Does Onset Of Muscle "TWITCHING" Mean Siezures Are On Horizon?

I have begun to have many, MANY involuntary muscle twitches in both legs and sometimes arms. Began a week or two ago. Especially when first going to bed. Had some SO violent they actually threw me out of my bed twice and THAT scared Hell outta me.

After watching that movie called Under Our Skin I nearly panic at the thought of, "am I going to start having those seizures like the woman in the movie"? And then I just saw the old Dr Phil show where a friend of mine, a local San Diego TV Newscaster who is a Lyme patient AND advocate (and who is trying to help ME now) has some ex model with those seizures too. The video is on YouTube at: /www.youtube.com/watch?v=otjYCGGHN1c My friend is Brooke Landeu. Anyway, does anyone know if what I have is common or am I about to turn into a human cartwheel machine? Since I can't even walk now and it almost seems as though I soon won't even be able to stand soon since it seems to suddenly have gotten worse in my legs, well I just wonder what on Earth is next for me.

Sorry just not sure what you are saying? To take MORE cats claw? Under 8 ball?

Thank you Girlie. I just did a big increase in meds dose at 5AM today so almost 100% on all 3 herbs now. But NO improvement yet at all.

Lymepilot said...
I too suffer from involuntary muscle twitching. Mostly in legs but I get them everywhere. I keep telling myself it's a very common Lyme symptom and I hope it's not a sign of MS or ALS.

That's what the neurologist is for on a Friday and then another on October 16.

My LLMD who is also a neurologist has assured me the twitching is from the Lyme.

Wow! I really hope YOUR Neuro is better then mine! After 6 MONTHS and countless thousands of dollars, MRI, CT scan and brain scans etc I tested positive for Lyme on bands 39 & 41 (whatever THAT means?) and he told ME "not to worry about the Lyme" results!

Instead, he ordered another $2800.00 in labs for Cancer screening...I fired him, I walked out with my wife who is STILL cussing. And he is supposed to be one of the best in the Southwest? HE is the CEO, COO and founder of this clinic and there is only one other in all of San Diego. Scary as he has EVERY single Neuro in tis County in HIS practice! I am still in shock at his response to Lyme. Or should I say LACK of?

LastlyI would say how lucky you are to have a Neuro who will help you with Lyme. I SO wish I could so my insurance might be there for me and change everything.

Post Edited (lucynethel (OR Just Mike)) : 9/28/2016 1:45:45 PM (GMT-6)

I've had leg, arm, and shoulder twitching for almost a year now. The fun part is when my head gets to moving rapidly back and forth too. That is really scary. Did the neurologist route...didn't do anything except waste my money. One neurologist did an EEG one day and then left the country for 3 weeks without giving me the results. Went to a second neurologist to get the EEG read and his computer couldn't read it. He was the one that just about accused my husband of domestic violence...thought something traumatic must of happened for me to start twitching. Didn't think I had Lyme even though I had the classic bullseye rash. You couldn't pay me enough to ever return to another neurologist.

I have found that Magnesium (I use the powdered) seems to help some. Also for some reason 2tsp of children's Benadryl helps me.

I was hoping someone else had a better answer.

No lots of people get twitching I think bart can cause it too. Good luck on finding affordable care

jennydancingfish said...
No lots of people get twitching I think bart can cause it too. Good luck on finding affordable care

You know I have has so MANY folks tell me I likely have Bart. Is there a blood test for that as well that I should ask my primary care doctor for? I wonder how, or IF they treat that (since they don't for my Lyme beyond 28 day abx?)?

PeteZa said...
Mike my lyme created muscle twitching. I had it at the corner of my mouth for a long time. Very annoying. And then it did travel to all kinds of places on my body, arms and legs mostly.

I too was scared that I would have seizures, but I did not. I also was scared that it would never go away. And it did go away with treatment.

I went the route of seeing a neurologist at the request of my doctor after a negative lyme test. He scheduled me for all kinds of MRIs and other tests. I said to him, "Do you think this could be lyme disease?" His response was, "No! You don't get a headache with lyme disease."

I left and cancelled all the tests.

OMG-so you DO have my doctor then. Only in my case he was so outraged at the Neuro he (my primary care doctor) had sent me to for diagnosing my losing ability to walk, he couldn't even talk.He was LIVID at the response of "don't worry about the Lyme". He went ballistic and begged to let me do a Picc line antibiotic to start but I talked him out of it due to cost ,weel, and I have just spent a 5 month period with so MANY major surgeries (4 to be exact) that left me unable to shower for 6 months and with drain tubes in both my chest and 2 from my back alone, well, I just coud NOT do it. I need a break of sorts. Now, since reading and finding this group, I guess maybe I really blew it just taking the 28 day oral antibiotic? Kind of too late now I suppose. Sometimes I wonder, what will become of us all?

Another muscle twitcher here all over. Some days better than others. Seen neuro said im fine and dont have als. Had mri of brain done no signs of ms.

I notice my spasms seem better if i avoid carbs like bread rice and pasta. Ill be eating cardboard soon.

PeteZa said...
I never look at anything I have done as blowing it - even my antibiotics. They are lessons. So I had a 28 day lesson??? Better than 2 years.

Mike, what will become of us? is you will heal. Just get ready for a long slow ride. Honest to goodness I constantly complained to our Moderator, CD, that I needed to paint the word PATIENCE on my living room wall. That was the hardest treatment for me to take - being patient. I thought toddlers taught me patience, but nope, it was lyme.

I know, just wonder IF I had done th IV antibiotics, would I now be OK? I feel NO better and legs actually even weaker now that 5 weeks ago when all this began. And I am at 100%full strength on one of the herbs and 75% on the other 2. Taking supplements and vitamins galore, NOT having any of my beers. Just afraid I may be one of the ones who never gets any better. At least I am way too stubborn to quit. And IF I do, the wife will beat me again...

28 Days of IV Rocephin was. It magic cure for
Me. I'm a couple days into mino and ceftin and this is best I've felt in 90 days. Past 48 hours haven't been awful 😬

I'm sorry, meant to write it was not a magic cure. On the phone and in super market right now.

I get muscle twitches too :( No seizures yet though.