daily headache question

is this normal in lymies?

I have suffered from daily headaches for the past month....in the beginning they seemed to be all over the head but especially in back of head, top of head and temples

after starting acupuncture (thanks for advice i found on forum, trav!), the back of the head ones are gone...however i still have daily headaches top, temples and sometimes foreheads/eyes....also seems to be more pressure on ears

2 questions- 1st-i am on doxy and am afraid of its side effect of intercranial pressure- these arent debilitating/ER headaches though, but having them everyday is driving me mad...curious if anyone can rule out the doxy-intercranial pressure connection (havent had nausea/vomiting)so at least i can stop worrying bout that...if its just a herx, so be it

2nd question- is this normal in some lyme patients? my constant fatigue has morphed into this a month ago....3 ibuprofens tends to help, so i assume this is normal inflammation/swelling from a herx perhaps? but i dont want to take ibuprofen more than once or twice a week

i take alka seltzer gold and pinella and jernigan anti neuro and japanese knotweed...just ordered curcumin...any other ideas? thanks to all

im doing a number of herbs through a naturopath (samento, borrelogen, collolaid(sp)silver etc) and self-pulsing doxy 400mg, 2 wks on, 1 wk off...i still had headaches during the off period, though not as bad as today

as for acupuncture, THANK YOU trav...had a meningitis and back of head headache going on which the acupuncture has helped incredibly (neck still cracks but owell)

but despite about 50 needles on my head, while the headache might be relieved for the day, it comes back the next

thought it interesting that ibuprofen seems to help it, so thinking there is inflammation/swelling in my brain...i guess im hoping others will say its common but will reduce with continued treatment...

I suffer from huge, crippling, days long migraine. Like Traveler said....partially is genetic (hormonal too) and in my case lyme has made a villa inside my head.
My headaches are migratory -like the typical lyme pain- with an epicenter behind left eye.
I would not wish that to anybody....not even the dang thieves who took the herbs in the other thread.
Nothing really works with them...ALEVE, Iboprofen and the Rx meds I got in Europe....now I finished them all.....so back to super strength over the counter US meds are usually less effective. The latter will lower the headache but not make it go away...so I have a ghost headache.

Good info on Buhner protocol for headache. Thanks Traveler!!

Yes, it normal for treatment lyme by abx who can go to brain. Then lyme bacteria die in brain it can elevated fluid brain pressure. It good sign for treatment, but sometimes headache maybe terrible, and you can stop eat abx for several day.

My beginning lyme symptoms were crackling of the neck when I turned my head, ear pressure, and horrendous headaches. My doc even gave me narcotics and they did not touch the head pains. I found mine went away with treatment. I did Buhner's protocol. I think Japanese Knotweed was a huge help. It is anti-inflammatory and does cross the blood brain barrier. I also used Red Root. Red Root is good for the lymph system and some of my inflammation was lymph nodes behind my ear and the back of the head.

My headaches were so bad that I would cry. And they would come and go with no discernible pattern. Gosh how I hated that symptom!!

has anyone gotten pressure headaches from use of samento? i assume its a herx but i just added that last wk- was upto 16 drops- but i think thats what has moved the headache from the "new normal" headache to unlivable....also pressure in the ears and more brain fog..i know its a herx but im going to eliminate it and see if thats the recent cause of the worsening headaches

and peteza i take both red root and japanese knotweed (6 grams a day root powder since June)....

i read a post from Dr J who said that Lyme causes brain edema while on treatment

10 days in total- my naturopath directions was 10 drops a day 2x a day for 4 days and then 20 2x a day after that

i am aware of the actual cowden schedule of 1or 2 drop increase per day starting at 1 drop...and know that 10 drops is too much to start with....so i started at 5 drops 2x a day for 4 days and then went to 10 and was planning on increasing a drop or 2 a day until 20...

began getting sinus pressure at 12 drops and just pulled the plug after this mornings 16...will be doing "low and slow" if i start up again in a week...he also has me taking borrelogen, colloloid silver serrapetase and chlorrela .... im self pulsing doxy and still taking japanese knotweed, red root and jernigan neuro-antitox on my own

Ive been getting the exact same type of headaches lasting for weeks on end. Scared the crap out of me. I would even get a burning feeling in the back of my head. Then my right lymph node started hurting, now more scared. I read through new to lyme again hoping to find something. I did. Ironically i decided to try the foot baths. It states do not expect any results after first soak...tough twinkies deejavu i got a result lol my headache and lymph pain subsided drastically and has for the last 3 days. I expected herx but got some relief and the mag gave me some energy to boot. Is this just me? Yeah proly. Keep in mind i dont get headaches normally before june of this year and if i did they would go away. Fyi i dont like otc meds.

I've been interested in headaches for quite some time. I've had them, cured them, had them, cured them. There are many things that can cause headaches and it seems everyone can have a different cause. The causes of my headaches were caffeine withdrawal(BHMT++), not enough melatonin production(reduced SAMe), and too much ammonia build up(altered GI flora). Since everyone is different, your cause may be different but with Lyme, ammonia build up and inflammation are common causes.

I've seen people who had headaches because of dehydration, photophobia, glutamate toxicity, hyperammoniaemia, increased CSF, and vascular damage from ROS. These are the names of the conditions but they are caused by differing things. Figuring out the physiological dysfunction is the key to eliminating headaches.

I have had a headache since starting Doxy in June 2015. My primary care (fired) said not caused by doxy, probably don't have Lyme. They know that because they never even got my results from the lab done at ER.
I tried a new pcp (fired too) that thought I was crazy going through Lyme treatment with llmd, I was on picc line at the time.

Found Llmd in August 2015, treated Lyme, Bart,then Babesia with no change in the headaches. I had an appt Friday and he decided to take me off abx and treat headache. Also more blood tests, nasal swab to probe further into the cause.

I also visited Neuro, MRI, EEG showed everything normal up there .

dbwilco said...
apparently brain fog crept in on the last response....meant to say thanks for all your comments...not headaches haha

Headaches was funnier!

And I got a good laugh out of it.

Georgia Hunter said...
I've been interested in headaches for quite some time. I've had them, cured them, had them, cured them. There are many things that can cause headaches and it seems everyone can have a different cause. The causes of my headaches were caffeine withdrawal(BHMT++), not enough melatonin production(reduced SAMe), and too much ammonia build up(altered GI flora). Since everyone is different, your cause may be different but with Lyme, ammonia build up and inflammation are common causes.

I've seen people who had headaches because of dehydration, photophobia, glutamate toxicity, hyperammoniaemia, increased CSF, and vascular damage from ROS. These are the names of the conditions but they are caused by differing things. Figuring out the physiological dysfunction is the key to eliminating headaches.

Good info Georgia Hunter. Thanks.

New here. I took Doxy for 4 weeks ending beginning of August. (had bullseye rash in early July) Had blood tests post treatment. Abnormal results in Lyme Disease AB(IGG), blot , and not detected for Babesia and anaplasma. I have a nagging mild headache since August. I have not heard of Doxy headache before. Have not detoxed. (didn't know anything about that) I also have unusually sore shoulders which started about a week ago. I am wondering about all my aches and pains now and worrying they are Lyme related. My PCP prescribed another round of Doxy. I have not started this; don't really want to. I don't think she is Lyme literate. My diet is good, I am exercising now that the hot summer is over, and my energy is good. I plan on starting detox footbaths. I read about how symptoms can persist after treatment even if the bacteria are killed. Never heard of herxing. Anyone help me out here?