Is this lyme?

Hello... I come from Slovenia (very endemic country for lyme disease). I need your opinion...
It all started slowly a year ago (or maybe more, didn't put so much attention on my first symptoms), when i felt some joint pains (knee, ankle, back pain, pain in fingers of right hand - here i remember when just for a while i thought if that was a beginning of rheumatism). Sometimes i've noticed some strange skin rashes. In May this year my nightmare began. My back pain appeared again and at the same time i started to feel very tired. Then my ankle start to pain again and one day i just woke up like i had lost a feeling of reality - like i was in dreams for the whole day and i was also depressed for no reason. I was asking myself what happened - was just some strange PMS? I felt i was different person without any energy. Then my chest started to pain so much, sometimes i thought i wasn't able to breathe again. Also my feet and a toe were painful. At that time those were my last nights when i could sleep normally and was waking up rested, because in June i started to wake up at nights and i was having panic attacks because i was totally confused and the pain was so terrific. I was just crying and still asking what was wrong... I had such tremors and heart palpitations (because my doctor was convincing me that was just my depression, i also believed in that). But it only got worse. Sometimes i can hardly get out of the bed, every morning when i wake up i feel like i'm having the worst flu in my life, my boyfriend has to help me to get me up from my bed. And it' so hard for me to concentrate on my job (sometimes i can't remember a thing that happened a few mins ago). My body temperature is low and my feet were so cold also in the middle of the summer. Other symptoms are: joint and muscle pain almost everywhere, headache, eye redness and horrible pain in eyes, ear pain, stiff neck, sore throat, eyes and muscle twitching, weakness of muscles (my calf muscles and arm muscles are just "disappearing"), my knee joint is sometimes red and it hourts when i touch it, tinnitus in ears, vibrating in my feet and feeling like i'm having electricity running through my body, in dark room my right pupil is bigger then left, one day i can feel my legs completely, but the next day i can hardly walk, just as i don't feel my legs again. Also my skin is getting so thinner, the most around wrists and in palms, there are so visible blue veins. Every single night since June and every time i fall asleep, i have vivid dreams, i can describe everything in details. But what for me is the most scaring and sick symptom is, that often i can see a shape of lyme spirochete floating in front of my eye. Wish i could do a screen shot of it... There are many others symptoms too.
I went to many specialists of course, and they said everything is OK. They did ELISA test and it was negative (i had positive IgM), so i was told it couldn't be lyme disease... Do you have some advice or know someone who could help me? I'm desparate and i can't imagine living life like this :-(
Thank you in advance!

Hi Speedyka,
Welcome to our community! I'm so glad you found us.

Depression doesn't cause those things, as you have suspected.

If you haven't ​yet​, it would be helpful for you to start with reading through the thread at the top of the forum titled,"New to Lyme?...Start here!!", as it is packed full of important information, symptom lists, helpful links and pdf's, how to detox when one has these infections, information on probiotics and much more. And this is another good list of possible detoxing routines: www.tiredoflyme.com/detox-methods.html

A positive IgM is very significant to a Lyme Literate doctor, it shows your body is fighting Lyme disease specifically. In order to have a positive IgM, there has to be some "Lyme specific" bands that are positive as well.


 A "Lyme specific band" means specific for Borrelia Burgdorferi, sensu stricto - Lyme disease in the strictest sense. There are only two on the over 300 known strains of Lyme that is considered Bb, ss. Borrelia burgdorferi and Borrelia mayonii. Nothing else will turn a Lyme specific band positive other than Lyme disease - - even though there are over 100 different strains of Borrelia in the US that cause human illness, 300 world wide.


An IgM result means that you have an active infection. It once was thought to mean an 'early' infection, but has since been revised. IgG means that the infection is at a later stage. The fact that you don't have a positive IgG though may not mean much, especially if you had any Lyme specific bands show up as IND or positive.
 
The more +'s you have beside a number, the stronger the reaction.

 IND means indeterminate - not negative, but not quite strong enough to be "fully positive". But it means that you reacted on those bands and should be considered, especially when they are Lyme specific bands.

I do have a list of some doctors that treat these infections in a few other countries that I can check shortly - it's only accessible on my desk top computer though and I'm on my tablet right now.

Even if there are no doctors near you, you can still treat these infections with herbs only, so you still have options. We can list these protocols if you are interested.
.

I am so sorry you had to find us but so glad you did. All of those symptoms sound very familiar to many of us here. there are so may things that can go crazy in your body with Lyme's disease. trust us you are not crazy you are sick. I am grateful that you decided to try and get well even though they said you were not ill. please ask lots of questions the members here love to give answers and tell you about their journeys as well.
Best of luck to you
Nick

nberg and Gismo94 thank you too! Do LLMD take your clinical symptoms seriously? I'm so tired of everything... Sometimes without energy to try to pull myself out of this :-( my family doctor told me she has no idea anymore what she should do. So i'm just on my own...

Speedy, stick around! You'll find lots of people here trying their best to help each other!!

If your family doctor is willing to give you the abx, and you wish to use abx to treat, she can follow this -
the new (2014) Treatment guidelines. And there may be some US LLMD's that are willing to help guide them, although it will take some effort on your part most likely to find one that will:
www.lymenet.org/BurrGuide200810.pdf

I'll go answer your email in just a bit! Thank you for emailing me!

Thank you. Do you know if i could buy antibiotics anywhere?