Lyme numbness due to peripheral neuropathy

Hello, my mother was diagnosed with neurolyme disease a few years ago after continued numbness and weakness in her legs. Diagnosed through an MRI and Igenex test. She has taken several things for the lyme and even switched doctors after the first year.

The second doctor also screens for mold. A second Igenex test said she was better but the leg symptoms continue to get worse. BTW, she does not have diabetes. Last summer she did Rocephin IV until she started having pain and fevers each day after the injections. The second doctor says that she doesn't have the lyme anymore.

After taking chlorella for several weeks she had a small improvement in her legs. So, the doc said that indicates to her that it is mold related instead of lyme.

Does anyone have an opinion? My mother says that she is wheelchair bound. And, I believe her.

Thanks.

Igenex can not tell you if you're better... the only measuring stick for improvement is symptoms abating.. is peripheral neuropathy a side effect of rocephin? If not worsening is a good sign she's still infected as it indicates a herxheimer. Anyways it doesn't have to be "mold or Lyme". It can easily be both. We are ecosystems of microorganisms. Ecosystems usually collapse under simultaneous synergistic pressures not one isolated event. Mold specifically can produce a number of immunotoxins which can precipitate a latent Lyme infection in theory. Molds themselves can sometimes be invasive and hard to detect. Push forward on both fronts

gotJesus? said...
Hello, my mother was diagnosed with neurolyme disease a few years ago after continued numbness and weakness in her legs. Diagnosed through an MRI and Igenex test. She has taken several things for the lyme and even switched doctors after the first year.

The second doctor also screens for mold. A second Igenex test said she was better but the leg symptoms continue to get worse. BTW, she does not have diabetes. Last summer she did Rocephin IV until she started having pain and fevers each day after the injections. The second doctor says that she doesn't have the lyme anymore.

After taking chlorella for several weeks she had a small improvement in her legs. So, the doc said that indicates to her that it is mold related instead of lyme.

Does anyone have an opinion? My mother says that she is wheelchair bound. And, I believe her.

Thanks.

An Igenex test will not show she is better, unfortunately.
it sounds like the Rocephin IV reaction (pain and fevers) were a herx.

Is her Dr. a LLMD? I'm thinking she need a new one. Make sure it is a Lyme Literate Dr.

She has mostly taken minocin, supplements, Rocephin, samento, banderol, benicar, lumbrokinase, clyndamycin, and doxy, I think.

With regards to Igenex, when I say better, it's because the numbers went down. Compared to the first test, the doctor said it was the highest he'd ever seen.

The thing about the neruopathy is that she doesn't have pain, only numbness. She does have restless leg which goes away with constant use of liquid B12.

I think the doc is LLMD and treats a lot of lyme patients. I thought the Rocephin reaction was a herx, but we couldn't get in touch with the LLMD doc, so the hospital kept her several days and told her she needed the port out. When the LLMD finally called and agreed and it was removed.

She is currently off the abx, but takes other things and focuses on the chlorella since it seemed to help.

I just spoke with her and she says the leg issues have plateaued. I'm concerned about the antibiotics and really want her to do naturals at this point.