Those of you who have a LLMD LLND

Curiosity question..

I know when we are first diagnosed after probable multiple office visits, we are so relieved to find someone to treat us, clinically, if needed, test us for things suspect, and basically believe in us!!!! We are not crazy after all!

As time passes, and forever reason, maybe it's not being as patient as we should be, we dive into Dr. Google, websites, or boards such as this to compare pretty much everything from symptoms to tests or just for general support.

Along our path of discovery of things we never thought we would research, things that would turn our lives upside down, we absorb alot of information we take with a grain of salt. Some things may resonate with us, and we can apply them to our situation. Sometimes it works....

OK getting to the thought and question.

Do you take these "discoveries" to your doctor to discuss before trying them on your own? If so, are your proactive ideas embraced?

Do you sometimes feel as though you have "out grown" your doctor, as they may seem as though they have hit the ceiling for your care and you leave appointments with big ??????

Those of you who self treat, do you do this because it is what you prefer to do?

I have no idea why the idea of this post came to me...too much time to think I guess 😉

Purrrsiankitty said...
Curiosity question..

I know when we are first diagnosed after probable multiple office visits, we are so relieved to find someone to treat us, clinically, if needed, test us for things suspect, and basically believe in us!!!! We are not crazy after all!

As time passes, and forever reason, maybe it's not being as patient as we should be, we dive into Dr. Google, websites, or boards such as this to compare pretty much everything from symptoms to tests or just for general support.

Along our path of discovery of things we never thought we would research, things that would turn our lives upside down, we absorb alot of information we take with a grain of salt. Some things may resonate with us, and we can apply them to our situation. Sometimes it works....

OK getting to the thought and question.

Do you take these "discoveries" to your doctor to discuss before trying them on your own? If so, are your proactive ideas embraced?

Do you sometimes feel as though you have "out grown" your doctor, as they may seem as though they have hit the ceiling for your care and you leave appointments with big ??????

Those of you who self treat, do you do this because it is what you prefer to do?

I have no idea why the idea of this post came to me...too much time to think I guess 😉

I tried that with my Internist, who was relatively new to me (since mid 2014). I thought he was fantastic, willing to sit for as long as it takes, not a clock watcher at all.

Willing to test me for Lyme when I appeared to be matching my clinicals to my claims. it was an Elisa lab though and only showed RMSF.

He surprised me with a very negative reaction to my internet findings and attempts to 'tell' him what I'd learned.
Now I know from here I shouldn't have been surprised, this is typical more times than not.

Many docs are of the mind that reading things on forums, groups, sites on the internet are less than useless and absolutely the wrong thing for us to be doing.
End of that idea for me.

I've had the same question so thanks for posting it!
I don't run things by my llmd because they go through the front desk and don't get answered.
He.only sees me every 3 to 6 months anyway. Honestly though I couldn't support too much more. Too expensive!
He was instrumental in supporting what I told him I needed for my parathyroid issue though, and I will always be grateful for that. And I could not have done the initial abx without his help. But now that I have moved on to herbals and more than the researched nutritionals blends that he sells, I am having more doubts.
I can fund more than 5 weeks of acupuncture, which is working, for the cost of 1 llmd visit, which had plateaud.. ..

julymorning said...
Oh, I see now you said LLMD or LLND in your title. that excludes me, so never mind my answer.

. Actually read down...2nd paragraph from bottom..
Call it an after thought ☺

*"Do you take these "discoveries" to your doctor to discuss before trying them on your own? If so, are your proactive ideas embraced?"
As I learned more and more, yes, I did take them to my practitioner - but by then I was no longer using a LLMD - I was seeing a TCM doc that I was helping to learn more so she could treat me.


*"Do you sometimes feel as though you have "out grown" your doctor, as they may seem as though they have hit the ceiling for your care and you leave appointments with big ??????"
Yes, this is why I left my LLMD - he "couldn't" see that I was in serious herxing and it was harming me. The day I told him that I had to stop, I started having seizures, random passing out, severe stuttering issues, severe anxiety attacks daily and soooo much more. Herbs have always been something that I respond to better, so I chose to move over to herbs at this time. The trouble was, back then, there was only one herbal protocol that I could find online - but it happened to suit me just fine, and was why I healed.

*"Those of you who self treat, do you do this because it is what you prefer to do?"
For me, I self treat because I have no other choice. I would LOVE some help with this "stuff". But, there are no herbalists that are either knowledgeable enough, or willing to learn anywhere near me, unlike the one that I used the first time around. She had to move out of state several years ago to help take care of her parents - so I couldn't even whine and beg for her to stay!!!

I love my ND and she's been wonderful BUT there are times that we disagree....remember it's my body we're dealing with here. Sometimes she makes her case and sometimes she doesn't, but she is ALWAYS willing to discuss and find an outcome that we both agree on. I've also brought things to her attention that I felt I needed or wanted to explore and she's always open to them. I am very fortunate to have an innate sense (guided by angels? who knows?) of the next steps in my treatment and I'm even more fortunate to have a doc that is willing to help me with this journey.

I've never been very good at taking orders or depending on others and this has translated to standing up for myself as a patient and making sure I get the care I feel I deserve and need. I'm just lucky enough to have found a doc who is pleased to have a patient that is invested in her own healing and not offended. That also tells me she's a great doc.

Best of health to you all,

Jenny

Idk if i believe western approach . I see folks who see dr h and dr j and are still sick ...original llmd said i would have to live on abx...next one said we have to get it out of every cell...
the people stories of alt quackary are laughing all the way to wellness..so i take from camp a b and c ...trying to trust what is left of my instinct ..something is telling me 1 yr of iv abx is enough for now ....only on doc i know tecommends bvt and one hbot sooo when i asked ctmed center ,she said more than one way to skin a cat