Does the full moon effect you??

If so...How?

And...

As treatment progresses, do the effects subside?

I'm not affected by the moon.

I am affected by both the full and new moons. The new moon killer headache lasts longer ( 6-10 days) but is not as severe as the full moon. I have been trying to get rid of the constant head pressure since July 2015 with no success.

Count me in as one that suffers when the full moon comes around -again!! Ugh! When I was really sick, I had issues when the full moon and the new moon came around, so at least I don't have that back too! The amount of time that it lasts for me has also gone down - it used to be a 3 days before and a full week after for the full moon, although the new moon was kinder to me - it only lasted 2 days before and 3 days after. Now it only lasts for about 3 or 4 days total.

I generally have an increase in most of my symptoms, but an increase in pain levels always accompanies the full moon now.

I try to pay attention to when the full moon is supposed to arrive each month and when I can, I stay home, rest extra, and detox extra to get through.

AKsorewalrus said...
Most people who have overcome fibromyalgia will say, "Oh, it is still there (lurking) but it is under control." If you remove all the underlying conditions that cause it, fibromyalgia will appear to be in remission, but it will flare under deep stress again. The damage that is done to the brain, to the brain stem, in extreme fibromyalgia cases (discovered in cadavers brains at Harvard) cannot be cured.

Okay, that is according to medical science. I also believe in the body's miraculous ability to heal itself, so what's not to say that beating Lyme will cure fibromyalgia in you, if your Lyme is what triggered it to begin with? In my case, FMS is genetic weakness (or strength) and was triggered long before the Lyme.

This is beginning to sound like the "chicken or egg" debate.

Well, in the people I'm talking about - they don't have any symptoms...and one of the ones I'm thinking of - it has been years.

Fibromyalgia can only be diagnosed by looking at symptoms, correct? No test will confirm it.
So, how are we distinguishing fibromyalgia...from other pain that lyme causes?

As far as chicken or egg...these people didn't have fibromyalgia until they got lyme...with a constellation of other symptoms as well.

For me, I didn't have the tender 'points' - so I was not diagnosed with fibromyalgia, but I do have pain...and I think some of it is from the CNS.
I am hoping the pain will go when I am healed. I do have days where the pain is gone for most of the day...so my thinking is that if it can be non-existent for all those hours...then it can be gone for good.


Well, that's my story....anyway...


Sorry for the hijack of this thread!!!!

AKsorewalrus said...
Most people who have overcome fibromyalgia will say, "Oh, it is still there (lurking) but it is under control." If you remove all the underlying conditions that cause it, fibromyalgia will appear to be in remission, but it will flare under deep stress again. The damage that is done to the brain, to the brain stem, in extreme fibromyalgia cases (discovered in cadavers brains at Harvard) cannot be cured.

Okay, that is according to medical science. I also believe in the body's miraculous ability to heal itself, so what's not to say that beating Lyme will cure fibromyalgia in you, if your Lyme is what triggered it to begin with? In my case, FMS is genetic weakness (or strength) and was triggered long before the Lyme.

This is beginning to sound like the "chicken or egg" debate.

If the fibromyalgia comes back - that is most likely because the lyme has come back.

As for the Fibro - that was a diagnosis that I have carried much of my life - that and chronic fatigue. I had 18 out of 18 trigger points positive for reaction. No one ever took it any further than that, but as has been said, the only treatments were to 'control symptoms'. Not easy when it's really Lyme disease. I was told that I was in good health - for a 90 year old - while I was in my early 20's.

I surely won't try to tell people that their Fibro isn't real - I know from first hand experience that those that usually get this diagnosis DO have those issues, but what I don't believe is that it starts for no reason. I don't have any proof, other than Lyme (because that's where my searching took me), that there are underlying conditions, and the medical establishment is just fine with "syndromes" with no causes - but I'm not. The body doesn't just suddenly feel more pain for no reason.

They told me that I had a very low sensitivity to pain. Really? Everything (and I do mean everything) in my experience has told me that I have a high tolerance for pain. Not many kids don't go to the doctor to get an X-ray of their foot when they break a bone - and yet I discovered that as a child I had broken nearly every bone in my foot. I never saw a doctor, because it didn't hurt bad enough for me to go see one as a kid. I had to have an xray of my foot done when I was pregnant with my second child because I dropped a hydraulic jack on it and the swelling was incredible! (LOL!) So because I was pregnant and it was a difficult pregnancy, I told my doc about it. He xrayed it and was amazed to see that I had already broken nearly every bone in that foot (remodeling of the bone), and that I clearly had a new break that was starting to heal already. There's goes the theory that I have a low pain tolerance - and there are many other examples of that too.

As far as 'incurable' conditions being healed, I've had two of them - Hashimoto's and psoriasis - both thought to be autoimmune and incurable, yet when I healed from Lyme, they healed as well. Those are the only two conditions that I had been tested for and had either labs to back up the diagnosis (Hashi's) or the obvious skin symptoms (psoriasis). Others like Fibro, CFS and such that didn't have labs that could back up the diagnosis have healed as well.

Denikeef, mine was the same. Three days before and the actual day of the full moon, I was fine.

BUT.... now that I am in remission I don't notice the moon.....

Coinkydink???

AKsorewalrus said...

Girlie said...

AKsorewalrus said...

You and I are REALLY not in disagreement, just looking at fibromyalgia from different perspectives. Even that article (which I had already seen and read) is supporting BOTH our perspectives.

I have been looking for a cure for fibromyalgia for years, and have had nothing but time on my hands. *lol*

Oh, but we are in disagreement. Like I said, I know people who had Fibromyalgia and when they healed from Lyme disease, their Fibro symptoms were gone. Their symptoms arrived along with their other lyme symptoms...after their infection from a tick bite.

If you're looking for a cure....have you thought about lyme disease treatment...as your possible cure?

Did you look at the link I previously posted?

/www.psychologytoday.com/blog/why-can-t-i-get-better/201312/are-your-fibromyalgia-symptoms-due-lyme-disease
Dr. Horowitz, as you know is a highly regarded Lyme Literate MD.

No, and I do not agree that we are in disagreement *lol* You are trying to negate 50+ years experience I have had with fibromyalgia, and that will not happen, and not really listening to what I am saying. I think you might be having a knee jerk response, this thinking you know what I am saying, but not quite getting it. *lol*

Yes, I read that article LONG before I arrived on this Forum. It is what motivated me start researching Lyme's. However, I had fibromyalgia long before Lyme's, nearly my whole life, which is comprised (in a nutshell) of an over-active survival or fight/flight response to life on every level. Fibromyalgia is part of the natural communication system of our body; how it becomes known as fibromyalgia is when the body is overwhelmed with underlying problems. It is what responds when we are exposed to disease, toxins, bacteria, viruses, etc, but it is NOT the disease. It is basically the function of the hypothalamus / brain stem to communicate with our conscious mind about something that is occurring to or within the body. This is why marijuana works so well for fibromyalgia cases, because of how many endo-cannabinoid receptors are in that area of the brain, the hypothalamus / brain stem.

However, CHRONIC MYOFASCIA PAIN DISEASE (what I believe to be caused in part by Lyme's, which is diagnosed with fibromyalgia in a smaller subtext) does not respond well to marijuana at all. The myofascia supports the secondary or autonomous nervous system (ANS) The myofascia is everywhere - top to toe - and even inside our brain, it holds our lobes together, and our bones and organs. It is referred to as the ground substance of the body. It is myofascia problems that cause migrains behind the eyeballs, and all kinds of pain in the body that cascade around causing nausea, IBS, and all those other peripheral symptoms we associate with fibromyalgia.

All this has been observed, researched and studied across the board from the time I have spent in patient forums, 10 - 15 years. This is what I now think, with this new information about Lyme's - the Lyme bugs like to hide - and I think they like to hide in the myofascia, which contains the secondary nervous system. And this is what makes some FMS/CMP cases chronic and acute, and may be why SOME people get such profound relief with Lyme's treatment. I would like to be counted as among one of those cured with Lyme's treatment, but I do not know. I have had fibromyalgia my whole life. I could have been exposed to Lyme's earlier than I think (thirty years ago), as I was raised in a wilderness (wild) setting with trappers and subsistence lifestyle, and I had dogs /cats that occasionally brought home a tick. I had a pretty strong immune system as a child, though. The problems really escalated after overexposure to ticks in WV when I was nineteen. I see fibromyalgia and Lyme's as two different conditions that influence or antagonize each other, not the same disorder. The lady doctor and medical researchers I mentioned above, also agree with this.

I am not saying your fibromyalgia is from lyme. But, I am saying it is a symptom of lyme. Maybe you have another cause...I'm not arguing that.
You see them as not the same disorder.
So, wouldn't it be the same as saying that the arthritis from lyme is separate? ...and the dysautonmia?...and.....brain fog....etc..

You said you count yourself as healed from lyme disease.. but in another thread you mentioned having flu-like symptoms on a regular basis - including swollen lymph nodes, fever, chills...etc and also a pain or herx reaction.

Those symptoms sound like you need more treatment.

"It is not the doctors fault I suffered alone so many years. Eventually, you begin to realize that your soul CHOSE this experience, and presented the supreme puzzle and challenge to you to figure it out."


Really?


Okay, I'm done with this.