Follow up Doctors Appointment

I have been reading through all of the information here and, while informative, it's a lot ... a lot of words I can't even pronounce. Like many of you, I have a very hard time concentrating when reading so, I am hoping I can get some information from you folks that I can ask my doctor at my 1 month follow up next week.

I have been on NABUMETONE 750 MG TABS and DOXYCYCLINE HYCLATE 100 MG CAPS - both twice a day, for 4 weeks.

I have had expanded muscle pain/brain fog/lymphatic swelling/memory loss/inability to form words/joint pain/weight gain/depression. None of these have subsided. Only gotten worse

Detox: I drink hot lemon juice and bathe in epsom salts.

I hate taking so much synthetic medication but, I can't afford the herbal ones. There is a person here who charges about $500 - $800 a month for the herbal remedy and ... I just can't buy into it.

SO ... can you summarize what I need to be asking my doctor for next steps? I"m not sold on the fact that she is 100% Lyme literate. I'm grateful that she diagnosed me with it (with a negative test) but I just have felt like, when I go in, she's like "Ok, well, well just see how it goes!"

Any help/advice would be MUCH appreciated!!!

I always made a list of questions before I went to the doctor. I could not rely on my memory. And I took a pen to write down the answers. If you need a friend to go with you, please do that. They sometimes hear words you won't hear.

The minute the doctor said IV I got stuck on that word and did not hear the next 3 sentences. That's why a friend or tape recorder is helpful.

Make sure you ask what type of plan they have in mind for your treatment. Or is she just going month by month?

How many patients has see seen with lyme? How many are healed or in remission?

Does she like alternative methods? Which ones has she seen successful?

Ask her how much schooling she has had with regard to treating lyme disease.

What lab got you a negative test result? Labcorp and Quest are notorious for negative Elisa test results.

If she says, "well, that's it, no more medicine, you are cured" run forest run. Get back here and we will help you find a better doctor in your area or as close as we can.

Hope this is helpful.

LymeTrez said...

Detox: I drink hot lemon juice and bathe in epsom salts.

I hate taking so much synthetic medication but, I can't afford the herbal ones.

Add skin brush and any mild exercise which will make you sweat a little. Your skin is your biggest detox organ. Use it.

If you buy Japanese Knotweed in bulk (or find in the nearest forest - it grows everywhere) and pack your own capsules it's not that expensive. Definitely cheaper then Doxy supply, at least in our parts.

LymeTrez said...
I have been reading through all of the information here and, while informative, it's a lot ... a lot of words I can't even pronounce. Like many of you, I have a very hard time concentrating when reading so, I am hoping I can get some information from you folks that I can ask my doctor at my 1 month follow up next week.

I have been on NABUMETONE 750 MG TABS and DOXYCYCLINE HYCLATE 100 MG CAPS - both twice a day, for 4 weeks.

I have had expanded muscle pain/brain fog/lymphatic swelling/memory loss/inability to form words/joint pain/weight gain/depression. None of these have subsided. Only gotten worse

Detox: I drink hot lemon juice and bathe in epsom salts.

I hate taking so much synthetic medication but, I can't afford the herbal ones. There is a person here who charges about $500 - $800 a month for the herbal remedy and ... I just can't buy into it.

SO ... can you summarize what I need to be asking my doctor for next steps? I"m not sold on the fact that she is 100% Lyme literate. I'm grateful that she diagnosed me with it (with a negative test) but I just have felt like, when I go in, she's like "Ok, well, well just see how it goes!"

Any help/advice would be MUCH appreciated!!!

Lymetrez - I had to look up the Nabumetone - it's an anti-inflammatory - so it's not treating the lyme...but maybe helping with your symptoms. Is it helping you with symptoms?

The doxycycline isn't a high enough dose. It needs to be 200 mg twice daily.
Can you remind me - is this a very recent infection? (weeks) - if not, you need something more than doxycycline.
Two or more abx need to be taken.

Could you have her look at these guidelines - it will show the dosages of antibiotics for lyme.
I think further down, it talks about two antibiotics at a time, as well.

www.lymenet.org/BurrGuide200810.pdf

If you can't get a higher dosage...and another antibiotic added, you might want to consider adding herbal treatments.

It's making symptoms worse = herxing.

I suggest you add in more detox methods - add a new one in every few days.

If the nabumetone isn't helping...maybe think about a natural anti-inflammatory...it's not as harsh on the body.

curcumin/boswelia are a good combo.

I think some people mention having good results with Omega-3 fatty acids from fish oils.

You can get them at a health food store...or a health food section of a grocery store.

or, you can order them on-line.

Amazon, iHerb are two places I use online.

maybe start a new thread asking about anti-inflammatory suggestions.
So, you can get several options.