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Possible Effective Oral Regimen for Chronic Lyme- New Study

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Posted 12/22/2016 7:36 PM (GMT 0)
I think these are important discussions to have and no toe stepping is happening if we can be adult about this smile Which we are. I value your perspective, thank you for sharing it, and look forward to hearing your hopeful success! Thank you for the kind words. I really do think my mom will be fine as youth and early diagnosis are in her favor. As is quality of care. Likewise stay safe and I wish you the best.
Posted 12/22/2016 8:05 PM (GMT 0)

Girlie said...

saintbaja said...
I did not mean to step on anyone's toes. We can sit here and argue semantics, but that will be fruitless in the end, we all have Lyme, and we all have our own treatment and dilemmas. I wish you all the best, especially your mom, Prislociraptor.


I was only pointing out some information that you didn't see/understand ...that she had indeed healed the first time...but was reinfected.
No argument.

I really didn't see, but i am able to understand it. Also, when I said, "We can sit here and argue semantics" that was a reference to terminology such as "healed" v. "cured", not a literal argument. I think discussions like these are a great way to expand our perspectives.

TLDR:
- I believe Lyme is curable, not only healable, with a standard long term multi drug therapy. I believe current the major reasons treatment fails are because the Borreliosis hides in areas of body that are not vascular and create a protective biofilm. We need a long term drug therapy (and more research to find effective drugs) to penetrate and break up these biofilms, I also believe 90% of those affected will heal with a standard three drug regimen, like TB.

https://www.lymedisease.org/unh-research-confirms-lyme-disease-bacteria-biofilm-in-human-body/

- Others do not believe it is curable, only healable with various treatments. Others also believe the major reason for ineffective treatment are due to the the different strains of Borreliosis and confections and that one treatment will not be effective for everyone, only on a case by case scenario.


Both very valid arguments, with supporting evidence, and the answer may or may not come. Thanks for engaging in dialogue with me, sorry if I came across abrasive. I am currently working on my senior thesis for Lyme, and have come to my own conclusions, so I do have a bias. However, it is great to hear other viewpoints, I will certainly use them in my paper.

Post Edited (saintbaja) : 12/22/2016 1:09:01 PM (GMT-7)

Posted 12/22/2016 8:28 PM (GMT 0)
>>Not to totally dump modern science for sacred chants.

loved this line i wish it worked lol. very good thread thanks for contributing everyone would love to see more of this here.
Posted 12/22/2016 8:31 PM (GMT 0)

saintbaja said...

Girlie said...

saintbaja said...
I did not mean to step on anyone's toes. We can sit here and argue semantics, but that will be fruitless in the end, we all have Lyme, and we all have our own treatment and dilemmas. I wish you all the best, especially your mom, Prislociraptor.


I was only pointing out some information that you didn't see/understand ...that she had indeed healed the first time...but was reinfected.
No argument.

I really didn't see, but i am able to understand it. Also, when I said, "We can sit here and argue semantics" that was a reference to terminology such as "healed" v. "cured", not a literal argument. I think discussions like these are a great way to expand our perspectives.

TLDR:
- I believe Lyme is curable, not only healable, with a standard long term multi drug therapy. I believe current the major reasons treatment fails are because the Borreliosis hides in areas of body that are not vascular and create a protective biofilm. We need a long term drug therapy (and more research to find effective drugs) to penetrate and break up these biofilms, I also believe 90% of those affected will heal with a standard three drug regimen, like TB.

https://www.lymedisease.org/unh-research-confirms-lyme-disease-bacteria-biofilm-in-human-body/

- Others do not believe it is curable, only healable with various treatments. Others also believe the major reason for ineffective treatment are due to the the different strains of Borreliosis and confections and that one treatment will not be effective for everyone, only on a case by case scenario.


Both very valid arguments, with supporting evidence, and the answer may or may not come. Thanks for engaging in dialogue with me, sorry if I came across abrasive. I am currently working on my senior thesis for Lyme, and have come to my own conclusions, so I do have a bias. However, it is great to hear other viewpoints, I will certainly use them in my paper.

Good luck with your thesis...and good to know we have had contributed to your paper.... smile
Posted 12/23/2016 9:23 PM (GMT 0)
I would love to be able to say that I believe that chronic, long standing Lyme was completely curable, without concerns of relapsing. Will it be possible in the future? Maybe, but not with current science or treatments from what I've seen.

Even in my case, while I did heal from nearly every symptom after being infected and untreated for over 40 years, my body was left in a state that it should not have been surprising that my body remained in a weakened state for years - and I ended up with severe adrenal and thyroid dysfunction, and eventually getting reinfected. For me, lesson learned, and I realize that my body will likely need to have support either for a long time after healing from these infections - or for the rest of my life. But I'm okay with that - now. lol.

I won't use the term 'cured', simply because there is no way to prove it. The testing is so poor that we can't even diagnose most early cases of Borrelia, forget diagnosing the majority of the chronic cases - and the long standing chronic cases? Well, testing seems more of a cruel torture than any kind of help. There are some interesting and hopeful hints and tips about testing starting to come out now - but we need GOOD testing - otherwise we still can't trust those tests no matter if they say we still have Borrelia or not. For me, it's not semantics, but reality.

Does a 'cure' exist? Yes, but not one for everyone. What works for one person doesn't work for another, so although one person may be cured (even from chronic Lyme), another can mimic every step, and have it not help at all, or only get some help from it.

Now, this does not mean that I don't believe it will be this way forever - we have a pretty great group of 'citizen scientists' in the Lyme community, and I believe that if the doctors and scientists don't come up with what works, then someone in the Lyme community will. But many of us can't wait for that. I've been near death enough times already, and have no desire to just hang on until someone can find that silver bullet treatment(s). So, I keep working on things myself - just as everyone else does here. We share successes, and failures in an attempt to help others as well as ourselves.
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