep all that knowledge locked into dissecting ticks?
Posted 1/14/2016 1:32 PM (GMT 0)
Welcome citizen_canine!

It's discouraging to read blogs such as these. But, with the blogger being a mainstream MD, I understand how the misinformation is perpetuated.

I imagine Lyme has touched your life some way. Thank you for joining us. What can we do to help?
Posted 1/14/2016 3:20 PM (GMT 0)
"there simply is no good evidence that chronic Lyme disease is an actual medical condition". Read the dozens of forums, the FB pages, support groups, talk to someone who is suffering, look at the amount of money people spend trying to get cured. There is plenty of evidence.

He is in a stagnant state of mind and people like this are a detriment to medicine and science as a whole.
Posted 1/14/2016 4:04 PM (GMT 0)
I wanted to write him an email. And it would have said, "oh gosh you really should be careful what you make light of in case you get it. There really is Karma." That would be all I would say.

I could not find a way to email him. But I did find this......

Russell Saunders is the pseudonym for a pediatrician in New England. His writing has also appeared at Salon and Cato Unbound, and can still be found from time to time at Ordinary Times. He spends his spare time running, both competitively and after his four small children. He does not wear a mirrored headband in real life.

He doesn't even have the *ahem* to put out his real name on articles he writes. Turkey butt! I cannot give him the time of day.
Posted 9/23/2016 9:15 PM (GMT 0)
I had lyme for a long time before being diagnosed with 8 positive bands on the western blot.

I also do not believe in "chronic lyme." There is no evidence to prove the bacteria exists beyond course of aggressive treatment, and no evidence that more antibiotics make people feel better.

I think people have other underlying issues, like POTS, which I have. And Lyme causes inflammation which takes time to reduce.

Nobody has been sicker than me, but just because we are sick, and continue to be sick, it doesn't mean it's lyme, or chronic lyme. I don't think she ever tested positive. She also had a burst implant and said she felt much much better after taking it out.
Posted 9/23/2016 10:45 PM (GMT 0)
what an Idiot doctor!
Posted 9/23/2016 11:01 PM (GMT 0)
Jimmy i know a lady with silicone poisoning it doesnt go away..i also have microscope video evidence that spirochetes are there after 30 day treatment so does alan macdonald and many microscopists around the country ....are you a troll from isda ?
Posted 9/23/2016 11:03 PM (GMT 0)

jimmy902 said...
I had lyme for a long time before being diagnosed with 8 positive bands on the western blot.

I also do not believe in "chronic lyme." There is no evidence to prove the bacteria exists beyond course of aggressive treatment, and no evidence that more antibiotics make people feel better.

I think people have other underlying issues, like POTS, which I have. And Lyme causes inflammation which takes time to reduce.

Nobody has been sicker than me, but just because we are sick, and continue to be sick, it doesn't mean it's lyme, or chronic lyme. I don't think she ever tested positive. She also had a burst implant and said she felt much much better after taking it out.

I have to ask, what would you call being infected for 40 years then if not chronic Lyme. Chronic Lyme is disseminated Lyme. What else would you call an infection that was throughout the entire body?

And there's no way you can say no one has ever been sicker than you. Sorry. You're here, right? I'm in touch with several people who are too ill to post on this site, and I've been that way. If there was some way to pull up all of my posts that I've ever made, there is about one full year where I was too sick to even consider trying to communicate with others. And I'm not the sickest person I've talked with with these infections.

This leads me to ask, do you have Lyme disease? I noticed that your first two posts were on the migraine forum, then you came over here and are saying how the testing is bad (giving false positives) and that there's no such thing as chronic Lyme. No condemnation, just trying to figure out if you have Lyme, or if you are only here with to share your opinions?
Posted 9/23/2016 11:56 PM (GMT 0)

jimmy902 said...
I had lyme for a long time before being diagnosed with 8 positive bands on the western blot.

I also do not believe in "chronic lyme." There is no evidence to prove the bacteria exists beyond course of aggressive treatment, and no evidence that more antibiotics make people feel better.

I think people have other underlying issues, like POTS, which I have. And Lyme causes inflammation which takes time to reduce.

Nobody has been sicker than me, but just because we are sick, and continue to be sick, it doesn't mean it's lyme, or chronic lyme. I don't think she ever tested positive. She also had a burst implant and said she felt much much better after taking it out.

Although, I agree that persistent symptoms might be anti-nuclear antibodies or some sort of autoimmune response triggering inflammation, many times the infection is the causative agent of the autoimmune response.

Lyme is a relapsing organism and has many ways of hiding from immune response. Spirochetes can shed blebs which mutate with B-cells and this too can causes a surge of TH1 cytokines and hence inflammation. There have been dozens of peer reviewed studies that conclude the persistence of Lyme in animal models after IDSA guideline treatment. How are we suppose to believe that a month of IV rocehpin can cure Lyme yet, it's not approved by the FDA for Lyme treatment and can't even kill all Lyme perssisters in a petri dish. How are they so sure it is this effective in vivo?
Posted 9/23/2016 11:58 PM (GMT 0)

jimmy902 said...
I had lyme for a long time before being diagnosed with 8 positive bands on the western blot.

I also do not believe in "chronic lyme." There is no evidence to prove the bacteria exists beyond course of aggressive treatment, and no evidence that more antibiotics make people feel better.

I think people have other underlying issues, like POTS, which I have. And Lyme causes inflammation which takes time to reduce.

Nobody has been sicker than me, but just because we are sick, and continue to be sick, it doesn't mean it's lyme, or chronic lyme. I don't think she ever tested positive. She also had a burst implant and said she felt much much better after taking it out.

Well, there may not be 'evidence' that more antibiotics make people feel better.

But, when continued treatment makes you feel better and you now have no symptoms...that's good enough for me...
I will do what they did...thanks.
Posted 9/24/2016 1:19 AM (GMT 0)

PeteZa said...
I wanted to write him an email. And it would have said, "oh gosh you really should be careful what you make light of in case you get it. There really is Karma." That would be all I would say.

I could not find a way to email him. But I did find this......

Russell Saunders is the pseudonym for a pediatrician in New England. His writing has also appeared at Salon and Cato Unbound, and can still be found from time to time at Ordinary Times. He spends his spare time running, both competitively and after his four small children. He does not wear a mirrored headband in real life.

He doesn't even have the *ahem* to put out his real name on articles he writes. Turkey butt! I cannot give him the time of day.

I was looking to see something about the person that would say that, because I've had exactly the same tripe fed me by a young doctor in Britain.

I don't see how he has time to be a pediatric Dr., looks to me like he spends all day twittering.

"Daniel Summers is the Writer Formerly Known as Russell Saunders. He is a pediatrician in Massachusetts, and lives in Maine with his husband and four kids. His writing has appeared (as Russell Saunders) at Salon and Cato Unbound, and (as himself) at The New Republic."

You can type in Daniel or Russell Saunders into your search bar and get his twitter account.
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