Positive Lyme Again - Most recent bloodwork

I've been dealing with Lyme for almost 3 years now. I was first diagnosed in November 2014 and was given doxycycline for 6 weeks. I felt a little better with the initial treatment and after I stopped, my symptoms came back with a vengeance. I was put on doxycycline another time for an additional 2 weeks and it didn't work. I then tried natural protocols that are supposed to get rid of the Lyme bacteria. I felt herxing but didn't feel better. I was also given Zithromax but it gave me side effects so I stopped.
...
Almost three years later, I've been from doctor to doctor and no one was able to figure out what was wrong with me. When I would get retested for Lyme it would come out negative, but recently, my latest bloodwork showed positive for Lyme. I had an extensive bloodwork done and a few other things came up too. I also have high calcium levels in the blood, which my doctor is suspicious that there is also a parathyroid problem going on, and hormonal imbalances. Since the summer I also have been getting frequent swollen glands on the left side of my neck. They've been happening once a week on average but sometimes more. My doctor recommended a 10 day detox program with a grain free diet. I've never detoxed before, so I'm wondering if this may help with my symptoms. Last year I tried doing a grain free and no sugar diet and it didn't help so I'm skeptical about trying it again for 3 weeks. Any recommendations?!

Hi ACF,
Welcome to our community! I'm so glad you found us.

​If you haven't ​yet​, it would be helpful for you to start with reading through the thread at the top of the forum titled,"New to Lyme?...Start here!!", as it is packed full of important information, symptom lists, helpful links and pdf's, how to detox when one has these infections, information on probiotics and much more.

​ And, here's another good place to find helpful detoxing routines: ​http://www.tiredoflyme.com/detox-methods.html​​

Most doctors are of very little to zero help with these infections. You will have to find a doctor that has had "extra" education on these infections from ILADS (International Lyme and Associated Diseases Society). They aren't miracle workers, but they are our best chance at good treatments.

For information on finding a​n ILADS ​(International Lyme and Associated Diseases Society)​ trained​ Lyme Literate Medical Doctor(LLMD) in your area, you will need to enable your email option in your profile in order to receive any recommendations, as we don't allow doctor's names and contact info to be posted on the forum for several reasons. You can enable your email option in your profile, under 'edit profile'. Be sure to click the submit button to actually save your preference.

​You can send me an email by clicking on my screen name or the small blue envelope under my screen name. I may have contact information for some LLMD's in your area as well.​ ​Please include your state and area that you would like to find a LLMD in and I will see how close I can get to your location.​

You can start a new thread titled something like "Looking for LLMD in the ​​
(insert the nearest larger city & state) area". Members can email you about the LLMD's that they see in that area if you have your email enabled. We don't allow doctors names to be posted though.

You can email the Tick-Borne Disease Alliance at
​[​​url]​[email protected]​ for LLMD referrals

You can go to The Lyme Disease Association and search for LLMD's 3 times in a month. You have to register first. Here is the link:
www.lymediseaseassociation.org/index.php?option=com_content&view=article&id=277&Itemid=74​​


ILADS has their own referral system as well:
ilads.org/ilads_media/physician-referral/


​ ​
And www.LymeDoc.org

You will want to find an ILADS trained doctor, as ID Docs (Infectious Disease Doctors) believe Lyme is hard to catch and easy to treat, and don't believe in the reality of chronic Lyme. Go to the ILADS site to read the new (2014) Treatment guidelines to get you started on your healing journey: www.ilads.org/lyme/treatment-guideline.php

I tried allicin garlic supplements, cordyceps, circulation p, adrenal health supplements, licorice powder, omega 3 supplements. The licorice and omega 3 actually gave me side effects so I had to stop

I am going to start the grain free diet and detox this week. I am being optimistic that it'll help me feel better. What happens if it doesn't work?

You may or may not notice much from the diet change, but it will set you up to tolerate treatments for these infections much better.

Keep asking questions!! The learning curve for these diseases and how to heal is really quite steep, and it really helps to be able to lean on those that have been or are going through this to gain a better understanding of what you are doing and why.

Welcome acf ...the thyroid and hormone stuff is lyme too.. consider bee venom treatmwnt and rife ....sounds like coinfections of babesia and bartonella were not addressed...consider the dna connecions test ..

curious did you consult with Zhang?

Post Edited (bluelyme) : 2/5/2017 1:03:37 PM (GMT-7)