Mystery I have been unable to solve, lyme get worse after sleep

It may just be because your system is slowed down at night. Are you by chance limiting liquids a few hours before you go to sleep so you sleep better? I've found that the only way that I have a chance of feeling even remotely human is to push fluids all day long. That can stink at night because I often wake multiple times during the night to get up and pee but that gives me a great opportunity to take my activated charcoal away from everything else.

Sorry if this doesn't thoroughly answer your questions but I didn't want to leave you without an answer and hopefully this will get the ball rolling for others to respond.

Don't limit your liquids. I know that when you feel lousy it's often tough to drink 8-8 ounce glasses of water or other healthy liquid (just the thought can make you want to gag). Yet pushing fluids helps pull the toxins from your system which does make you a lot better.

I've made a real conscious effort on this the last 4-6 months and I've been treating really heavily. The days that I don't drink as much I can feel the difference.

If you feel like you always have to urinate even if you just did-and your avoiding fluids because of that, that's often caused by Bart.. If you have Bartonella a common issue is interstitial cystitis. There is a supplement that you can take that helps keep that under control.

I agree with Jrpsf on not withholding the liquids. It will affect your digestive system the most too. I have serious gut issues, and that's the one thing I always, always do - push liquids to help ease my issues and push out more toxins. Some days I seem to spend more time in the bathroom than anywhere else in the house - but after having done this for this long, I can definitely feel more toxic if I restrict my liquids at all.

The other thing we have to remember is that we have a tendency/are pushed to do things to help our bodies cope all day long with treatments and detoxing - then we lay fairly still and do nothing to help with it all for 4, 8, 10, 12 hours. That means that all that we were doing to help our bodies isn't being done during those hours that we are resting/sleeping.

I'm NOT saying that we should get up in the middle of the night and do some detoxing, as we desperately need our rest. Just as a way of understanding more of what's going on.

Seems like a lot of us deal with this, I know I do.

The sam for me: waking up is usually very difficult. No matter how long I will sleep, is it 7 or 9 or 10 hours I always be super tired in the morning. My joints are in higher pain, brain very foggy, sometimes I try for half an hour just to wake up myself, then I spend another half an hour in bath as it helps to recover from this mess

...yes Groundhog Day.


Same sh-t day after day.

Hi MRob2 - welcome to our community!

That's great you are feeling better after eliminating the gluten from your diet!

Am I correct to assume you have Lyme disease?

We encourage all new members to read through the thread: "New to Lyme?..Start Here!"
Even if you're not 'new' to lyme, there may be some information in there that you've not seen and could be useful.

Please feel free to share your 'story' with us.

lymekid said...
Why can't we find a solution to this problem. Like @Lostcoast said I have been trying to figure this out too. Every day I wake up feeling terrible. I don't have much ache and pain issues. Mostly for me it's extreme fatigue, brain fog, anxiety and depression. And everyday I feel much better by late afternoon or evening.

This sums up what I mentioned in the first post. It could be babesia as I get instany pain relief from dihydroartemisinin. However this is also a powerful anti inflammatory. So it could be fighting babesia or it could just be lowering inflammation. I have felt relief taking this the night before and how I felt the next day.

It would be great if someone had a solution.

I use to have this same issue in the early days of lyme. Nero symptoms worse after waking up and then eventually fading around 12-2pm, like clock work.

My strong hypothesis is, it is "clock work". The human immune system is actually most active while sleeping. After you wake up you are experiencing the herx from that stronger immune activity while you slept. And then fading after 4-6 hours of your body detoxing and the immune system settling down a bit.

Once again, my scientific hypothesis not scientific theory.

silver.light said...
I get better by around 1-2pm.

Interesting to hear more and more people experiencing the same clock work time line. I don't believe its a coincidence.

I think for me - it's partly due to the lack of movement when I'm in bed.

When I am up moving around...and doing my exercises...getting the blood pumping..I feel better...so it does make sense that I'm not going to feel great after laying in bed for 8+ hours.