Bladder infection never went away - lyme the culprit for Interstitial Cystitis

So I've had a hellish week, the bladder infection never went away despite two different antibiotics. I was in all night going to the bathroom 20 times, in pain in my kidneys and bladder. I went to the emergency room and they checked again, and were about to give me IV antibiotics when they said "we can see their are white blood cells in your urine, but no bacteria we can find".

So instead they gave me something to numb my bladder and hope it will just go away. I suspect this is lyme. My protocol has done a good job of driving the pain out of my joints and muscles, now I think the bacteria has hid in my bladder causing yet more misery.

Just wondering if anyone knows anything about the lyme bladder connection, and what I could do for treatment.

Thank you.

Ah yes, I do have the unsweetened organic cranberry, marshmallow root tea and D-Mannose. None of those things have helped me yet it has been a nightmare.

I have pain in my pelvic area, ureters and my flank area lower back on both sides. The pain isn't that bad, it is more the constant having to pee and not much coming out is worst of it. Kept me up all night.

/www.ncbi.nlm.nih.gov/pubmed/8417211


lymemd.blogspot.com/2009/06/interstital-cystitis-and-lyme.html

Yeah, I had that for about 6 wks and it comes back mildly when I take abx. I never tested positive for UTI though. Many trips to urologist they had no answers. They mentioned IC but hoped it was just cystitis. Complete misery! I took something called Uribel (prescription) which helped slightly. Also drank tons of marshmallow root tea and took a probiotic with d-mannose (hyperbiotics). Epsom salt baths would temporarily ease the bladder discomfort.

Also, I remember reading about biaxin/plaquenil being a good combo for IC type symptoms. I asked to start with this combo when I started treatment.

Girlie said...
So, isn't pain in the back a kidney infection...not bladder? or do you also get lower back pain with bladder infection....

Either way...maybe it's the same antibiotics anyway?

To answer your first question, and indirectly your last.

www.healthline.com/health/bladder-infection

My nurse with lyme has ic ..and it was 1 year of abx ,1 year h202 and 4 yrs bvt and ozone cathaders has resolved it ..she believed it to be bartonella vinconii
My badder bladder has gotten a little better with rocephin ..maybe ..propolis in large amounts ...and push for iv ?
You can order some levaquin online ....if it persists i would tell llmd ..was there infection in ua to begin with?

evianangel said...
Yes thank you. I did read that before, I've searched tirelessly on google now I may wanted to see if anyone here has had anything similar.

I had, or did, a few times, though not for over a year thankfully. Although I more frequently have gotten kidney stones or infections, like Randy, I start consuming cranberries(and their juice).
I never looked it up before, but at the time I was running on the mindset the Dr was right, I didn't have Lyme.

It was your question that spurred my interest into the connection.


I remember the days i used to blame everything bad on the devil. Now it's Lyme and company.

Evianangel - Coincidentally I noticed that Dr. MR has some info on bladder issues (treatlyme.net). He says that IC symptoms when you have Lyme are usually due to Bartonella, although Borrelia alone can also be the cause. There is a definite link here. I'm glad I ran across this as I'm thinking my bladder symptoms when I take abx are due to die-off according to him. Do you have subscription to his site? I think it's 2.99 a month. Anyway, he goes through some diet changes and supplements. Here's a few:

-A Bladder Ease Herbal Combination (L-Arginine 750mg, Quercetin 600mg,
Glucosamine HCL 450mg) 3 times a day.

Or, use quercetin and glucosamine sulfate but do not use the above herbal combination:
-Quercetin 250mg 2 pills 3 times a day.
-Glucosamine Sulfate 500mg 1 pill 3 times a day.

As for diet, he says this:
Diet modification can help by removing inflammatory and allergic foods. Eliminating the following foods is helpful for some: aged cheeses; alcohol; artificial sweeteners; chocolate; citrus juices; coffee; cranberry juice; fava and lima beans; meats that are cured, processed, smoked, canned, aged, or that contain nitrites; most fruits except blueberries, honeydew melon, and pears; nuts except almonds, cashews, and pine nuts; onions; rye bread; seasonings and anything else that contain MSG; sour cream; sourdough bread; soy; tea; tofu; tomatoes; and yogurt.