Bartonella Symptoms??

Still new to this and learning...

Those of you with Bartonella, what are the (or your) most common or persistent symptoms?

I've been dealing with intense muscle pain and twitching in arms and legs- mostly legs... pain comes in waves and moves around. Also new joint pain that does the same, comes on instensely but will fad just as fast. This started after I began treatment. This from the Bart?

Thanks!


Diagnosed Lyme & Bartonella 10/2016 after 1 year of symptoms.
IV immunotherapy with partial Buhner, more to come.

Yes, twitching can be from bart...but it can also be from lyme.

Not only bart affects our nerves...lyme can too.

My persistent symptom(s) nerve pain left side thoracic back area, left arm and hand.
also, nervous system shivers.

brain fog/short term memory issues.

These are some of the symptoms listed in Dr. S' book:

Swelling that looks like edema but does not leave a dent when pressed. This can be around the ankles or feet, in the hands or other places in the body. When it is really bad the person appears obese.

There can also be a thickening of the skin anywhere including the face.

Changes in skin such as pea size brown spots resembling "age spots" and/or loss of pigment with no color - very white.

Crusty moles, skin tags, papules, small round white lumps under skin, tiny red "blood blisters" usually on the torso

Nodules under the skin that you do not notice until you press them and then they hurt. They are often on the outer thighs.

Lumps along the shin bone. Pain in shins

Indentations in the skin where the bacteria seem to have pretty much eaten away the flesh underneath. These will not go away with treatment.

Unusual markings on the skin which resemble "stacked clams" or chicken wire.

Broken veins, spider veins and unexplained bruises.

Psychological changes: more irritation, outbursts of rage, anxiety. Feeling of being disconnected, depersonalization. Lack of motivation. When severe, people have been committed.

Frontal headaches

Feeling that you have a UTI but not testing positive for an infection.

You need to urinate frequently and may even have pain in the bladder.

Hot flashes that may come with a sticky sweat.

Cramps, muscle pain, muscle twitching

Dry irritated eyes

What appears to be stretch marks that are red or purple. They do not follow the normal contours or are in the normal places where stretch marks would be.

Oh no. Now I think I may not have Bart but that my son may have that too.

He has bad headaches -but can't that just be neuro lyme?

He has pain in back (upper back right side)

Pain in ankles/foot and knees.

Throbbing feeling in bottom of feet - but he only had that once.

We both have mood swings/anxiety but so far mild (but can't that just be lyme)

I have had pain in long bone of shin and weird feeling in bottom of feet but haven't had them in two weeks.

Also I would add that I tested negative. I am being treated on symptoms.

I was just coming on to ask for advice from other Lyme parents for bart symptoms!!

For DS definitely it is irritability and anger and it's been worse now that he's in treatment for bart. He is continually getting in trouble with teachers this year for talking back and/or having irritable outbursts towards other students or the teacher and for being argumentative. I'm at a loss at what to do and am sick of getting emails from them. He is great about reaching out to them on his own after we talk about it and advocating for himself because he is generally not the only one at fault when it's between himself and another student, but it's stressful and often we have to reply as well. He has some very valid reasons for his reactions and honestly they aren't usually so terrible but he's not admitting he could do things differently. Sometimes he doesn't even seem to realize what he's done! Part of it is teen brain but part seems to be bart. He refuses to be the first to "tattle" - in fact thinks it's ridiculous that you can even tattle in high school - but then replies in anger and gets in trouble. Teachers don't want to deal with it and he's a strong personality on every level - both in good ways and potentially aggravating ways.

He also has the classic stretch marks mid-spine. His toes and tops of his feet did hurt off and on earlier in Lyme and babs treatment.

I tested positive with Igenex for Bart, IgG. But my non LLMD's didn't believe the test- including a well known infectious disease Dr- and ordered more from labcorp and a specialty lab in Utah. All those negative. Definitely experiencing sx and treating based of the those.
No rash though...

Some great info. Helps to know what others are dealing with and how they treated. Thanks for sharing!

Still trying to cope with the fact the this will be the first Thanksgiving without pumpkin pie... lol

Rikky,

Ok now freaking out. What happened that you went to the ER and WHY would we want to try that - LOL!

I am so worried about my son taking three abx at once when he has never taken abx. My biggest fear is some type of overload.

So curious what happened for you and how they treated you? Thanks.

these are what I have and will take herbs for Bart:

Facial/cheek discomfort below eyes, Bell's palsy on left side of the face,
Indentations in the skin, left side of face .
Psychological changes: more irritation, outbursts of rage.
Feeling that you have a UTI but not testing positive for an infection.

These and the intermittent air hunger are my main lymes and co. symptoms and started taking some babesia/bart buhner herbs in addition to lymes herbs.

PS. Also to add that couple of days ago I had strong tinnitus (like a siren). I usually have sounds in my ears because of otosclerosis but this was stronger and specific and was for a short period.

I am starting to think that Co. needs some more attention as well as Lyme.

Post Edited (Stanislav) : 11/24/2016 3:52:48 AM (GMT-7)

Huddie - Will your son be starting on 1/2 dose of the mino tomorrow?



i hope this last addition isn't too hard on him.

Today has been better than the last couple of days....still trying to decide what route to go...looking at my arsenal of abx...
I was thinking of going back on the Rifampin and either mino or biaxin.

...my recent shoulder - going from minor pain to flaring with severe pain..and then to completely resolve with no pain...and that's been several days now....
makes me think i should take whatever I was taking when my shoulder flared.

Hi Mokes,

My symptoms that may be related to bart:
- red scratch marks that come and go on my torso
- pain in muscle tissue of both arms and shoulders
- some bone pain in hands
- nerve pain in arms
- random bouts of pain in areas of my legs that come and go fairly quickly
- muscle spasms/twitches
- vibrations in scalp and knees (not too often)

Like you, I was diagnosed approx 1 year from onset of symptoms. Have yet to try rifampin, my LLMD wants to make sure we treat everything else first.

Hope that helps.

Mokes,

Hoping one of the Mods weigh in on this because I have heard the opposite. I'm doing what you are doing and not really treating Babs (or Bart which I may have) just treating immunity and Lyme right now.

Feel better.