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Posted 1/24/2017 7:38 PM (GMT 0)
Long story, short. I've been sick for over 10 years. I have been bitten but I don't know if I had a Bull's Eye rash or not, because of the location of some of the bites, but I do remember being sick after one. My PCP has been suspecting Lyme even thou the ELISA test came back negative, I am going next week for the Western Blot (I don't think it's covered under my insurance).

Anyways, I had bronchitis a few weeks ago and she put me on Levaquin, I couldn't take it because the next day, my stomach was killing me so I stopped but noticed the day after that, I started feeling achy again, it went away. I bought some Samento to test it on myself. I started with a drop yesterday morning (in water) and by 5:00 I started feeling really tired, almost drugged, I had body aches and my throat started hurting. I went ahead and took another one this morning. I have been really dizzy and feel like I can't get enough oxygen. Am I herxing? If so, would this mean that I do have Lyme with co-infections? It was so bad that I told myself that I cannot do this! I have no choice but to work so I will just have to live with Lyme or die from it. Sorry for the long post, I just can't believe that one little drop could make me feel so bad. Thanks for any replies.
Posted 1/24/2017 7:47 PM (GMT 0)
Welcome Grove.

Not everyone got a bullseye rash. I don't remember if I did or not. You're exactly correct...often we get bit in places we can't see on our bodies, or under hair.

It is awesome that your PCP is acknowledging Lyme.

It's possible the Levaquin caused a die off of the Lyme bacteria, and the toxins released gave you that reaction. So yes, that is often a good indicator with the Samento as well.

We like to encourage all new members to read over our intro at the top, "New to Lyme?...start here"
There is an excellent section on how and what and why to detox to remove those die off toxins, etc.

Pay particular attention to the symptoms list, you may find some specific symptoms to the various co-infections that will be familiar to what you're experiencing.

www.lyme-symptoms.com/LymeCoinfectionChart.html

Post Edited (julymorning) : 1/24/2017 12:50:21 PM (GMT-7)

Posted 1/24/2017 7:55 PM (GMT 0)
Thanks Julymorning,

I read over most of it and I have sort of a plan of action for detoxing. Last night I did a dry brush and soaked in Epsom Salt for 20 minutes. I felt a little better, I have some other's I will implement, I just didn't think it would be this hard with one little drop of an herb. I was going to add in Colloidal Silver today but I'm holding off. I'm wondering if I should hold off all together until I go for the Western Blot, Thank Grove

edit: I didn't see your attachment, thank you for adding it, it looks very helpful
Posted 1/24/2017 7:56 PM (GMT 0)
Welcome to our community, Grove!

I think you should start a good detoxing program...before you add in anything to address the bacteria.

- make sure you are taking something to support your liver - eg. Milk Thistle extract
- support your gut - take probiotics
- drink at least 8 glasses of water daily.

You can do all those right away.

Then add in a new detox every few days...gradually building up to a multi-method regimen.

Here is a link to great detox ideas:

www.tiredoflyme.com/detox-methods.html

When you do take the samento - just do one drop a day until you're able to handle that...before you increase.

You will want to find a Lyme Literate Dr. (LLMD) for evaluation and treatment.
We can help you with that...just start a new thread titled: "Looking for LLMD in/near_______" and fill in the blank.
Posted 1/24/2017 7:58 PM (GMT 0)
You can do the detoxing - right away..don't need to wait until you do the WB.

But, don't add in too many detoxing methods too soon.

The colloidal silver has antibacterial properties - so don't add that in...if you're planning on doing the samento.

Stick with detoxing for several days...then you can try the samento again...but not bothe samento and colloidal silver.
Posted 1/24/2017 8:02 PM (GMT 0)
Girlie,

I do have a LLMD in my area, I plan on meeting with her once I get the results of the Western Blot smile
I will take your advice and slow down, maybe every other day. I have saved your link to my favorites, I've been getting prepared for the fight, I just don't know if I can do it while working full-time and if I can't work, I can't pay for treatment and my car is on it's last leg, ugg sorry didn't mean to whine.
Posted 1/24/2017 8:14 PM (GMT 0)
Welcome to the group. It's nice that your doctor is willing to entertain the idea of lyme.

Having a diagnosis of lyme is a bitter-sweet experience. Most people feel relief. Finally, an explanation for years of unexplained symptoms. At the same time, treatment is tough.

But you can work with your doctor to adjust treatment to where you can tolerate the side effects. My doctor wanted me to stay in the hospital for at least 6 days for abx IV. I can't take that time off work, so we went with oral abx. It's taking longer, but I have to work.

Don't be discouraged. It's hard, but it's doable.
Posted 1/24/2017 8:20 PM (GMT 0)
Don't worry about whining Grove, if anyone deserves to, it's us with these infections.

So feel free to whine whenever you need to, the support you will get here will make you feel soooo much better!

(And the rest of us less consumed by our own whining, lol.)

Post Edited (julymorning) : 1/24/2017 1:31:20 PM (GMT-7)

Posted 1/24/2017 8:26 PM (GMT 0)
Lol, thank you julymorning smile
Posted 1/24/2017 8:27 PM (GMT 0)
Welcome!!!
Posted 1/24/2017 9:30 PM (GMT 0)
Welcome to the forum!!!
Posted 1/24/2017 10:50 PM (GMT 0)
Hi Grove,

Someone is always here for a hug of support and answers. 😊

Welcome!
Posted 1/24/2017 11:36 PM (GMT 0)
Welcome ...you may have been floxed? It can happen with 1 dose ....or could have bad bartonella or cpn infection ....
Posted 1/24/2017 11:56 PM (GMT 0)
Welcome - In case it helps, when things i took were too strong my doc had me dilute them into water and take a sip once a day and build up from there. 1 drop to a pint, but to make a fresh water once a week. Super sensitive here : )
Posted 1/25/2017 12:12 AM (GMT 0)
Hi, welcome to our community!

The others pretty much covered everything, so I just wanted to say hi.
Posted 1/25/2017 3:01 AM (GMT 0)
I had a similar beginning of lyme story. At first the docs knew I had a bacteria infection. My GP, I believe secretly suspected lyme (but of course wouldn't be open about it in the main stream medical community).

So he prescribed Levaquin. After taking it my symptoms got worse. At the time I didn't know I was herxing or what herxing was (I didn't even know I had lyme). But in hindsight it was clear what was happening.

It's kind of clear you were experiencing die off from it.
Posted 1/25/2017 3:02 PM (GMT 0)
Thanks so much everyone for your kind words. I've spent the last day reading through all the information on here that was kindly posted by the moderators, this is a lot to take in. Thanks for the idea of diluting the Samento more, I am going to try that. smile
Posted 1/25/2017 4:01 PM (GMT 0)
Hi Grove!
Welcome to our community! I'm so glad you found us.

I'm a little late in welcoming you, and I see that most of the information you needed has already been posted, but keep asking questions!! That's a lot of why we are here! We will help any time we can.
Posted 1/25/2017 4:06 PM (GMT 0)
Welcome Grove....

If 1 drop is too much for your right now, you can put that 1 drop in 8 ounces (1 Cup) of water and divide it into 4 doses. That way you are taking 1/4 of a drop. You can do that 1/4 drop for the first day and so on.

Let's make sure you are not confusing 1 dropper full to one drop. One drop is literally only one drop falling out of the dropper.
Posted 1/25/2017 5:48 PM (GMT 0)
Petza,

That sounds like a really good idea, I am going to try that and yes I am being very careful to make sure only one drop (not a dropper) goes in the water. I am taking the day off of Samento today to see how I would feel, I'm not achy or dizzy, but I still have my usual nausea, joint and muscles pain and everything that goes along with the disease. Last night I did another dry brush and took a hot bath with Epsom Salt and a little bit of Peroxide for about 15 minutes and I felt a little better and I'm drinking a lot of water today. I will try your idea in the morning, thanks so much!
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