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What else to consider?

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Posted 12/15/2016 9:47 PM (GMT 0)
I am nearly symptom free. What remains are the pain flares, and the GERD issues, and some short term memory/aphasia issues, cramping of calves when I climb up hills, a bit of fragmented sleep now and again. I am wondering what else I need to target, hit up.

I've targeted Lyme, Bart, Babesia, Fungus, Candida, and the year before last did a parasite cleanse - has been on my list to do another one.

Good news about the CT/angio - it does show a wonky U shaped path in my femoral artery that wasn't there pre-aneurysm repair. I decided to not repair it. It isn't life threatening. In that the cramping in my legs is BOTH legs I am not convinced this is the cause.

My co-worker had leg cramps from thyroid issues.

Two Dr.'s said my bloodworm for thyroid looked fine - but, I'm not convinced.

I guess I am talking myself through this.

Going to look at a symptom list
www.lyme-symptoms.com/LymeCoinfectionChart.html

What I haven't targeted, that might be involved are: brucella, ehrlica, and mycoplasmosis. My blood work was all negative last year for co-infections, so I need to research whether or not blood work is reliable for these co-infections.

Hmmm... I think mycoplasma... my next consideration.
Posted 12/15/2016 9:53 PM (GMT 0)
From what I have seen bloodwork is not reliable for co-infections. If it does show you have a co, you are lucky to have that diagnosis, but I think there are a lot more false negatives.

What I did was I did not quit Buhner's lyme protocol until I was symptom free.

Do you think you may have stopped treatment too soon?
Posted 12/15/2016 9:58 PM (GMT 0)
Erlichia is destoyed most easily, so if you had Doxy or something like that at the beginning, it killed Erlichia.
Posted 12/15/2016 10:15 PM (GMT 0)
Agree - what BBM said about Erlichia. If we treat lyme, we don't have to worry about it.
Posted 12/16/2016 12:39 AM (GMT 0)
Peteza - I am still doing Buhner herbs: Cats claw, Japanese Knotweed, Hottuynia and also doing teasel and greater celandine. Also doing cistus tea and my long list of supplements. Won't stop until I am symptom free. Just wondered if it might be something I am not targeting.

Blueberry - the only anti-biotics I had was a 5 day round of bactrim for a bladder infection, because I wasn't CDC positive on the bloodwork, no access to anti-biotics for me.

Girlie - I will research what bactrim hit up, if Erlichia was in the picture, perhaps the 5 days of it took care of it.
Posted 12/16/2016 6:13 AM (GMT 0)
erlichia can persist and infects the white blood cells , it show up easily in a blood smear ,it causes a wasting syndrome and kills dogs so idk about doxy killing it ...my friend did 8 months of doxy and it still showed up on dna test...
Posted 12/16/2016 6:16 AM (GMT 0)
multi i love how multidimensional you are , the gerd may be hpyori or amebia , alinia and other pharma can be bought online shouldnt let cdc and doc dictate your tx,

ebv cmv babs or proto and like you said MYCO may be directions , this is why i love bvt its gets all of it

consider magnesium oil for cramping and horse chestnut for leg circulation, my fil skipped surgury with this one herb ...
Posted 12/16/2016 1:29 PM (GMT 0)
multi

How about posting those thyroid labs so those of us who know how to interpret thyroid labs can tell you if they are definitely "normal"?

Thyroid-clueless doctors will look at in-range labs and declare the patient "normal" when they are anything but.

And, for whatever it's worth, the advice of the Buhner-recommended herblist I consulted has proven spot-on for me: Japanese Knotweed capsules (vs the tincture I'd been taking) plus higher doses of a few other herbs taken 4x daily (vs my previous 3x daily).

I made the mistake of not attempting to increase my herbs further than the highest recommended doses in Buhner's books and it turns out I am one of "those people" who need higher doses.

Still, your issues could very well be caused by low thyroid and I think you know Lyme is famous for disrupting thyroid function.
Posted 12/16/2016 3:46 PM (GMT 0)
I think Bactrim don't hit Erlichia.

If you want to go herbal route, I read that Buhner recommends Colchicum or Elephanthorrhiza elephantina.
Posted 12/17/2016 12:16 AM (GMT 0)
Multifacted, you sound a lot like me. I can go weeks or months with very minor symptoms, but I get flares of pain.

I had an awesome month and a half with minor lyme symptoms, and a bladder infection that turned out to be unrelated to lyme.

However....I received my Andrographis and red root tincture in the mail...started both of those (in conjunction to Japanese knotweed, cats claw, and teasel) and I started noticing a ramp up in symptoms again, and now I'm dealing with what feels like a big herx or flare up. Full body aches, head ache, stomach pain and lots of cracking in my joints. So I guess I am still full of bacteria, I really don't know when or what it will take to end this. It is so discouraging when you feel better to have it come back.

Curious to know if you tried Andrographis? I added it because Buhner says it is one of best anti-spirochetals, and the other herbs weren't taking care of all my symptoms.
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