Treat vs. no treatment

I was diagnosed with chronic lyme disease about 2 years ago. My symptoms are very mild and I found that when I try and treat it, I feel a lot worse and cannot tolerate the antibiotics. I know that I was most likely feeling worse due to the herxing and made sure to incorporate a lot of detoxing into my daily routine. After going to a few LLMD's and trying a few different treatments, I decided to give it a rest while I finish up graduate school. My symptoms are pretty tolerable and my Dr. said to return if things get worse. I had met someone recently who was diagnosed with lyme and started seeing a Dr. in Atlanta who has helped a lot of individuals with lyme disease. I know that lyme can eventually go into the brain, heart, spinal cord, etc. Do you recommend me seeing this doctor and trying to treat lyme now or just hope that it doesn't get any worse and leave it alone? How common is it that lyme affects the different areas of the body after having it for a few years (doctors think I have had it about 10 years)?

Hey Britni,

Have you tried any natural, or herbal protocols? This may or may not be a bit easier to tolerate than antibiotics. At least something to strengthen the immune system until you are ready to treat could be helpful.

Consider Bvt or rife ...

Britni >>>>how did you tried the LB tonic protocol though....???? What dosage where you taking?

I have taken the tonic protocol too it is difficult to tolerate. I have found that as well. But maybe you could take a very low dose, then slowly increase, if you could get over your herxing period then you might move from minor symptoms to being symptom free.

I can't remember my dosing of the tonic protocol, but I want to say it was 6 or so capsules a day. I just had a bad herx I guess, where I was very fatigued, nausea & vomiting, etc. regardless of the detoxing I did.

I just checked and I was taking 6 capsules 3 times a day for a total of 18 capsules a day. I started taking one capsule 3x a day and worked myself up to the full dosage

Brit,

How did they determine that you may have had it for ten years? I'm like you, everything bothers me and makes me worse. But you have to treat now. I ask myself "If in a few years I get MS or can't walk how will I feel?" Not good! I did abx for 42 days and couldn't leave the house. It was so hard (and I was pretty healthy before lyme). Now I do herbs and have to go super slow but it's tolerable. Just keep trying. I also wish I would go into remission and never have to think about this but that is a fools wish.

Antonio, May I ask how old you were when you got sick and how you are now? I think my son (newly 14) has lyme. He was a happy, sparkly, kid, straight A student and liked sports. He has been getting sick a lot (home today as a matter of fact), we switched schools and he isn't doing well, tired, doesn't have energy for sports, says he doesn't care about anything (which is scary to hear as a parent). I found two ticks on in his ear (different times but both young). Of course I had him tested immediately and it was negative - because I knew nothing about lyme until I got it. He has had four sudden fevers, rashes, swollen knees. Would love to hear how you are doing getting this at the prime of youth. Thanks.

Brit, just because something says the dosage is 6 caps, 3 times a day does not mean that is YOUR maximum dosage of that product.

Maybe 4 caps, 3 times a day was your max. Trying to get to the bottle's recommended dose is not always what works for everyone.

When you slowly worked up on the LB tonic did you herx badly? If not maybe this is a good thing for you and you should stop at the dosage you started to herx at. Stay there for awhile and maybe later try and add in one more capsule.

I hate to see anyone with lyme not treat. In my time researching I have not heard of one person getting well on nothing.

You have symptoms - you should treat.

It won't get better...but with time...it will most likely get worse.

The 6 capsules 3x a day was my LLMD's recommendation to take. Every time I would go see her she would tell me that I "baffled" her because I was so much worse when treating compared to not treating. They are unsure of when I did get lyme. When I was diagnosed, I had no idea I could possibly have it. I was getting tested for hypothyroidism and MTFR since they run in my family. Through my blood work, they noticed a C-reactive protein of 31, which then caused them to test for lyme through western blot and Igenex. I thought my "lyme symptoms" were just related to other things such as stress from school, etc. Sounds like my best bet is to power through and treat it before it gets worse. My LLMD told me to take a break and if it gets worse to come back, but I don't want it to get worse.

Daisies,

How did you know when to balance for your son. In other words - half then full the past the hurdle? That's the part I'm having trouble with AND I will have to do all of this for my son once his tests come back and he gets into LLMD.

I couldn't do JK so I am doing Stephania. This came from Trav, if it sounds like you maybe give it a whirl:STEPHANIA: Buhner says that stephania "may be able to play an effective role in Lyme borreliosis in that the plants are specific for nerve inflammations, acting as a neuroprotectors in the brain from inflammatory conditions. The are also specific for arthritic inflammations that have an autoimmune dynamic such as rheumatoid arthritis. They have angiogenisis-modulating actions (angiogenesis =the formation of new blood vessels) and exhibit a number of positive cardiovascular actions: helping with arrhythmia, infarction, coronary flow and heart rate. These Stephania species, espeically S. tetrandra, are specific for Lyme-initiated eye inflammations; in fact the whole range of ocular manifestations of Lyme can be successfully treated with the herb. The herb also interfere with the cellular adhesion and chemotaxis and protect endothelial cells....."

Brit,

One more thought - and not to frighten you. Both my in-laws had lyme. They took abx. right away for six weeks and both went about their lives. And very full lives. No talk from doctors about ever needing anything more. Well fast forward about 3-5 years. Father in law has cardiac valve issues and can barely walk. Mother in law has all types of skin/digestive ailments, COPD (never smoked) and just had hip replacement. May all be a coincidence but I don't think so. FIL was a long distance runner and MIL extremely active/healthy as well. I think why tempt fate.