Your opinion - new (sort of) symptom - regression...or progress?

My LLMD seemed to think my increased twitching was from Babesia, as it seemed to come on right as started some Babesia herbs.

I can't say for sure though. Seems like any co-infection can cause twitching. I think a good indication will be if you continue twitching when you go off artemisinin after your current pulse.

If you don't want to shell out huge money for Mepron or Malarone, try Alinia for a bit. That way you could continue on the Rifampin if you wanted.

Or, as I mentioned before, try Beyond Balance MC-BAB-2.

I did recently test positive for bartonella, so there's also the possibility that it's just persistent bart...

...and I got a bad cat bite 7-8 months ago....maybe I was reinfected with a new batch of bacteria...

My twitching went from annoying little things to painful fasciculations because some of them became so strong they were forcing my bones in directions they aren't supposed to go.

I don't know exactly when I didn't feel the last even tiny one, and I don't know what I did to stop them...perhaps keeping hydrated, but I remember having episodes a couple of times on well hydrated days.

I will hazard another guess and say it might be because I have stopped stressing anything with too much activity in one day. And I've kept warm throughout the Summer. Things may start happening again now that it's getting cold in here.

I think I always look for the simplest answers first. Of course now I always end up wondering which microorganism is at fault this time. I really feel for our nervous systems! Central and otherwise.

I noticed this is something you asked about a couple of years ago. Did you ever figure out what gave you relief the first time?

jrpsf said...
Yes you can take Alinia with Rifampin. Alinia has no side effects except greenish glow in the dark looking urine.

Really....freaky.

Will it be enough to get rid of Babs, though? Would it help if I took biaxin with it (like you do when you take Mepron?)

What strain of Bart you have G? And what lab did you use to test for it?

Girlie,

It sounds like you've hit areas of the infection(s) not previously hit. Remember also that Artemisinin can also hit Lyme.

You may know that, upon the advice of a Buhner-recommended herbalist, I modified my protocol quite a bit in early August.

I stopped a large number of the various herbs (16 or 17?) I'd been taking and am now taking larger doses of 6 herbs 4x daily (vs. 3x daily as I'd been doing).

Things were slowly improving until I decided to start Serrapeptase again last week. One cap resulted in body-wide neuro symptoms which is something I never experienced before. I also revisited "buggy feelings" that I haven't had in over a year.

A consultation with my herbalist resulted in his agreement that I bust open some biofilm and that was to blame for the increase in symptoms.

He recommended that I take 2-3 droppersful Dan Shen (Red Sage) as part of my regular dosing.....and as frequently as ever hour to treat acute symptoms. I am thrilled to report that this is working.

I was also advised to take the Serrapeptase every now and again (basically to let my body heal from any released biofilm pathogens before taking it again).

I share this part of my story in the hopes it helps you feel better about what you've experienced.

Girlie said...
Apparently Alinia - isn't sold in Canada...have to get it compounded and according to LLMD MR - it's not as good.

I live in Canada and got Alinia no problem. It's actually made in Canada. Unless I have a compounded one? Not sure what that means.

Mustard Seed is there a reason you suggested BAB2 and not have her start on BAB1 first?

This is the site Pirouette used to get her Beyond Balance - http://spinelifestore.com/beyond-balance/

Mustard Seed said...

Girlie said...
Apparently Alinia - isn't sold in Canada...have to get it compounded and according to LLMD MR - it's not as good.

I live in Canada and got Alinia no problem. It's actually made in Canada. Unless I have a compounded one? Not sure what that means.

Probenecid has to be compounded...my LLND said it's no longer made...unless you specifically ask for it.

I also had tinidazole compounded.


I haven't looked at Alinia yet...that was what I read in LLMD MR 'TreatLyme' book - so he may not be correct.
I will ask my LLND tomorrow when I see her (if I get to that question....my list is building)

Girlie said...

CD3764 said...
Girlie,

It sounds like you've hit areas of the infection(s) not previously hit. Remember also that Artemisinin can also hit Lyme.

You may know that, upon the advice of a Buhner-recommended herbalist, I modified my protocol quite a bit in early August.

I stopped a large number of the various herbs (16 or 17?) I'd been taking and am now taking larger doses of 6 herbs 4x daily (vs. 3x daily as I'd been doing).

Things were slowly improving until I decided to start Serrapeptase again last week. One cap resulted in body-wide neuro symptoms which is something I never experienced before. I also revisited "buggy feelings" that I haven't had in over a year.

A consultation with my herbalist resulted in his agreement that I bust open some biofilm and that was to blame for the increase in symptoms.

He recommended that I take 2-3 droppersful Dan Shen (Red Sage) as part of my regular dosing.....and as frequently as ever hour to treat acute symptoms. I am thrilled to report that this is working.

I was also advised to take the Serrapeptase every now and again (basically to let my body heal from any released biofilm pathogens before taking it again).

I share this part of my story in the hopes it helps you feel better about what you've experienced.

Wow, cd - that's crazy! Maybe I should be adding Dan Shen to my next herb order.
...and how wonderful it's already working for you!!!

Yes, it was crazy. Needless to say, it was also a bit disappointing since I took Serrapeptase throughout my time on Cowden and BioFibrin during my time on Buhner. I don't know if Doctor's Best Serrapeptase is more effective or if my symptom load became so low that I'm now able to identify its effects.

I had been 1/2 tsp (2 droppersful) Dan Shen 3x daily for quite some time and the herbalist had me stop in August. I thought Dan Shen helped with spleen function (significant part of the immune system).

The herbalist told me recently that Dan Shen modulates nerve inflammation.

In addition to now dosing Dan Shen 4x per day, I have had a few instances when I took 3 droppersful every hour for 3 hrs to see what happened. My nerve symptoms totally calmed down!!!

I'm now realizing I was probably too conservative with my dosing. Not everyone needs higher doses but I seem to be one of those who do.

Please be aware that Dan Shen also has antimicrobial properties. Therefore, low and slow continues to be prudent.

Good luck no matter what you decide!!

Girlie said...
Dan Shen - Looking at Woodland Essence order list - is this a good one?

Red Sage (Salvia miltiorrhiza) root, GWC

That's the brand I used until I started making my own tinctures.

I then continue to buy the bulk herb from Mountain Rose Herbs (another Buhner-recommended source). It is a very inexpensive herb, thank goodness.