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Posted 10/30/2016 12:25 AM (GMT 0)
Lymiemomster - do you and your son have a compassionate GP - who is accepting your son's diagnosis?
I have found that even though mine knows nothing about lyme disease...she is leaving the treatment up to those that DO know how to treat it.

She supports me with monthly liver/kidney function tests...and continues to test me for other 'stuff' in case we've missed 'something' else. I'm fine with that. Heck, I hardly used the health care system for most of my life..so it's payback time...lol.

I hope that for your peace of mind - you have an understanding GP.
Posted 10/30/2016 12:36 AM (GMT 0)
Oh Lymemomster,

Crying right there with you - big hug to you. I wish our boys were close by. I am so sorry your son has been through over a year of this and with terrible migraines. Well he is blessed to have such a loving and supportive mother. He really is. Did he have to repeat a grade? How does all of that work? How improved is he now? I hear you on the isolation. My son switched schools this year. The school he went to from K was very rigorous. He was becoming anxious, overwhelmed and losing stamina. Now I realize it was all from Lyme and wish we kept him there where he had friends. He's now in new high school an hour a way. He has no friends, is an only child, no cousins, Nothing - and his best friend completely dropped him over the summer. I cry for this kid being so lonely and now he will be home healing from lyme. I tried to get him back to his old school and he can do that but I can't say "Oh but he has lyme..." As their mom's I think we need to take this one day at a time, get our kids well and worry about the school part later. How did you figure out he had lyme? Since most of us get worse before we get better do you think it's everything dying that is causing him to feel so bad? We should have our boys email each other for support. My private email is listed if you ever want to talk or vent get my son's email for your son. I include all 'my invisible friends' in my prayers each night and you and your son will be in tonight. Thanks!
Posted 10/30/2016 1:05 AM (GMT 0)
Hi Huddie and girlie:)

I'm lucky to have such a supportive wonderful forum where I get my batteries charged and have such a caring knowledgeable group who help me understand my son's illness. There really is a lot of angels here.

Things were soo bad at one point my son thought he had a brain tumor with all the migraines and shooting pains/twitching/spasms. I kind of had to give up on school. I know that sounds bad but we really were just on survival mood. When he got shingles new years day he just looked at me and said "**** my life. This from a kid who was very upbeat and happy/athletic.

This month his main sx are anxiety/ocd, insomnia, brain fog (way less then before) and fatigue. So this is a lot better. He cant get to sleep until 1-3 am and gets up at 12:30/1. Goes to school for an hour. Does homework for an hour. Tries to go to the gym 1/2 /week very very mild no cardio. We went to the library last week because its the first time in over a year that he can read a book. He says he wasn't able to visualize anything before -so this is a huge improvement.

This disease is extremely isolating. Of course your son can email my son! Anytime! Friends are everything at this age. i will email you soon!

Until now my son doesnt want to think about being sick. He said that he knows I am doing enough investigaing for the both of us. Lol.
Posted 10/30/2016 5:54 AM (GMT 0)
Thank you, thank you, thank you!

I think I'm going to order the BB-1, Bar-1, and Toxease as I begin with the Buhners.

I wondering how long should I stay on these herbals?
Posted 10/30/2016 6:12 AM (GMT 0)
Bug-3 months past sysmptom abatement ...is whats suggested ...

if i knew you couldnt get chicken pox multiple times (rmsf)
If i knew arthritis was mycoplasm
if i knew there is no false positive
if i knew we all have parasites
if i knew abx wouldnt kill this crap
if i knew you could see it in a microscope
if i knew it was a std
if i knew ms lupus scleredoma was lyme (i could have saved my cousins life )
If i knew i could order a dna connexions test withoht a doctor
if i knew elisa test was bs
if i knew it would eat my nerves by taking bactrim
if i knew bvt and rife worked
if i knew i could have got a port put on sooner

if i was knew that this is a pandemic and likely a cause for cancer and everyone has it or will have it ..would i shout from a mountaintop or let the zombiesheeple die ?
Posted 10/30/2016 11:42 AM (GMT 0)
Good morning,

Blue lyme what do you mean arthritis is 'mycoplasm?' Not even sure what mcplsm. is but my main symptom is arthritis so I'll look into that. Also you believe lyme causes cancer? Gee just when I thought this couldn't get anymore dreary.

Well happy Sunday everyone.

Lymemomster. I am sorry for all that you and your son are going through. He must have a strong, fighting spirit to still have his sense of humor. Yes, '**** my life' seems like an appropriate response to a kid in his prime with lyme and then shingles. I hope the shingles are gone, great news that he can read a book, the little things are forever appreciated. I do believe there will be many younger people to have lyme and perhaps our kids will help them. The camps on the east coast are all in lyme endemic areas and no one checks these kids and they certainly don't check themselves. Four weeks of being outside. It's my son's favorite time in the whole year. I hope our son's can talk to each other maybe they can play videogames on line one day (yes I have to give into videogames) because he doesn't have a lot of energy these days. Prayers and well wishes to everyone.
Posted 10/30/2016 5:30 PM (GMT 0)
Im trying To order Beyond Balance products, pls, could someone tell me which one to get To treat Lyme and Bart? Is the MC BB1 for Lyme?
Thanks
Posted 10/30/2016 5:38 PM (GMT 0)
Mijo,

I ordered BB1, Tox ease, Babs and Bart 1. I just ordered yesterday.

Hopefully Peteza will see this as I have deemed her the BB expert.

Come back and tell us how they are for you. I will do the same.
Posted 10/30/2016 5:39 PM (GMT 0)
mijos - It would be better if you started a new thread asking that question...
Posted 10/30/2016 7:34 PM (GMT 0)
Huddie read garth nicolsons work on mycoplasm fermintans incognetis ...rhuemys now use low dose minocycline to keep it in check ...my horible bone pain didnt ease up until rocephin and zithromax
and its proven that h pylori (a spirochete )causes ulcers and stomach cancer .

so its a belief of some homeopaths that the bugs show up to clean ip our toxicity and evolve ..starting with blebs and cocci then swimmers like protozoans then spirochetes then filarial then astrocytes then cancer ...maybe detoxing is that inportant .
Posted 10/30/2016 7:42 PM (GMT 0)
Bluelyme,

Thank you so much. Sorry you have so much bone pain. That sounds awful. I didn't know you took abx. I thought you were a bee only warrior. Ok, now having my husband tested for Lyme. He has had digestive issues, colonoscopy/endoscopy but nothing and he doesn't get better. I keep saying GI issues can be lyme. Now I'm sure of it. Thank you!
Posted 10/30/2016 9:27 PM (GMT 0)
I started with MC BB1 and I did it for many bottles before I went to MC BB2. I started the Tox Ease GL at the same time as the MC BB1 because no one told me how to titrate or do herbs low and slow.

I got my bottles home and I did 2 drops of MC BB 1, 3 times a day and felt fine. I actually put them under my tongue for the first week and then my doctor told me to put them in water and chug them down..... He was not super informative.

At the same time I got my bottle of Tox Ease GL and what I did was wait about 15 minutes after taking the MC BB1 and I did 2 drops of that, 3 times a day. I felt fine with that.

After that first week of putting them in my mouth and doing it wrong -- I started doing the BB1 in water and was up to 5 drops, 3 times a day. And I only waited about a minute and did 5 drops of the Tox Ease, 3 times a day.

It was easy and very subtle. Do not expect huge changes right away.

I just bought a new computer because I wanted OS10 and 2016 Office and my journal is on my old computer. I am figuring out where to set up the old computer now..... when I do, I will tell you how long I was on MC BB1. It was at least 5 bottles I do know that.

Oh and one time they ran out of Tox Ease GL and I had to do the capsules.... I realized I love routine and sure missed my tincture.
Posted 10/30/2016 9:35 PM (GMT 0)
Dr. Steven Harris prepared what I think is a great article "Non-Antibiotic Approaches to the Management of Lyme Disease and Coinfections".

Starting on page 36 is info about various Beyond Balance products including their ingredients:

www.acimconnect.com/Portals/0/Events/Dallas%202013/Presentations/Harris-%20DFW%20June%202013.pdf

How I wish I found this article before my first tick attachment in April 2014 and learned that people healed with herbs.
Posted 10/30/2016 9:45 PM (GMT 0)
That .pdf link doesn't work.

if you google acimconnect.com harris presentation you can get there.
Posted 10/31/2016 3:13 AM (GMT 0)
I have used every modality and will use all...i was even thinking of trying kambo..but i believe in the bees most ..i have seen 3 miraculous people come back to life .

i have used iv h202,iv silver ,rife ,iv abx ,herbs,mms ,iv ozone ,and bee venom with supplements glutithione and saunas .do it all just not simultaneously

my twithing stopped when i started iv abx ,did bee venom 3x a week and iv ala and phosytadlyecholine and iv curcumin...i asked doc he said sometimes 1 and 1 and 1 is 111...synergy
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