Non-Stop Dizziness/Lightheadedness- Please Help!

I'm really hoping someone can help me. I have been sick with a variety of symptoms for a year now. These included extreme fatigue, brain fog, weakness, headaches, anxiety and depression, random bruising, tachycardia, difficulty concentrating and gastrointestinal issues. After several months of traveling from doctor to doctor and getting no answers, I was diagnosed with Chronic Lyme, Babesia, and Bartonella. I have been on antibiotics and natural supplements for over nine months, including six months of IV medication that I have just finished. A portion of my symptoms have gone away with treatment but in all this time, I have had this one awful, debilitating, frustrating symptom that I have difficulty describing and no medication or treatment seems to be able to help. It's neurological and I refer to it as a "woozy" sensation. It's not really dizziness or vertigo. It feels like it is physically happening in my head. Whether I am sitting or standing, I'll get this feeling like a warped movement or like I've lost my balance, but in my head, if that makes any sense. Like I'm moving, but I'm not moving. There are moments when it is worse than other times, but it never completely goes away. I'm really hoping there is someone out there who has experienced this too and maybe has a better description for it. My LLMD has no suggestions and I'm not sure if this is still Lyme. I have been diagnosed with some form of dysautonomia, but I don't think that's the full story since medication and treatment for this condition have only made things worse, not better. I have done physical therapy, acupuncture, you name it and cannot find any cause or relief. I have begun looking into the idea that I could have some form of mast cell disease, due to my seemingly disconnected symptoms and the fact that I've been sick in some form for close to five years, from IBS and several different food sensitivities, to migraines, difficult periods and now to Lyme and Dysautonomia. Really, I am open to any advice or suggestions you might have. After feeling this off-balanced, woozy feeling for 365 days straight I really can't take it anymore. Thank you!

Hi! Welcome to the forum :)

I had that pretty bad. it gradually got better not sure exactly what fixed it. Also, before I knew it was lyme I'd counter it with Alcohol, which was another buzz :( not recommended.

Took a lot of supplements for adrenal fatigue/depression, Vit C, magnesium, salt, Phosphatidyl Serine, Phos. Choline, Melotonin (sleep), Omega 3 and every other nutrient that helps the brain.

I would take abx 3-4 times a year for "sinusitis" even though I had clear CT's, but had this pain between the eyes that would creep in at the 3 month mark or so.

So, regarless of what it is, I'd feed my brain to make it healthier.

I'd recommend doing some of that, in addition to your abx treatment. this will pass but the brain has to heal itself. I think this is nerve sheath damage related as Lyme eats away at it.

Anything you take to help halt/repair that damage will go a long way, me thinks.

Post Edited (caramba) : 9/24/2016 7:38:05 PM (GMT-6)

I have it too like when driving .also for iver a year ..like drunk almost ..not fun anymore ..i have got the dizzy spins when i try to pop my c5 ...i feelnit is apinched nerve or even the nerves in ears ...i also feel it is either bartonella or protozoal..roceohin doesnt but when i take aljnia or tinidazole it seems to help ..i think its toxo i read where a guy got rid of his vertigo with daraprim Clarithomycin..so i am trying azith and alinia ..
also happens if i turn to fast or look far away then close ...it sucks hard ..gunna try ozone in ears ..and doing silver now ..and gunna attack bart ...it has killed some nerves as muscle wasting shows ..gunna do more ozone in back area ..when i sting my head and spine with bee venom it goes away a bit too .which makes me think hypercoagulation...on heparin days its better so idk some one had patches for ears i wonder ..havent really tried antivert either .but its neuro ...was about to start riffy

Hi LoJo!
Welcome to our community! I'm so glad you found us.

If you haven't ​yet​, it would be helpful for you to start with reading through the thread at the top of the forum titled,"New to Lyme?...Start here!!", as it is packed full of important information, symptom lists, helpful links and pdf's, how to detox when one has these infections, information on probiotics and much more. And this is another good list of possible detoxing routines: www.tiredoflyme.com/detox-methods.html

Since you've been in treatment for Lyme, were you taking a high quality probiotic during that time as well? I would check into fungal/yeast issues that can come from the use of a lot of abx like are necessary for treating Lyme. We have a really wonderful post at the bottom of page 2 of the "New to Lyme?" thread by Pirouette all about yeast/fungal issues.

The other thing is that it could be connected to Bartonella - have you had treatments for Bartonella as well?

Thank you all so much for your responses! I have taken antibiotics for Lyme, Babesia, and Bartonella for almost ten months. I also have been using natural supplements and vibrationals. I've been trying to figure out ways to heal any nerve damage. My doctor said only time, but I'm just not a patient person. I'm so going crazy feeling like this everyday.

Perhaps some tumeric with pepper in it as it facilitates absorption. There are some great ones on Amazon. In fact I take a refrigerated Liposomal one but I went to my cabinet today to pull out a bottle of caps that I bought last year.

Have you tried Acetyl-L-Carnitine? Its excellent for getting rid of brain toxins. I take 500mg and I can feel a difference in my clarity.

Tigerwithlyme which ozone therapy are you going to try?

No, I have not used Lion's mane as of yet, but I have talked with others that have used it when they have myelin sheath damage and they say it has helped them a lot.

You can see the dosages that Buhner recommends for Lion's mane here:
buhnerhealinglyme.com/reactions/treating-neuro-symptoms/