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Doxy and Rifampin experiences?

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Posted 1/6/2017 9:52 PM (GMT 0)
Any recent success? Is this adequate for Bartonella? Lyme?

600mg/day rifampin
100 mg 2x/day doxy

I've read a bunch of posts about the two and it serms(as with everything with these lovely disease) some do have success. The most recent I found was from this past summer by robby viera but I couldn't find a follow up.

Getting my primary to do this was like pulling teeth so I hope it helps. Still can't afford an LLMD so trying to piece things together.

Thanks

LG
Posted 1/6/2017 10:00 PM (GMT 0)
The doxy isn't a high enough dosage. You need 200 mg 2x/day. I think the rif is the usual dosage.


I don't think there is any such word as adequate when it comes to Bart, or Lyme.

We've had some folks on here come back after 18 months and still have symptoms. 18 months of abx, that is.

Get the Doxy dose upped, and it might be a good start. Then if you and your Dr. aren't wanting to treat until 2 months after your very last symptom has disappeared (and I mean all of them), then before you end your abx treatment, look into some alternative treatments such as herbal, or some of the lesser done treatments of rife, bee venom, or ozone exchange, etc.


Am pretty sure your primary isn't going to cooperate like you need, so it's time for you to give serious thought to what else you can do. Herbs can be done the cheapest, and I think would cover more concerns that bee venom, but Bluelyme would be able to answer that better.
Posted 1/6/2017 10:13 PM (GMT 0)
I did this combo when first starting Bart treatment this is a potent combination to hit Bart. Another one that's growing in popularity is Rifampin with Biaxin. Doxy hit my chest issues pretty hard when I first started it (I never took it before until combining with Rifampin) so yes this is a good combo to start with. I'd personally give it 3 months to see how you do. If the herxing is too much you can pulse it (e.g. 4 days on/3 days off).
Posted 1/6/2017 11:05 PM (GMT 0)
And you can order both online if need be ....riffy is something ..love hate ..keep an eye on liver values
Posted 1/6/2017 11:20 PM (GMT 0)

Rikky1 said...
I did this combo when first starting Bart treatment this is a potent combination to hit Bart. Another one that's growing in popularity is Rifampin with Biaxin. Doxy hit my chest issues pretty hard when I first started it (I never took it before until combining with Rifampin) so yes this is a good combo to start with. I'd personally give it 3 months to see how you do. If the herxing is too much you can pulse it (e.g. 4 days on/3 days off).


You only treated with 200 mg a day Doxy?
Posted 1/6/2017 11:51 PM (GMT 0)
yes july. when you're dealing with chronic infections you don't necessarily have to throw the proverbial kitchen sink at it. sometimes its too much for your liver and detox systems to handle (i've been on combo abx's for almost 2 years)
Posted 1/6/2017 11:58 PM (GMT 0)

Rikky1 said...
yes july. when you're dealing with chronic infections you don't necessarily have to throw the proverbial kitchen sink at it. sometimes its too much for your liver and detox systems to handle (i've been on combo abx's for almost 2 years)


Ok, but I'm not the only person here that has said repeatedly 100 mg 2x day isn't high enough dosage on Doxy.

LLMD recommended dosage on doxy isn't exactly throwing the kitchen sink at it.


What might have gotten you over your infection might not necessarily work for everyone else.

ETA: I asked you only because I wanted to clarify the Doxy dosage amount you took, in case you didn't focus on the lower dosage the op stated.

Post Edited (julymorning) : 1/6/2017 5:01:02 PM (GMT-7)

Posted 1/7/2017 12:04 AM (GMT 0)
Sorry I wasn't clearer. Doing some herbals as well. Just only curious about this particular regimen as my primary (who is becoming increasingly more aware of Lyme and co) actually suggested this combo to me. Thanks for the input. I'm really bad organizing my thoughts and getting things down so I appreciate the help.

Ummm... is helpful a better word? I guess with such an array of variables and complexities with all these diseases finding the words to use some times is hard.

I'll ask about increasing the doxy. If I can't is worth taking them? Not sure if that is the right question.

Herbs I'm taking - GD botanicals, CSA, kudzu, red root

As far as treating, I've done this long enough and know that a month isn't enough but like I said I'm piecing things together as best I can with no income, and hopefully will try to go month by month and if there is improvement be able to convince my primary to keep going. He is generally pretty open. Like I suggested checking my adrenals and even thyroid again and he was like sure. Not the best but at least he is willing. This also makes me question him somewhat because I feel like I shouldn't have to suggest this stuff, or maybe he should come up with it himself? I mean, who is the doctor here.
Posted 1/7/2017 12:23 AM (GMT 0)
got it july. yes there are some who throw 'double dosage' at these bugs. my first LLMD did it and i believe it helped get over my lyme/babesia symptoms early on. my current doc takes it slower using normal dosages and pulsing. there are many roads to the wizard of oz as they say ;)
Posted 1/7/2017 8:14 PM (GMT 0)

Rikky1 said...
I did this combo when first starting Bart treatment this is a potent combination to hit Bart. Another one that's growing in popularity is Rifampin with Biaxin. Doxy hit my chest issues pretty hard when I first started it (I never took it before until combining with Rifampin) so yes this is a good combo to start with. I'd personally give it 3 months to see how you do. If the herxing is too much you can pulse it (e.g. 4 days on/3 days off).


Rikky1 - can I ask what some of those chest issues were? How long before you saw a difference?
Posted 1/7/2017 8:27 PM (GMT 0)
the chest issues are really hard to explain but i'll try. it feels like there's a layer sitting over my chest that is irritating the area. at first i thought it was my heart but its not but it feels like it is. i get the 'chest thumping' where it feels like my heart is pounding harder than usual. when i first started treating this the pain was a dull throb but with waves of sharp pain. it made me cry many times. when i backed off the abx combo it got better (probably cause i wasn't killing/stirring up the bugs as much).

it took about 4-5 months for the sharp pains to go away. for the last 7 months its still there but its a dull throb which is better but still sometimes i can't sleep at night.

another thing i noticed pretty early on is when i lay down on my back it gets worse no matter how mild/severe it is throughout the day. when i roll on my right side it gets worse on my left side even more worse.

my own uneducated guess is the blood vessels around the chest area are infected and inflamed from the bugs residing there. when i lay down it exacerbates it maybe cause i'm stretching that layer of vessels over my chest cavity out cause more acute pain. i think its either nerves or maybe the muscles that are infected.

sorry for the long winded reply but that's the best i can explain it. i've had all the tests done to check my heart and apparently its fine.

the tough question is what bug(s) are causing it? it started a bit before i started taking rifampin/cipro but really blew up when i started that combo so to me its most likely bart and maybe lyme. don't think its babesia (which i also have).

does that help? how about you?
Posted 1/7/2017 9:03 PM (GMT 0)
Very helpful. I don't usually have the pain. It comes and goes. The pressure is definitely always there. Sometimes in the middle of my sternum and floats to other places. It's just very unsettling. Since I've never tested positive for Bartonella or Babesia I'm always worried it's some thing else but my doctors don't think so.

Anyway I appreciate the response.

Post Edited (LG13) : 1/7/2017 2:19:14 PM (GMT-7)

Posted 1/7/2017 9:09 PM (GMT 0)
I also did only 100 mg. 2x a day of Doxy.

I may not be a great example since I'm not healed yet.

I cannot tolerate abx and was about 99 lbs. when I first got sick so it knocked my socks off. I still have no idea how I finished it.
Posted 1/7/2017 10:57 PM (GMT 0)
LG13 that sounds like Babesia I've had that chest pressure and this new thing (well a year old now). I would be very careful believing you don't have co-infections. My chest thingy above didn't manifest itself until over a year after symptoms and 9 months into treatment. Sometimes what happens is when you get one infection load down the other one is opportunistic and pops up.
Posted 1/7/2017 11:01 PM (GMT 0)

Rikky1 said...
LG13 that sounds like Babesia I've had that chest pressure and this new thing (well a year old now). I would be very careful believing you don't have co-infections. My chest thingy above didn't manifest itself until over a year after symptoms and 9 months into treatment. Sometimes what happens is when you get one infection load down the other one is opportunistic and pops up.

I've had the. Best stuff for a while now. Yeah, it's all just very confusing. I have throats issues too. Not necessarily a sore throats just something there. Seems like it's mostly on my right side. I read a post you wrote dealing with theist issues I think.
Posted 1/8/2017 2:14 AM (GMT 0)
my throat issues last year were either a reaction to the cefdinir (it stopped when i went off it) or it was causing greater candida growth irritating my throat (cephalosporins encourage fungal growth). never could figure out which was the case since i basically stopped taking this class of drugs.
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