Lyme symptoms worse with sitting

Hi guys -

First of all, let me thank you all, both moderators and participants for sharing your questions and experiences with lyme.

I am new to the forum and the disease. I have been in pain for almost 2 years but diagnosed with lyme (clinical) with the following co-infections : babesia (microti and duncani) and tularemia. Symptoms include muscle and joint pain (glute, hamstrings, knees, calves, shin, lower back, neck, and shoulders), chronic fatigue, anxiety, air hunger and others - which I understand to be relatively typical for lyme. My current treatment is doxy (6 weeks), atovaquone, and zithromax(4 weeks) and numerous supplements. I have improved and like everyone else, have good and bad days.

I have 3 main questions :

1) Why does sitting trigger my pain almost every time? I understand that the bacteria may be in my upper hamstrings but whenever I try to sit down, it creates hamstring pain which then seems to trigger my pain in lower legs and shoulder blades. Should I view this as a positive because it means that endotoxin is leaving my body? Or am I agitating the bacteria by putting pressure on it by sitting down?

2) If it is endotoxins leaving, what was the pain that I felt before I started ABX treatment when I felt the same trigger from sitting down?

3) Anyone have irritation of urinary bladder? I wake up almost every night because I feel like I need to urinate and if I didn't have this false urge, I would actually stay asleep.

Thank you again for all your help and I wish everyone a speedy and full recovery.

I have an over active bladder sometimes, especially at night, but I take a diuretic for congestive heart failure.

I can't remember if my 2 trips a night to the bathroom was something I did before the diurectic or not.

I do know that at least the Rocky Mountain SPotted Fever bacteria, which I also have, attacks the kidneys. I think since all of our organs are vulnerable with Lyme and co., that covers the bladder as well.

Not sure about the prostate. Have you had that checked out just in case?

thank you julymorning

Hi Jack, welcome!


I am another person who feels worse when sitting down. Mostly in the thoracic area of my back and my left arm and hand. I have nerve pain and that is my worst and most stubborn symptom.
Many other symptoms have left...but that one won't give up.

I wonder if it's because when you're up and moving, the blood is circulating better...that's what i'm thinking it could be in my case.

Also, maybe when we're not sitting, we're busy doing things and it's not on our minds as much...more distraction?