MRI shows multiple brain lesions

I had lesions in my CT scan. I don't have MS!! My doc wanted me to go to a neuro and I did but when I said I had headaches the neuro said, "Lyme does not give you headaches." I should have walked out right then.

I was polite - but I never went back for his recommended MRI's, etc. I went to an LLMD and got an Igenex lyme test. I was not Ingenex or CDC positive, but I knew I had lyme. What else could give a very healthy person all these symptoms???

I don't have headaches. But I know I have Lyme. I've been down the neurologist road before, too. In fact, in 2009, the neurologist was "99.9% sure I had MS and that I didn't have Lyme". But after finding my LLMD and starting on IV abx, I had immediate improvement. Do you have a lot of lesions PeteZa? Are they active? I feel like he is writing me off to MS. And I'm a little upset about it.

Traveler - yes I have reminded him. He knows I get upset when he talks of MS. He examines me and says that my physical examination doesn't at all seem MS like. Whatever that means. When he sent me to the eye doctor, I think he was expecting to see optic neuritis, but there was nothing physically wrong with my eye. If you have the brain lesions and it's not from Lyme, what are they from and how do you know?

He thinks I should consider MS treatments. That's what we talked about last time I was there when he suggested LDN and said, "I have mother daughter patients - one with Lyme and one with MS and they both take LDN and have had great results." But I don't want that. In 2009 thru 2012 - I was treated with Abx only and had no problems at all. Honestly, I had a bout with Melanoma and couldn't process all of these things wrong with me at once, so I deemed myself cured from Lyme and focused on dealing with the melanoma. It was tiny and I had a couple of lymph nodes removed and one other mole removed, but that's all done and now I go to a dermatologist every 6 months. Anyhow, things creeped in from 2012 to now, little by little, but so slowly that I didn't notice until a bunch of things went wrong "suddenly". I guess I can go to the neuro to appease my LLMD but I know the neuro is going to insist on MS. I just know it.

Loutucky - I am on my 5th week of Mepron for Babesia treatment and it was hell up until these past few days. I had to skip one day completely and took only at night for a couple of days and then I went back to 2 tsps twice per day. My sex drive, which has been gone for years and years made a reappearance yesterday. I've never talked about my SD with my LLMD. I also didn't tell him I am depressed, very short fused and that I have had a few panic attacks where I can't breath these past few months. I now realize those point to Babesia and that I should have been more honest, but I thought I was slowly going crazy or that I had a brain tumor. I was in total denial of my symptoms.

Mokeyho, I started Malarone two weeks ago and today I am going to my primary doctor to make sure I don't have the flu. I haven't had an illness or temperature above 97.2 in years. On ibuprofen it is 100 and I am achy and congested. I'm thinking though that it could be a babesia herx because of the head pressure.

I have suffered for years with anxiety and panic. Two weeks on malarone and much of the anxiety is gone. I also have a short fuse and no sex drive.

The herxing has been awful and I am only taking it once a day and trying to build up to twice a day.

Good Luck to you!

He is worried about the lesions and that they are active. I think they are active because I needed treatment. It seems to me that if a bunch of things go wrong, a lesion or lesions might be a result of that. I don't know why he would expect a clean brain when I have so many issues - that same issues that I had in 2009. I feel like a neuro is a waste of time at this point, but I'm afraid that he could refuse me treatment if I don't listen to him. I have no idea if he would even do that. I really didn't want an MRI. He wrote it for me in September and I didn't want to get it because I was sure it would be bad considering all of the symptoms I was having. And then in December, a bunch of other brain problems occur so he told me to go, which is why I did. But I don't care what my brain shows. If my symptoms are gone with abx treatment then it seems to be a moot point. I think it would make more sense to go and have an MRI once I've been treated for sometime with abx and with no symptoms.

mokeyho, I just dug out my ct scan results and there is not a count on there. My doc was not worried about it, so I was not worried.

Mokeyho, I hope you and I both improve. If this isn't the flu then I'm pretty sure it is a herx. I just can not accept an MS diagnosis. Everything has a cause and I think mine is multiple infections.

pugmom1 I had one spot on my cervical spine in 2009, but only four lesions on my brain at that time. I had o bands in my fluid too, but the LLMD said I didn't have MS. It's all so confusing. LLMD felt the cervical spine lesion was "MS-like" but he didn't press it back then. It's the "multiple-lesions" that's bugging him, but how many is multiple? They should count these things. Sheesh.

monkeyho - MS and Lyme look pretty identical. If it was me, I wouldn't mess with a neuro again. They will likely upset you and tell you that you don't have Lyme. Or that it is cured and you now have MS. There is no cure for MS so I would keep attacking the Lyme and Babesia. I agree that your lesions are there because you have not treated long enough.

I was reading awhile back about a new MS drug (RHB-104) that is doing well in clinical trials - and get this - it is actually a combo of antibiotics. It contains Biaxin, Rifabutin (similar to Rifampin) and Clofazimine. So antibiotics are working for a lot of MS patients because it can be an infection! They are using it conjunction with another MS drug that (Rebif) that is an anti-inflammatory.

Also, on a side note, I believe mold exposure can also cause lesions on the brain. Just make sure you are not in a moldy environment.

There aren't very good treatment(s) for MS...from what I read when I was having that ruled out.


K07 - very interesting, maybe they will finally 'clue in' that MS could have an infectious cause.

Ms treatment is immunosuppressive meds ...charles mraz pioneered treatment of ms with venom of honey bees ..peoples lesions miraculously cleared after treatment with this ancient medicine ..

The has been anecdotal stories of people lesions clearing up with treatment .
wheldon a pathologist ,his wife had ms (so they said ,and began empirical treatment of c . pneumonia with multiple antibiotics in a pulsed fashion for 3 years ..she is walking and painting again ...the treatment for stratton or wheldon protocols is similar to lyme and or bart ..one even uses rifampin ..see www.cpnhelp.org

the offending pathogen of what dr elena frid calls infectious autoimmune encephalitis is irrelevant imo...that is the neurologist that i would see as she is lyme literate ..
my theory of why bee venom works while she uses ivig to "retrain the soldiers"(immune sx )is just that it give it a new target while the othwr components of the venom actually clear spirochetes baet myco or cpn or whatever microbe its is ..

one component of alzheimers and als is the glial cells and amyloid plaque that is uses to block of blood flow in the brain which is what is imo both the protective nature of the immune from said pathogens and the cause and solution to memory loss brain fog and psychological malfunctions of a complex organ we dont even understand ...neurologist might as well be gerbils , except the aformentioned