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Lyme Disease
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Posted 12/8/2016 6:29 AM (GMT 0)
So I figured I should start writing down how I have been feeling so I can share with anyone I talk to, doctors/etc. I haven't been diagnosed yet. Does anyone else have symptoms similar to these? Been happening for the last 2 months and priorto this I have never had any serious health issues.
*Anxiety/panic attacks
*Rapid heart beat
*Sweating
*Trouble with concentration and focusing
*overall ill feeling and confusion
*almost feel detached from reality
*digestion issues/sore guts
*headaches/head tension/almost like something is wrapped tightly around my head
*full body tension
*sleeping problems/waking up multiple times
*lower back pain when I wake up/almost feels like my kidneys
*energy loss/fatigue/lack of motivation
*flooding of negative thoughts/like what could be wrong with me
*elevated blood pressure
*constant ringing in ears
*racing heartbeat or at least what feels to be a racing or hard heartbeat
Posted 12/8/2016 6:39 AM (GMT 0)
Copied your list and will comment beside each symptom whether I have or had it:


*Anxiety/panic attacks - had both, panic attacks resolved, mild anxiety still once in a while
*Rapid heart beat - YES- get it when I stand up.
*Sweating - YES- much better since treatment.
*Trouble with concentration and focusing - YES - much better now
*overall ill feeling and confusion - YES - much better now
*almost feel detached from reality - YES- for a few months prior to treatment
*digestion issues/sore guts -NO
*headaches/head tension/almost like something is wrapped tightly around my head - No headaches - but have pressure in the front of head
*full body tension - NO
*sleeping problems/waking up multiple times - YES - much better now - only wake once during night now
*lower back pain when I wake up/almost feels like my kidneys - NO
*energy loss/fatigue/lack of motivation - fatigue - NO...lack of motivation - YES
*flooding of negative thoughts/like what could be wrong with me - YES,YES, YES!!!!
*elevated blood pressure NO
*constant ringing in ears- NO, but I have pulsatile tinnitus
*racing heartbeat or at least what feels to be a racing or hard heartbeat
Posted 12/8/2016 6:58 AM (GMT 0)
Thank you for the response girlie. I never would have thought all these things could be caused by one disease. I can't believe doctors do not immediately test for this once somebody gives them a few symptoms. My heart goes out to all the people who suffer. Like I said in another thread, I wouldn't wish this upon my worst enemies.
Posted 12/8/2016 7:32 AM (GMT 0)
I agree - it's crazy that it's not on the Doctor's radar.

Not many things could cause ALL this.
Posted 12/8/2016 10:34 AM (GMT 0)
I've had every one of those symptoms, although I haven't wondered what was wrong with me for many years now.
Posted 12/8/2016 5:20 PM (GMT 0)
Yes, I have had most of these as well. I think a big part of the problem is that Lyme affects so many systems of your body, and you're sent to a specialist for each system: cardiologist, neurologist, psychologist, gastroenterologist, etc., that you never see someone who sees you as a WHOLE person, just a set of systems. It's awful.

I was shuffled from my PCP to a pulmonologist, to a cardiologist, to a rheumatologist, a neurologist, an endocrinologist, an infectious disease doc, another neurologist, etc., for 18 months until I figured it out myself and saw an LLND for confirmation.

And before I was diagnosed, I was so worried about what was wrong with me, and whether I was going to wake up the next morning. Now that I know what's wrong with me, I worry instead about whether the new symptom I'm experiencing is Lyme, or if I'm maybe missing something important that's NOT Lyme. :-)
Posted 12/8/2016 5:26 PM (GMT 0)
*Anxiety/panic attacks - Definitely had this along with depression
*Rapid heart beat - my scariest symptom because Dad died of a heart attack
*Sweating - nope
*Trouble with concentration and focusing - Brain fog and could not get a whole sentence out of my mouth
*overall ill feeling and confusion - do I have the flu? what is this feeling?
*almost feel detached from reality - gonzo....
*digestion issues/sore guts - only when I was on antibiotics
*headaches/head tension/almost like something is wrapped tightly around my head - horrible head pain!!!!
*full body tension - not so much
*sleeping problems/waking up multiple times - TONS of sleeping probs - took liquid children's benadryl, capful
*lower back pain when I wake up/almost feels like my kidneys - a tad
*energy loss/fatigue/lack of motivation - I was so tired
*flooding of negative thoughts/like what could be wrong with me - cancer, tumors, strokes? thought it all
*elevated blood pressure - got this
*constant ringing in ears - no but had plugged ears, like going up in elevation
*racing heartbeat or at least what feels to be a racing or hard heartbeat - I would be sitting calmly and watching tv and I could feel my heartbeat throughout my entire body. It was like I was one giant heart. Pulse was always high.
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