Back Again and Would Like Someone To Talk To Please :(

Hello To All,

Not sure if anyone remembers me on here, But I went by the username "solo" and was on here for a brief time about a year ago. I was diagnosed with Lyme Disease In 2014 and am still living this nightmare. While many symptoms have cleared completely (Thank God!) I still have several debilitating symptoms that have not gone away and recently have gotten some new ones (so sad). I'm 25, African American, Male. I was in grad school and had to drop out because it just got really bad. I used always smile and people would tell me all the time "your always happy." I used to have the heart of a child that always like to run around and joke and play and now I have the heart of an ICE QUEEN.

These Are

1. (Debilitating 24/7 Chronic Tension Headaches With What Feel Like Crackling Of The Bones In My Head)
This Has Been Going On Since 2015 And Believe It Was Doxy That Caused Severe Damaged, Or I Think It Happened After My Spinal Tab (Shouldn't Have Gotten That, But I Was Desperate) Or It's just infection based as I feel Like Antimicrobials help a little but still feels like it's not easing up at all.

2. Insomnia (am using cod oil and that seems to help)

3. Constant Hunger even after eating. This is just started recently and I believe it is due to parasites because when I use anti-parasitic herbs, it tends to ease up for a little bit then goes back to full blown hunger mode. This causes me to wake up in the middle of the night to eat something or else I can't go back to sleep I also probably have some hypoglycemic issues as well.

4. I just came down with some god awful satanic flu which and I have this scratchy kind of throat thing that WILL NOT LEAVE ME. IT feels phlegmy and dry/scratchy, and a little sore and it won't ease up (ugh!)

I just feel like crying and jumping to of my window and just want someone to talk to right now please

I shouldn't have left the site cos I really need a support system as my friends just don't get and I have Been feeling a lil suicidal lately. (winter is not my favorite time of the year, I need that sun)

Hi Girlie,

Thank you so much for responding!

Right now I'm not under the care of any health care provider. (I have seen numerous of Doctors, Specialists LLMD's, Alternative/Holistic Practitioners) I'm not new to Lyme and Co-Infections. Actually, I've Researched Night & Day And Consider Myself To Be Pretty Knowledgeable On These Infections And All Types Of Treatments/Tricks/And/Secrets.

However I am meeting with My new primary care and dentist on the 31st (same day appointments) and will start from there. I live in Maryland so I have the luxury of having Johns Hopkins for most medical services.

I'm Just Here Cause I'm Just Feeling Really Down and Sad and Just Want To Cry. It's been over two years and I still have so many debilitating symptoms. I just want to give up and need words of encouragement.

So, are you currently not treating?

Go ahead and cry....I find it actually helps, rather than holding it in.


I know what you mean about the length of time...I've been treating for over two years now...and it seems like forever.

I just gotta keep at it...we can't give up...

Welcome back! Sorry you are feeling so crappy! But you are in good company here, we all understand.
Please please seek some help for your depression if you are feeling suicidal. You are worth the care and help! Do mention it to your dr coming up and get in sooner if those feelings get worse.
It is definitely compounded by the time of year. Ugh! I hate winter. I get those constant headaches and that alone is enough to wear me down.
Something that helps me with mood and sleep is kava forte by standard process. I take two an hour before bedtime and it's helped me with sleep quality and moods.

hey dude i can relate i just wanna throat punch winter lol
also for me its brutaly fantastic to watch my symptoms get worse now that ive started treating with herbs. even with all the detoxing im doing. there are many times i wish i could back to before i was dx with als and then lyme cuz once that happen stuff went south. but im throwing the kitchen sink at all this.
glad you're back.

ChickNorris,

Thank you for your response.

I do have the Lyme Suicide Number In My Phone Just In Case. (Never Had To Use It) But Sometimes When You Have Bad Days And You Get New Symptoms And You Feel Extra Crappy You Feel Like Giving In. I'm Just Glad That I Can Vent With You Guys On Here Cos I really don't have no one else to vent too Sadly, my friends don't get it and I don't want to vent to my parents because they barely get it.

Randy Elchner

Thanks for responding! Haha me too. Winter used to be my favorite season and now it's the absolute worst!
I couldn't imagine a doctor telling me I had ALS. I'm guessing it was misdiagnosed and it was actually Lyme?
It is in a way brutally fantastic lol. I just want to feel better!!!!! agh

yep it is a misdx depending on who u talk to. lyme symtoms are identical to als ms parkinsons and so on depending on co infections and your perfect storm.

Randy Eichner,

I'm so glad it was a misdiagnosis! yeah, my doctor did a spinal tab to rule out ms. I'm glad you were able to get the right diagnosis.

Jennydancingfish,

Thanks for responding. Who's the best LLMD in the world!?!? I wanna know! lol

Hi SolohatesLyme,
Welcome back! I'm so glad you came back. We can definitely offer you support!! And, yes, please do go ahead and vent! Who better to vent to than those that REALLY understand? We are listening!

You said something in one of your posts above that made me wonder - "Anyways nothing that I know will touch these debilitating 24/7 tension headaches. Apple Cider Vinegar works to bring it down a notch sometimes."

Have you been checked for yeast/fungal issues? If ACV is helping, continue to take it. ACV not only helps detox the body, but helps treat yeast issues (not sure about fungal issues, though it would make sense).

And yes - those suicidal thoughts do pass through my head too - how can they not? I've been fighting these infections for many decades now, and after my reinfection, they came back to me yet again. I will never attempt it again, but that doesn't mean those thoughts aren't there on those bad days where I'm really struggling and really don't see much good in me sticking around.

So, let us help carry you a bit, and stick around to get continued support. Since this isn't your first go round, I"m sure you have some words of wisdom to share as well!

Bdavis,

Thanks for the reply and Im sorry about your Dad! Do you have Lyme as well? And wow you would think that one of the world's best hospital could do a better job than to just prescribe amoxicillin. I hooe your Dad's knee get better soon.

Traveler,

You always have words of wisdom which is why I decided to come back! Symptoms come and go quickly and im soooo tired of always trying to explain to my family how i'm feeling day to day. I'm not sure if I have a yeast problem. I've tested negative for candida and have done the "spit in the water test." However I am convinced that I'm dealing with parasites and am working on that right now and see where that leads me. If I can just get this chronic 24/7 tension headaches out of my head I would probably be at 70 or 80 percent functioning!

Blueberrymuffin,

I must say i love and envy that name lol. Cos i want a blueberry muffin, but I can't have it! Lol. Currently apple cider vibegar works great to help me sleep (dont ask me why cos i dont know lol) i also use cbd oil and thats helps as well. Thank you for the reccommendation. When my insomnia was really bad I used to take a mixture of herbs that included passion flower, i also used to take melatonin, 5htp, klonopin, trazadone, ativan, etc. Lol Thank God I never over dosed and am off all of those things.

Duhzse,

Thank you for those kind words!! I really needed that!!

Hello! Welcome back. I wasn't here when you first became a member. I get how you feel. I've been this way a while and that's why I'm back on this wonderful site to get advice, tips. We can't give up! We fought this long already!

Thanks for all of your responses guys!! I do feel better today both mentally and physically so I'm happy about that