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For those who are Gluten-free...

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Posted 2/10/2017 3:25 PM (GMT 0)
A few questions:

Did you eliminate gluten as part of a detox, or basically because of the Lyme and/or co-infections?

If you've never had a problem with gluten, but it was a recommendation as part of a protocol, is it OK to have some gluten? Or must it be eliminated entirely?

I'm not a huge bread eater, and much of what I eat is pretty straightforward. But I do crave the occasional cookie or slice of pizza. I've never had a known issue with gluten, but as part of my pre-detox it was recommended that I eliminate gluten. Just wondering if it's an all-or-nothing type thing where if you eat a little its as bad as eating a lot.

Thanks.
Posted 2/10/2017 3:54 PM (GMT 0)
I went gluten free after my LLMD suggested it. I hadn't had any problems with it that I was aware of. After being totally gluten free for a couple of months, I reintroduced it and found that I was really sensitive! I think that I must have been sensitive to it before, but because I ate it regularly, I thought my symptoms were either part of everyday life or just from Lyme. If you're just starting to go gluten free, I would suggest going totally gluten free for at least a few weeks to get it out of your system. Then try some and see how you react.
Posted 2/10/2017 4:19 PM (GMT 0)
I eliminated gluten years ago because my son developed fructose malabsorption so we cut out FODMAPS. Anyway, I found that in eliminating gluten and then reintroducing it in myself, it was a huge trigger of migraines. This was all before I knew I had Lyme. Anyway, gluten molecules are quite large so it takes a few solid gf weeks to clear your system of it. Another thing is it breaks down into sugar, specifically it has a higher ratio of fructose to glucose. We all know sugar is no good for us. I am sure that's why most LLMDs recommend removing it.
Posted 2/10/2017 4:51 PM (GMT 0)
Hi njfillet,

I'm like you, when I finally got into my LLMD I had to do a 30 day prep for treatment which included no gluten, no sugar, no dairy.
I'd never been sensitive to gluten but like you I'm not a big fan of breads and pasta or cookies or cake (I'm the Corona, chips and hot sauce person lol)

So when I did finally fall for the flaky croissant I only noticed I was really gassy. No pain or anything else really but it is kind of hard to tell with all the achy business going on with the herxing.

So I've had some gluten here and there and normally now it just tastes like crud and I trash or hand it off to someone else who wants it.
Posted 2/10/2017 5:01 PM (GMT 0)
On my flight down to the Bay area yesterday, the woman sitting next to me on the plane was eating a cheesy bagel sandwich. And I swear the thing smelled like cheesy barf to me. And the guy sitting next to me on the other side was eating candy and drinking juice and it smelled disgusting to me too. Our taste buds change when we change our diet. Gluten, sugar, carbs, those are very very addicting substances. But once we cut them, our bodies feel gross when we put it back in. I was just praying I wouldn't need to use the barf bag! LOL!
Posted 2/10/2017 5:07 PM (GMT 0)
Thanks for the replies, these have been very helpful!

I've made dietary changes before and did notice that once I eliminated the specific thing, I stopped craving it and yeah it would put me off to smell or see it.

I never thought I'd have a problem with eliminating gluten, but I will have to make some changes. I haven't been to the store since learning this from the LLMD, so once I get out and check things out I'm sure I will be able to find gluten-free alternatives to have on hand for those once in a while cravings.
Posted 2/10/2017 5:11 PM (GMT 0)
I'm not gluten intolerant, but had to do a food allergy elimination diet and discovered that I'm really quite allergic to soy - even soy oil. It's in sooo many foods now!!! I was amazed as I started trying to eliminate it from my diet.

The reason I mention this, is because I was eating soy in other products nearly daily, and didn't know any of those symptoms from my Lyme symptoms - but once I cut it out completely for at least 8 weeks, then reintroduced it, I had a severe reaction - I didn't get from from the toilet, as it was coming out of both ends, muscle spams/cramping/aches, swollen joints, severe brain fog and very nauseated the next day as well. And all it took as less than 2 teaspoons of soy oil to do that to me!!!

So, I would suggest cutting out all gluten for at least 6 weeks, then try reintroducing it to see if you are truly gluten sensitive.
Posted 2/10/2017 5:22 PM (GMT 0)
Thanks Traveler, that does make sense.
Posted 2/10/2017 5:22 PM (GMT 0)
It is crazy all the things that have Soy! Every other label I read it's there even in some of the supplements I've been told to use.
What an eye opener reading and really understand labels has been.

I'm finding gluten pretty easy to replace, there are lots of great recipes and I found one for the very best ever in the world Banana blueberry nut muffins that I pretty much lived on for the first two months lol.
They are gluten, dairy and no sugar added.
Posted 2/10/2017 5:25 PM (GMT 0)
If anyone wants some good paleo cookbooks, I highly recommend anything by Danielle Walker, the Against All Grain books. Delicious recipes, guest worthy. Another good one is nom nom paleo. Has lots of paleo Asian recipes which I love!
Posted 2/10/2017 5:35 PM (GMT 0)

Village Crazy Lady said...
It is crazy all the things that have Soy! Every other label I read it's there even in some of the supplements I've been told to use.
What an eye opener reading and really understand labels has been.

I'm finding gluten pretty easy to replace, there are lots of great recipes and I found one for the very best ever in the world Banana blueberry nut muffins that I pretty much lived on for the first two months lol.
They are gluten, dairy and no sugar added.

Having to avoid all soy now, I sooo agree! I can't even have soy lecithin, so that knocks out some herbal teas too!!! And, as you said, I've found quite a few supplements I can't use either, due to the soy in them. I need phosphatidylcholine, but the stuff you can buy is made from soy, so I have to rely on eggs to get what I need - stuff like that.

Are you avoiding soy because you too are allergic, or just because you feel you should lower the amount you get?
Posted 2/10/2017 7:59 PM (GMT 0)
You know Traveler I sadly can't remember right now why I was told dot was bad, lol. Foggy day. For some reason I think it was women in general ?
Posted 2/10/2017 8:08 PM (GMT 0)
I remember reading somewhere that soy was bad for women because it affects the estrogen or mimics estrogen and increases estrogen activity, disrupting the natural balance. I actually read that this affects men as well, and could be the reason why the last decade has seen an increasing "feminization" of men. I can kinda see the correlation, especially when I look at the "just out of college" generation and younger, and assume a LOT of them were probably brought up on a diet full of soy products. :D
Posted 2/10/2017 8:14 PM (GMT 0)
That's it nj! The estrogen thing
Posted 2/10/2017 8:49 PM (GMT 0)
Soy=man boobs ...Ha.. ha...

Probably.

Glad I grew up soyless, on real food.

Soy is evil and hard to avoid, its in almost all salad dressing, usally in the "organic" ones. Organic soy is still soy!!!
Posted 2/10/2017 9:18 PM (GMT 0)
When I first started feeling crummy (over a year ago - wow) I started seeing an acupuncurist who strongly recommended removing gluten, dairy, soy, coffee and corn from my diet. I am mostly gluten-free (but I fall off the wagon) and I try with the other things. I've gone back to coffee and I think I will try switching to tea again. I've noticed an increase in the achiness when I have more dairy.

Some good substitutes I've found:
BOLD pizza (no gluten, no dairy)
almond milk
ghee (instead of butter)
Some gf pastas are better than others
goat cheese with honey on gf tortilla is pretty good
there are some good gf cooking sites that have been helpful

I also bake with almond flour (good for pancakes too) and tapiaca flour. I've not been very successful with getting gf flour to taste good in baked items.

I first eliminated these things for 4-5 weeks, then tried gluten and the headache and hangover feeling were pretty awful. I also get crusty eyes.

I just had a thought and wonder if the acupuncture detox sessions and diet changes helped hold off some of the lyme symptoms? They do seem worse since I stopped. A topic for another thread.
Posted 2/10/2017 9:25 PM (GMT 0)
Kat1000-

BOLD pizza, without the bad stuff, sounds great. I goggled it,.... nil.

Question for you......Is BOLD a food brand or a store?

Only glutan free tortillas I see are corn, not as bad, but still over proccesed..
Posted 2/10/2017 9:49 PM (GMT 0)
Hi astroman - my grocery has BOLD in the freezer case. I usually add some fresh tomatoes and garlic. I checked amazon and they have it but by the case!

I have tried a couple of brands of tortillas. I'll try to get the name of the better one. Memory isn't so reliable these days...

Breads are hit or miss. There's an oatmeal version that is decent.

There are also a few restaurants by me that have gf options, but I have to ask for the menu. It's not advertised!

Post Edited (Kat1000) : 2/10/2017 2:52:10 PM (GMT-7)

Posted 2/10/2017 9:50 PM (GMT 0)
I am gluten free but I haven't noticed any difference. Wonder if I have some food sensitivity which I am not aware of and eat it.
Posted 2/10/2017 10:39 PM (GMT 0)
Russos gluten free gourmet makes a really good pizza. It's in the freezer section of our Albertsons and Kroger. I dont do them often, I've decided to go rogue and do garlic naan and add my own fresh ingredients. No bad side effects for me.
I've replaced spaghetti with cellophane noodles I think they're mung bean, they are so much tastier they take on so much flavor.
Posted 2/10/2017 10:41 PM (GMT 0)
Gluten and dairy (except for products made from goat's milk) cause inflammation. Since Lyme and co already cause so much inflammation it's overkill for our systems.

A lot of grocery stores keep their gluten free breads in the freezer section so be sure to check there for a wider selection of options.

For splurges you can look to Capello's pizza's. They make gluten free pizza with sheep's milk cheese. It's sold in Whole Foods and other stores across the country.

I like the brown rice tortilla from Food for Life.

I agree that Against the Grain is good. She also has a blog
Posted 2/10/2017 10:42 PM (GMT 0)
I was tested for gluten intolerance and it was positive so I have been gluten free about 2.5 years now.

I have replaced gluten bread with a yummy brown rice bread by Food for Life. Absolutely yummy!!!
Posted 2/10/2017 10:48 PM (GMT 0)
I tried a freezer GF bread , Rudi's and it wore me out. I'd rather not eat bread over that.
I saw Nom Nom Paleo and I love the recipes.
Check out civilized caveman, website and phone app.
Lots of awesome recipes there. With pictures, I love the pictures
Posted 2/10/2017 11:04 PM (GMT 0)
Sourgh dough is fermented which makes it OK for glutan sensative but not all celiacs.

I ate that before I went on this paleo diet. No bread of any type on whole30/paleo.I will try it again some day going for whole60 LOL.

Some people can still have issues with goat milk from the natural "pregnate" hormones in any animal milk, a relativly new thought gaining momentum.
Posted 2/11/2017 2:01 PM (GMT 0)
I like the Food for Life brown rice tortillas too. I think anything with brown rice is usually better than the alternatives.

One thing with GF is to be careful of sugar content.

Bed Bath & Beyond has some decent GF options. Pamela's pancake mix is good.

Yummly is the site I was thinking of with good recipes.

I'm okay with goat's milk, but sheeps milk still bothers me.
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