another bad day- feeling horrible- when will it end?

I am getting extremely frustrated and run down and just want to give up, i mean give up as in screw all responsibilities let me lay in bed forever lol. Today is a bad day again, could not sleep last night, I was tossing and turning all night. I felt alright when I went to bed, and actually a TON of energy when I got home from work/pet sitting/picking up new meds around 9pm. But I woke up today with a horrible headache, its my temples, back of my head, base of the skull, neck, shoulders tight and tinglig, it took me about 30 mins yest and today to muster up energy to get out of bed. And now my legs, while I can feel them are slightly funny and tingly feeling... :( Energy just to turn the steering wheel is a lot, I am I am so confused...

As I got to thinking i am pretty sure that I felt "better" before even seeing the LLMD. My symptoms had returned and yeah I had some bad days of crying and feeling like something wasnt right but could not figure out what... but I don't remember feeling this bad as frequent. Even when I started the Biaxin it was not as bad, I did not really start to get the light sensitivity, the HORRIBLE headaches, and weakens along with everything else until I started the minocyclin. Is this "normal"? I just don;t know if I am getting better or worse at the moment :(

Oh and weird and random but i had something weird going on with my right thumb nail, like it looked like it was seperating and if i hit it it hurt. Well took my nail polish off last night and 3/4 of the nail was white and dead peeling off the skin, so I had to cut it so i basically have no nail.. Could this be related at all??

Having bad days is the worst. Just fight through the pain and hope for the best. It'll get better.

Sorry you are feeling bad. It can be extremely frustrating to have a good day and then a bad day. I think we all go through this in varying degrees.

Hang in there! The consensus is that it gets better as you treat and detox better.

That is one thing that I have not had was burning hands or feet or anything. I am starting on Rifabutan tomorrow with the mino. And I am not really detoxing much.. I did an epson bath last sat for too long which caused me to feel worse but then mon and tues i was go go go like omg energy. Then things slowed down.. thurs i did one again but 10 mins instead and honestly didnt notice anything i was not feeling well yest and today is worse. What i find odd is that when I am in the heat i feel better, just sitting around at home or work im horrible or just driving..

Dont freak out..i feel just like you do. Hammered poo! Take it one day at a time even if many days are the same. Take adavantage of when you do feel slightly better.

It's the drugs not the infection, antibiotics open the pathway for so many other things to affect us. Long term abx will ruin you and make you rely on your llmd the rest of your life, that's their goal, to keep you coming back and spending money. "Oh that's just the bugs dying", is a very convenient way for them to diagnose any negative reaction you have to their poisons. Don't trust llmds. I'm convinced it's them on this website feeding us more nonsense to buy more drugs.

I've read studies that herxheimer reaction should only last one day, anything beyond that is a drug reaction, not all studies are consulsive or correct and personally I don't know what to believe. I am someone who believes I suffer from chronic Lyme, but the abx did a lot more damage than good in my case. I took half the abx reccomended and nearly died, seriously have never been as close to death as I was after taking 200mg of mino plus septra for breakfast, would just lie in bed breathing fire thinking this is how I'm gonna go, when 3 hours earlier I had a couple bareable aches. I'm back to just accepting the aches, helluva lot better.

Btw sorry to be mr. Negative, I really hope you feel better and figure out what works for you.

AustinCreek said...
I know people have gone to llmds and died, there are success stories and everything I between. They charge a fortune and can't be sued for malpractice so they've got a pretty good racket going as I called it.

There are also people who have died from untreated Lyme Disease.

Both situations are not common.

Yeah thanks for scaring me.... :( I know antibiotics long term are not good i know that, but I have also known some people who went years without diagnosis and could barely walk anymore. They are in a way damaged permanently but I know someone who went to her when she was really bad off and was on stuff a year and now takes herbs and is a lot better. Dr Harbor even herself had lyme, she is about natural as well, which is why she is having me do the stevia extract. i feel like she actually cares where lets see when i walked into the doctor with my gigantic bullseye rash behind my leg, painful to the touch, entire legs painful i was told that it was prob just some reaction and blown off... wasnt until a week later when i could not move at all and was in so much pain that a doctor tested me, and called it lyme's that drives me nuts. You know they dont know about it if they don't say it correct haha.

Post Edited (saozemko) : 10/29/2016 7:47:26 PM (GMT-6)

Oh I didnt know that... Why would they get their license revoked?? Sorry again I didn;t know just looking for more help because AustinCreek really has me scared now.... :(

Lets not overreact people.

Do you know how many people die from cancer treatments each year? A lot. I know three.

But fact is cancer would have taken them eventually too.

I had lyme for 25-30 years. It sucked.

2014-2015:ABX was very uncomfortable. I am better, but not 100% better.

I talk normal again (not like a drunk). I sleep again. I can write better. I dont fall over. I can think and "brain storm" at work again. I have not woke up to a blind day again.

I still ache, and work on the every single day.

Today was a great day- it happens more now, with bad ones thrown in too.