Cheek/tooth/jaw pain

I had horrible pain in my jaw, teeth, sinuses, and lymph. Lyme can go anywhere. It migrates and that is its calling card.

I am so sorry. I know how many times I almost went to the dentist thinking I had an abscess or something.

Treatment is the cure. Just keep on keeping on.

Are you doing antibiotics or herbs or both?

I had these weird cheek, jaw, and teeth pain, also in one side of the mouth. Was not a cold. I believe your symptoms are related to Lyme. I have also had intense sore throat that was not a cold, which I believe was Lyme or coinfection (EBV or mycoplasma pneumoniae) related.

I had numbness, tingling on left cheek prior to treatment (mild Bell's palsy)
After treatment started it turned into pain - left cheek and jaw.

It subsided - after over a year of treatment

Hallelujah

Hi RhodeIslander-
Jaw pain is probably my worst symptom. It was a bit better with treatment but now that I am "done" with treatment it is back.
2.5 years ago(before I knew I had Lyme) I had an infection in my jawbone from a bad root canal. I had horrible facial, head, ear, tooth, jaw, cheek pain, and swollen lymph glands on the side of the infection. (BTW, 3 dentists told me everything looked normal. I found a holistic dentist who did a CT scan and found the infection.) I had to have 2 teeth pulled because of it. Immediately all my pain was gone! And I thought all my health problems would go away! ;)

Almost one year later ALL the pain came back (and swollen glands) with a vengeance and worse than before and it hasn't left me. And it radiates too. I can barely eat, open my mouth, and have to take rx pain meds for it. We moved to Europe for my hubby's job and again I had dentists here look and they found nothing. I thought maybe it's Lyme related? But didn't know where to look.

It wasn't until a member here, Magoo2, mentioned their issues and that much of his/her symptoms cleared up by seeing a holistic dentist who deals with jawbone infections. I had a phone consult with the dentist and he could clearly see from my cone beam scan and even regular x-rays that my bone had not healed properly(cavitation) from the surgery and I probably still have a raging infection in there. But the question is like the chicken or egg. Did the Lyme cause the infection and improper regrowth of bone or did the infection exacerbate the Lyme?

In November I will fly all the way back to the US to have him work on my jaw. Incidentally, he says most of his patients are chronically ill patients, not dental patients. He even does pathology and DNA testing of the tissue he finds in the necrotic(dead) bone. I will work with my Lyme doctor along side as Lyme can reside in the jawbone. I am optimistic, but not trying to set my hopes too high...I have learned my lesson with this disease. ;) But it is kind of my last hope.

Here is a link to BetterHealthGuy's recent cavitation surgery.

http://betterhealthguy.com/cavitation

Also, interestingly, Dr. Ritchie Shoemaker, who is the pioneer in the Lyme/Mold connection is having a conference in October and one of the speakers will be speaking on ".... State of the Art in NeuroQuant and in unusual biofilm forming, possibly-toxin producing Multiply Antibiotic Resistant Coagulase Negative Staphylococci dwelling in biofilm communities in deep aerobic spaces of nose and dental cavitations." So I am just speculating but it seems like certain bacteria really like those aerobic spots in bone. For example, osteomyelitis. And Lyme seems like one of them. I know you mentioned maybe sinusitis? Hmmm...

Sorry for the long reply but I just wondered if you had thought of the dental connection? Do you have root canals or had wisdom teeth removed?

Maybe Magoo2 will chime in with their experience!!

I hope you find some relief and answers.

@project...I am sorry to hear you have the same miserable pain. And when you said cheekbone under eye I can relate. I rested my hand on that area by mistake while sitting on the couch yesterday and "YOUCH!!"

So is this FB group closed or private? I try to avoid FB like the plague, but if you think this group is helpful.... How does the surgery sometimes make things worse for some? And yeah you're right about how if it is so widespread how can it possibly be all addressed. That was my big concern going into this. If it didn't grow back( the bone) the first time why would it now? But that was BL and at least this dentist works with Lyme patients. But I was even super diligent then about supporting my immune system and bone health. Taking comfrey, drinking tons of bone broth, adding extra calcium and K2, getting ozone injections. But I don't know what else to do?! I can't endure this forever...

I know our immune systems are so damaged so it's really a gamble. :(
When I told my LLMD he was pleased I am getting this addressed and said these procedures (mild sedation instead of general anesthesia) are much less taxing on our immune system. But I get your point about these microbes hiding away in deep bone. Hhhhmmm.... It is definitely giving me pause for thought.

about the planters wart. I too had one for 9 months and it finally is gone after trying everything. So hang in there!!! Keep at it!! 'm sure you've tried everything too. :(

TrialByLyme - The facebook group is called "NICO,jawboneinfection,rootcanals,implants,cavitations" . You have to request to join it.

I declined doing cavitation surgery and getting ozone injections a few years ago after seeing a biological dentist. I'm still not sure if it was the right decision. From what I've read the surgery is a gamble. Probably depends on if the infection is relatively localized and if you have a strong immune system and robust healing processes. But from what I've read even the best cavitation surgeons only have around a 50% success rate and often it has to be redone multiple times.

Burner said that the mouth and saliva is one of the favorite place for the spirochete to live. If you have a body weakness like teeth pain prone you know lyme will lodge right there. My headaches were rampant, and still are, (today is one of those days) because I historically suffer from migraines since young age.
I am sure all this is going eventually leave scars in any of us as we progress toward the end...death.

Stanislav, this was posted a while back, but I copied it just for those that may need this information:

"Go in front of a mirror and very slowly open your mouth as wide as you can. Than just as slowly close it. You should see a jolt/movement to one side as you are either opening it or closing it. The jolt will be very quick. If this does happen-than repeat the very slow opening of your mouth but this time have one hand placed against your cheek while you do it with just a tad of pressure. Place your hand on the side you need to move your jaw back in to alignment on. If your not sure you can do this on both sides. It won't do anything on the side that doesn't need to move back in place. Repeat the same thing while closing your mouth. I clench on my left side so placing my right hand on my right cheek takes care of the issue for me.
My daughter grinds and we were taught this 15 years ago.

By Jrpsf: www.healingwell.com/community/default.aspx?f=30&m=3500923&p=1

Can be facial nerve damage OR swollen neck lymph nodes. Nothing to do but take treatment, magnesium, red root maybe....

You may also want to xray your teeth and check their roots