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Posted 11/26/2016 1:06 PM (GMT 0)
Hi all,

So we are seeking treatment up in New York which has us living in my parents home for a while. My parents use all types of perfumes and colognes and cleaners. I feel like such a pain, but I think it is making me worse. Also, my father builds tables and sells them, however now that winter is here all I can smell is the polyurethane and paint and chemicals. Last night we had all the windows open in 20 degree weather in our space where we live, but I still had one of the worst migraines of my life. I felt as if I was literally exhaling the fumes. When I try to tell them that it bothers me they don't believe me and act as if I'm being a complete pain. My poor husband tries his best to keep airflow but it is hard. I know better and know it is not in my head, but wanted to ask if anyone else experiences this? Also...could this be hindering my healing? I plan to ask my llmd at next appointment.

Thanks,

Leah
Posted 11/26/2016 1:25 PM (GMT 0)
Yes I would have also not believed any of it a year ago but although its far from my worst symptom I do have that and olfactory hallucinations too. Once the nervous system gets hit anything is possible.

Hang in there!
Posted 11/26/2016 1:32 PM (GMT 0)
Lyme patients are sensitive to smells because liver is full of toxins and cannot process additional chemicals.
Posted 11/26/2016 2:49 PM (GMT 0)
Agreeing with the others on this. I had some pretty serious chemical sensitivities off and on.

I would encourage you to increase your detoxing and talk to you doctor. Maybe they could literally write it down for your parents so it's not coming from you, but your doctor???
Posted 11/26/2016 7:14 PM (GMT 0)
Ouch, I feel for you :( I have MCS and live with my parents. A couple of weeks ago my Mom sprayed some heavy duty flea killer all over the house and this week she is literally painting the walls of every single room. Maybe you could get a mask? Seems silly and over dramatic to other people, but I did.
Posted 11/26/2016 7:22 PM (GMT 0)
I have that to an extreme, and it's been progressive but what happens to me is my breathing mechanism shuts down and I have to get away fast because I cannot breath. I have been diagnosed with COPD.

People thought I was crazy and making up things too until I explained to them what I'd read about what is actually happening and it is real.

I am explaining to everyone that odors aren't just something you smell, odors are attached to molecules and while you can't see it, it is a microscopic physical entity that the self-protective action of your respiratory system begins to recognize the 'molecule' odors as poison, and set off a chain reaction to protect your lungs.
Posted 11/26/2016 7:58 PM (GMT 0)
Leah,

YES. I have this to a crazy degree. I have always said I am the canary in the coal mine. My family finally believes me. I could not be in that house.

I'm not 100% sure it's only from a toxic liver. I have had this sensitivity my entire life and I have been an organic, green juice, clean living person for most of my adult life. I have had all types of liver tests and everything is find (all pre lyme, now they may all be horrible). But before Lyme I'm pretty sure I was low on the toxin levels.
Posted 11/26/2016 8:27 PM (GMT 0)
Yeah I understand. I am an artist - at first it was getting allergic to oil paint fumes, so I changed to acrylic. Then I got allergic to that so I went to watercolour. I am allergic now to watercolour paints and something in watercolour paper. I can get a headache staying too long in the household cleaning products section in the supermarket and nothing is open there.
I dont think its good staying in any environment where you are being exposed to chemicals that you are sensitive too. I am certain it keeps you from getting the recovery you need.
Posted 11/26/2016 8:38 PM (GMT 0)
Klwxo95- where should I get the mask? I will try anything. I tried explaining to them that I am the first one a few years ago to love spraying on perfume and slathering on makeup and then going in my garage and staining tables with my dad. But now I am sick and it's awful. Literally last night i thought I might have to go to ER because my migraine and nausea was so bad on top of seeing white splotches. Usually I can deal with the pain but I literally felt like I was exhaling the polyurethane smell.

Julymorning- I'm sorry you have it so bad. I'm thinking we might have to move because I do notice that I get the headache and itchy eyes and then I have chest pain on and off. The migraine was the worst for me last night. I never know if it is the Lyme or maybe if this is something i never thought of that could be hindering my treatment. My father also uses all harmful cleaners like iron out which he mixes with extremely hot water and lets sit. Which my husband who is a Marine and has been injected with anthrax says is probably not the healthiest to clean with. You know it's bad when he is concerned lol. I tried explaining it to my parents about my body and that it's not just the smell...however they don't want to hear it.

Huddie- that is what my hubby calls me canary in the coal mine. Not sure how to make any of this better. I don't want to have to live in a bubble but I wish I could ask people to be a little considerate...just hard when living in their home. I had a building biologist come in to my home in Florida and she told me all the VOcs and Emfs that could be hurting me so we adjusted everything but my doctor down there didn't have a good handle on my treatment so now we are in NY with a good doc but bad healing environment. So don't know what to do. Going to try to buy an air purifier and just seal off our room I suppose. Does anyone know how long or how to get this polyurethane out of me? Lol :(

Thanks again!

Leah
Posted 11/26/2016 8:54 PM (GMT 0)
ArtAngel- I used to do a lot of wood work and crafty things for my home about two years ago. Not nearly as artistic as you but I would notice I would develop allergies or racing heart around the chalk paint and then the stains. My father has made custom pieces my whole life and we always had this smell in the house but now I am so sensitive to it. I think you are correct we probably need to leave if I am going to get better. We spend so much on doctors and then I get worse or go down hill, but I'm thinking I went down hill this time because he moved his workshop inside in the basement instead of outside during the summer and he never ever has the windows open to ventilate. I try telling him to wear a mask and ventilate just for his own personal well being but he doesn't want to hear it. Can't blame him I suppose as he has been doing this for over thirty years. Thank you for your reply :)

Leah
Posted 11/26/2016 10:10 PM (GMT 0)
I know its very hard to get other people to understand how sensitive you can get to chemicals.
I have the same problem in my family.
I have tried masks to filter out the chemicals so I could keep working but they are very specific to which chemical they are targeting and in the end they werent filtering out the the preservatives and lesser known problem chemicals so they just didnt work. It may be worth a try but when you get very sensitive to chemical exposure it goes beyond anything more recognised solutions can do for you. And it comes down to avoidance.
Some kinesiologists have skill thats can help you with allergies. It worked for me in the early stages, I didnt know I had lyme but as time went on with the lyme untreated I got allergic to more and more things.about 10 years ago I did a few sessions with a kinergetics practitioner( a form of kinesiology). the treatment was for salycilate and amine allergies in foods and after all these years it hasnt come back. Now that kind of thing doesnt cut through my issues.....it may be worth a try. They all have different talents and will tell you if they have had success with that kind of thing before.
Posted 11/27/2016 8:24 AM (GMT 0)
I would try Home Depot. You can get very simple masks that cover your face (which I use) but don't work very well. You can also get more complex ones that have filters.
Posted 11/27/2016 1:02 PM (GMT 0)
Chemical sensitivity means that your body is full of toxins and cannot get rid of it, they are just circulating in your body. You should look into Karen Hurd http://www.karenhurd.com/ and her bean diet here water soluble fiber from beans is used to bind to toxins and take them out (you pretty much eat beans thru the day)

The other options is to go to dr and ask for cholestyramine which is a bile secretant and works on the same principal as the Karen Hurd diet.

You should look into http://www.survivingmold.com/ and Dr Shoemaker protocol as most likely mold has something to do with it.

Also look into the infrared sauna and Dr Yu protocol, here is the breakdown of it http://articles.mercola.com/sites/articles/archive/2014/05/04/detoxification-program.aspx

This will not go away by itself, you have to be proactive about it. Detox
Posted 11/27/2016 8:21 PM (GMT 0)
A simple dust mask will not do the trick. You really need a carbon filter mask. They aren't very expensive, less than $10.

I feel for you. I can't even go down the aisle in the regular grocery store that has the cleaning products and laundry stuff. It will give me an instant headache and nauseous.

I smelled what I thought was an electrical fire and called the fire department once. They searched my home and the neighborhood and finally determined that the smell was an 18 wheeler that was miles away and their brakes were on fire. I was embarrassed, but no one questions my nose any more.

I can smell someone smoking cigarettes in a car way ahead of us.

It is not a blessing in my life. Most people wear a lot of smelly stuff and I sure stand back when I talk to them. Especially if they wash their clothes in Tide - oh my gosh, that one is so offensive to me.

My family knows and they are very considerate, thank goodness.

Nothing worse than hugging someone hello and you smell them the rest of the day and night.

This is my world.
Posted 11/27/2016 8:36 PM (GMT 0)
Yes PeteZa it is awful. My husband doesn't question my nose ever! Lol. It's getting horrible though because I am allergic or sensitive to a lot of different things now. Even onions which I wasn't allergic to three months ago. But now Someone will be cooking just one in the oven and I will have to leave the house. Thanksgiving was fun! Lol! I was allergic to garlic already but didn't think onions until a few months ago when I went through a box of tissues and was hard to breathe.

I fear we may have to move. It is hard to share a home with other adults that are set in their ways and rightfully so...I am in their home lol.

The staining and polyurethaning I think is really affecting me. I was looking into buying a carbon air purifier from EL Foust. Don't really have the mone but we are spending so much on treatment and I am thinking this is only making me worse. I asked my father to move the tables outside to let them air out, but he says it is too cold :( so we just have all the windows open in our room and the heat blasting lol. But this is his business so I'm thinking we will have to leave. Sad how this illness seems to affect everyone around me negatively. I never used to be like that.

I know what you mean about the perfume and tide. lol it bothers me too. I will literally taste it and feel like I exhale it for hours lol. The other is Ax deodorant that body spray guys use! Lol my husband calls it ax murderer because it bothers me so much.

Maybe one day it will be better!

Leah
Posted 11/29/2016 11:34 PM (GMT 0)
Hi all!

Okay so we have been airing out the house like crazy people every day. I talked to my llmd and he said this is setting me back so much and I probably need to move. We ordered an air purifier in the mean time for the bedroom. My father says he won't stain or do anything anymore until we leave. I feel so bad.

Anyways here is my question...it has been since Friday that I breathed in all the bad stuff and was violently ill. Last night I started to get a burning nose and throat. It literally feels like I am exhaling fire. Anyone else get this with chemical sensitivities or any idea what this is? It's really really uncomfortable. I feel like I got this before about a year ago and it went away. I'm thinking it is related to the chemical sensitivity but not sure. Can't wait for our air purifier tomorrow!!!

Any help is appreciated!

Leah
Posted 11/29/2016 11:38 PM (GMT 0)
Nothing that extreme but i had a lesion in my hand that looked like eczema. I dropped abx and herbs on it day in and out for months and it would get a little better then flare up again. I tried to explain it to my fiance and she didn't get it. She thought i was talking about my bracelet rubbing my wrist which got me thinking. Took my bracelet off, been healing ever since... Really wonder what it was
Posted 11/30/2016 1:39 AM (GMT 0)
Hmm...That's weird. Probably something definitely in it irritating you. Weird how our bodies become so sensitive while going through this.
Posted 11/30/2016 1:47 AM (GMT 0)
Yeah i don't doubt it. I had that bracelet for years. Never took it off. Worked in chemical labs and everything it was probably absorbing all kinds of things
Posted 11/30/2016 2:38 AM (GMT 0)
Yeah, I react to nearly everything I put inside of me. In between Lyme, candida, possible parasites, and the chemical sensitivities, my diet dwindled down to nothing, and I slowly starved to skin and bones. I finally said, screw it, and just ate what I felt was most safe to consume (not much).

I feel I am in a toxic state constantly from conditions, things I intake, and the elements in the environment. I try to detox, but I don't know. I need to do more. Methylation is a factor, along with all those other things creating toxins.

Definitely do what you can to fix things, I say, but try not to stress over it too much. These things are often such slow fixes, unless you get incredibly lucky with, say, a methylation-related supplement.
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