Can anyone give me advice to help my son? Please

Hi guys, I haven't been on in a while. Treatment seems to be getting worse for my son.

He has late stage lyme (probably seven years). Been treating since early November.

Eight weeks Mino/Zith/Mepron -then Malarone.

Two week break.

Today began week three of the 2nd, eight week protocol, which is now Mino/Zith/MC-Babs 1 and Tox-Ease from Beyond Balance and Artemisinin (he hasn't begun the art. yet)

He is nauseous every single day. He is hearing noises in his head (he describes it as yelling), he's phobic about being in a car, eating, all kinds of things. Trouble sleeping, up alot in the night (so I'm up in the night).

Today he said he thinks he is depressed and he doesn't want to live if everyday he feels like this. Please know that we talk often, and he said it as a conversation not a present concern. I take these things very seriously since I lost a brother to suicide. I don't think it is that at all.

I just need to do something to help him.

How do I know if he has something that is keeping him from healing like mold?

I need to know exactly what tests to ask LLMD for.

Also how would I know if the meds just aren't working. I don't see a difference in him but maybe too early. He now has knee pain, arthritis type pain in his hands, head pains, withdrawn, doesn't want to leave house at all.

Sorry so long but I'm in need of help.

Hard getting him to detox. He won't do AC it makes him sick. He only does epsom salt baths, detox teas, ASG, Dandelion, Tox-Ease.

Thanks.

And sorry you and he are going through this. It does sound like a babs herx. Definitely check into mold though to be sure it's not making things worse.

Thank KO! Appreciate it - so a Babs herx can feel like this? The other thing is only carbs seem to make him feel better - which makes me think the abx are hurting him.

I hate this so much. It doesnt' help that he cant' go out or go to school and inside with his mom ALL DAY who also has Lyme. Well at least I understand.

Also...maybe lithium orotate...it's a mineral. Dr Klinghardt really likes to supplement with lithium orotate. Could look into it for his mood. All the toxins and everything make it really hard to deal. Real Time labs test as mentioned is a good one too

Leah2013 said...
Also...maybe lithium orotate...it's a mineral. Dr Klinghardt really likes to supplement with lithium orotate. Could look into it for his mood. All the toxins and everything make it really hard to deal. Real Time labs test as mentioned is a good one too

This would actually be part of the treatment mentioned in the Link I shared with you before, Huddie. But you have to highlight the link and then click on "go to...." for it to work.

www.publichealthalert.org/kpuhpu-a-major-piece-of-the-puzzle-in-overcoming-chronic-lyme-disease.html

Post Edited (julymorning) : 2/6/2017 7:36:31 PM (GMT-7)

RealTime lab test will tell you if he's got mycotoxins present but the problem is, is your body doing a good job of expelling them (hence the presence in urine) or is it hanging out in your body? it's a semi-useful test but the more important question is are any symptoms tied to mold? hard to say but it sounds like you're just dealing with bug die off. i'm sure he has lots of these little buggers running around and delayering the onion so to speak takes a long time unfortunately.

Agreed about maybe the pediatric llmd maybe being necessary. Huddle it sounds like either he needs an llmd who a.) handles herxing and symptoms better like a more symptom alleviating approach as opposed to just die off or b.) a more gentle herbal approach.

It just sounds like his symptoms need to die down from the herxing.

I'm in the same boat as you. Love you guys very much even though I've never met you and your son but I find your sons symptoms so very similar to mine. I know this isn't forever for me or him okay.

(((Hugs))) Hope you can get some rest.

Mepron and malerone deplete q10 and cause the deep deep blues ...stop those meds give him liquid q10 ..and consider alternate babesia tx...also mucuna bean extract will give dopamine since his gut is not ...

let him know it does get better ...last year i was also in the same space .
Doing the same thing and expecting different results is the definition of something something
Also good 4 goose, good 4 gander ...are you doing meds ? Or herbs

Hi jenny missed ya ...i know thos meds work by doing that mechanism. .artmesia ,quina ,rife, bee venom sida and golden thread all use other means ..cell lysis maybe needed to get them all imo
coenzyme q10
Wiki
Coenzyme Q10, also known as ubiquinone, ubidecarenone, coenzyme Q, and abbreviated at times to CoQ10 /ˌkoʊ ˌkjuː ˈtɛn/, CoQ, or Q10 is a coenzyme that is ubiquitous in the bodies of most animals. It is a 1,4-benzoquinone, where Q refers to the quinone chemical group and 10 refers to the number of isoprenyl chemical subunits in its tail.

This fat-soluble substance, which resembles a vitamin, is present in most eukaryotic cells, primarily in the mitochondria. It is a component of the electron transport chain and participates in aerobic cellular respiration, which generates energy in the form of ATP. Ninety-five percent of the human body's energy is generated this way. Therefore, those organs with the highest energy requirements—such as the heart, liver, and kidney—have the highest CoQ10 concentrations.

There are three redox states of CoQ10: fully oxidized (ubiquinone), semiquinone (ubisemiquinone), and fully reduced (ubiquinol). The capacity of this molecule to act as a 2 electron carrier (moving between the quinone and quinol form) and 1 electron carrier (moving between the semiquinone and one of these other forms) is central to its role in the electron transport chain due to the iron-sulfur clusters that can only accept one electron at a time, and as a radical-scavenging antioxidant.

Nausea can be due to the effects of abx on stomach. Give him bone broth, it is great for the gut.

C4a is a good indicator of mold as well.

jenny, could you please share more info about it being an indicator?