Body feeling "on fire" and all pain flared up, is this a symptom you recognize?

Folks,

This happens to me a lot. First my symptoms (https://www.healingwell.com/community/default.aspx?f=30&m=3770741&g=3771487#m3771487)

My most specific areas of concern is my neck pain, shoulder tendonitis, arm pain, achilles pain. They hurt daily. However on occasion randomly the whole body heats up. All pain feels stronger, worse and "on fire". With both acute and dull aches at once, which is weird.

I once thought gluten activated this pain, so I got rid of it 3 years ago, but this also happens if I fast or seemingly for no reason whatsoever.

Is this a Lyme thing? Some other thing? Anyone have any indication what this is?

As a reminder all my blood work is awesome, no automimmune diseases or any neurological factors.

I dont think this is nerve pain. This is not tingling, I had nerve pain before in my legs and this is way different. Its deep and horrible muscle pain.

Interesting. Perhaps I should use a different term, but I cannot think of one. Just hurts and hurts a lot, but I have chronic pain so pain is constant. Just that these flares always make my life extra miserable.

I really havent found a good way to detox Girlie Nothing seems to help. What are some of the most effective/popular methods? What do you do?

Btw, you been treating for 3 years? Abx? Are you better?

So what I am confused about detox, is that it implies dieoff. I just started on herbs again but generally I take nothing at all, but yet I still get these flares all the time. So what am I exactly detoxing?

Epsom salts really have no benefit to me whatsoever, nor does liver detox. Supposedly charcoal does a good job, but again why...

The charcoal mops up the toxins that are in your digestive tract and removes them.

Hi I know Lyme can cause the burning/heating/flushed symptoms. Had it in the beginning, but without pain just intense heavy numbness.

But if it isn't Lyme ,have you asked a neurologist about ruling out "Complex Regional Pain Syndrome"?

This can cause severe pain, stabbing pain, dull pain and burning pain. But burning is one of the main things most of the people with it feel. Just in case.

I know this sounds different like it wont work, but I found with chronic ,very severe pain if I just let it come... and let it go... instead of bracing or tensing against it, I could get through it. Also biofeedback can help. Using your mind to focus on breathing and also on healing.

I pray you get some relief from your symptoms, Sincerely, Jo

CRPS is not easy to get diagnosed.
When I discussed with the Neurologist, I could tell he wasn't very knowledgeable on the subject.
It's best to seek out a Neurologist that is well-versed on the subject.

I decided to treat as if I did have it. There aren't a lot of treatment options for CRPS...one being aggressive rehab.
I started working on my 'trouble ' area - with daily rehab (on my own) and still do exercises to continue to desensitize my upper left thoracic back area, left arm, hand, etc.

also some anti depressant medicines in low doses can help with chronic pain from CRPS , Savella, cymbalta. If not Lyme giving you these pain issues, not only a good neurologist but a Rheumatologist or pain clinic might offer some answers.

Sorry for coming in late on this, but I noticed something in your description in your post that you linked to. You described it this way:
" My biggest source of pain is neck, traps, back of head, headaches from neck and a lot of cracking/creaking/noise from the spine when I move my head around. Secondary is shoulder and bicep pain and achiles tenderness."

This actually sounds to me like the meningitis symptoms I get from time to time. The pain and burning is incredible - and very little helps but time for me - and of course treatment.

Is this a possibility? Especially since this doesn't seem to connected to treatment or any particular die off, as you said above:
" I just started on herbs again but generally I take nothing at all, but yet I still get these flares all the time. So what am I exactly detoxing?"

It's not meningitis, but a symptom of Lyme that mimics it. I've had it come and go for 45 years, so yes, 20 years is a likely scenario.

"When Lyme disease first affects the nervous system, one may see symptoms of meningitis, encephalitis, or cranial neuritis.

a. Meningitis is characterized by headaches that fluctuate in intensity from mild to severe with or without associated nausea, vomiting, light sensitivity, neck stiffness, or pain on eye motion. If a spinal tap is done at this time, the spinal fluid (CSF) will usually show elevated white blood cells and elevated protein. "

www.columbia-lyme.org/patients/ld_lyme_symptoms.html

Those other symptoms would be associated with either Neuro Lyme or Bart.

That's what Lyme does - it doesn't produce visible damage, it attacks the nerves. The only way to determine if it's affecting those nerves is to do a nerve punch biopsy, I believe. Most of us just rely on our symptoms and skip the nerve punch biopsy since we are in enough pain as it is. When there is no other clear sign of damage, injury, or disease, and the person has Lyme, it's generally safe to say that something like meningitis symptoms, shoulder/arm pain, and achiles tendon pain popping up kind of in the same time period is from Lyme.

Many of us here suffer with the very same issues.

Hey rkd80,

I too get that burning sensation, I describe it to my Dr as "My skull is on fire" mainly because it happens to my head. It also effects my legs and arms, sometimes my extremities like my toes or fingers. At its worst it's kept me awake for 12-14 hrs at a time due to the intentness of them, fading and intensifying over the hours.

I believe these are classic Bartonella symptoms if I'm not mistaken. Bartonella likes to infect ligaments, bone marrow and even enjoy tendons etc. However it can also cause burning sensations from the nerve damage it can cause. The longer it is in you the deeper they will populate into the various bodily tissues, based on nutrition etc from the bugs.

If there is nothing warm or hot touching your skin, the cold reality is it is going to be nerve oriented, or dementia oriented. What is causing it can be a list of things, but it is more than likely the infection.

Also if you have been infected for awhile with little/no treatment, remember the bugs are competing with each other as well on some levels. They will die off in waves when new offspring come out, causing flaring of symptoms, even without treatment. Over time our bodies naturally detoxify the system and remove toxins with the resources available, causing symptoms to calm until a new wave is born.

You can help your body by trying to get your systems back in order to deal with these toxins faster/more efficiently, this can reduce herx reactions from general treatments. There are many good ways to detoxify your system. I would recommend doing it as the longer toxins hang around, the more likely they are to be re-absorbed and processed again; causing more pain and damage to body tissues.

There is many ways to help detox; I'm not the most experienced in it so I won't recommend and ways beyond what others have already mentioned. I highly recommend starting some detox with the others!

Edit: I also wanted to give a shout out to lemon water. Probably my #1 as it is very easy to incorporate and is very enjoyable. Milk thistle seed is another good one, you can mix it into virtually anything that can take a powder as I find it flavourless, even your double lemon water.

Good luck and let us know how it goes

Post Edited (Asmoline) : 1/16/2017 4:22:38 PM (GMT-7)