Feeling horrible whether or not treating...

Nothing is taking away this exhaustion and electric buzz in head. It is driving me insane.

I know I posted about this a few days ago but at this point I just need to make contact with the outside world, to break the isolation.

I have really come to terms that as much as I love my family, they will never understand this, and besides, they have their own drama, as I was reminded of a few days ago when the stress oozed in my front door with a very infrequent visit. It just wasn't worth it.

I am (once again second guessing my llmd😞) starting to wonder if I should keep treating. I'm going to feel like this regardless, should I resume?

I'm still not eating much, my appetite has not improved but nausea and puking are better. Diarrhea is still an issue.

Eating organic yogurt, kefir, chili, protein powder mixed with almond or coconut milk.

I'm drinking a gallon a day. Taking lip glutathione, Alamax, burbur pinella, sulphur detox, parsley.

Cant do lemon because of IC.

Too weak to exercise
All I can do to get to bathroom

Also taking 40 min baths in detox tub which has jets that hit feet.

Next llmd apt in 10 days. I'll talk to her again about mthfr. I looked back on b level testing. I was deficient in b1 and b2. All others were close to borderline normal or normal. Llmd put me on methyl b complex.

My latest labs are good. A yeast test was done, still don't have results but I finished a month of nystatin.

I'm crying out in desperation I suppose. I'm trying to skip out of the pity party. But realizing that nothing is changing, I just know how to keep going. I know there is no other alternative.

Sorry for the discouragement. Love and appreciate you guys😚

Im sorry your feeling so horrible, maybe your just constantly herxing and need to give your body a break to clear out? What are you drinking a gallon a day of? Maybe it's contributing to the GI issues? My llmd has me alternate between probiotics, all kinds of ones I can't spell without getting the bottles. I will have the occasional diarrhea but nothing to bad, although my bowels are more unpredictable then they used to be. Im assuming it's from the antibiotics. I just keep telling myself, this wont be forever. I hope you star to feel better soon!

You may need to find a different LLMD. For example, if you aren't low in folate, you surely don't need more - it causes overmethylation:
mthfr.net/overmethylation-and-undermethylation-case-study/2012/06/27/

pugmom1 said...
Im sorry your feeling so horrible, maybe your just constantly herxing and need to give your body a break to clear out? What are you drinking a gallon a day of? Maybe it's contributing to the GI issues? My llmd has me alternate between probiotics, all kinds of ones I can't spell without getting the bottles. I will have the occasional diarrhea but nothing to bad, although my bowels are more unpredictable then they used to be. Im assuming it's from the antibiotics. I just keep telling myself, this wont be forever. I hope you star to feel better soon!

drinking water and on a top quality prebiotic with a bazillion somethings

Well if the herbals were causing herxing...it can take longer than 2 weeks to feel better again....if you had a lot of toxins built up.

The binders should be taken 2 hours away (either side) of anything that you don't want flushed out. There shouldn't be a problem if you take them that way.
Maybe the DE isn't being effective...what about switching to another binder...but not adding another?

julymorning said...
I am sorry Pk. How long have you been on the treatment you're taking now?

The 40 min. in detox tub freaked me out. Especially with the jets. That much for that long would kill me.

Can you handle Braggs ACV with the mother instead of lemon water or would you get the same IC?

Have you ever tried Kudzu? I'm looking to it for head symptoms but I can't say if it's calmed the head buzz specifically yet. I would have to trial it and make note. But it's my go to for all head pressures.

How do you think your circulation is doing to your extremities?


(((hugs)))


P.S. When I read the sulfer deal (how soon I forget), a bell went off. Are you sure you're ok with sulfa drugs? Some people can't tolerate them.

hi july.. the sulfa Detox is a cowden formula to remove residual left over sulfur from body after long term antibiotics...I'll check out kudzu. How can I tell what is going on with extremities? Nothing is tingling or falling asleep. Yet.

ChickNorris said...
Isn't fatigue just a part of this disease? Like it just won't get better until we treat? Are these just your lyme symptoms? Obviously you don't want the throwing up which I think was in reaction to your treatment. And you need perhaps stronger probiotics to combat the diarrhea. Head pain/pressure/nerve pain is pretty constant for me too. Is it a new thing for you since starting treatment? Ice, peppermint oil, those help my head sort of. For the fatigue, nothing helps that. Do you need naps? I cannot nap for the life of me no matter how tired I am. Can't sleep at night either! LOL!

I am thinking my llmd was thinking that I was too toxic and the break and detox would alleviate symptoms. But you are right. These are lyme symptoms...

Girlie said...
Well if the herbals were causing herxing...it can take longer than 2 weeks to feel better again....if you had a lot of toxins built up.

The binders should be taken 2 hours away (either side) of anything that you don't want flushed out. There shouldn't be a problem if you take them that way.
Maybe the DE isn't being effective...what about switching to another binder...but not adding another?

I am doing the de for everything including parasites since the middle of January. Maybe I'll switch to ac for awhile, good plan.

Purrrsiankitty said...

julymorning said...
I am sorry Pk. How long have you been on the treatment you're taking now?

The 40 min. in detox tub freaked me out. Especially with the jets. That much for that long would kill me.

Can you handle Braggs ACV with the mother instead of lemon water or would you get the same IC?

Have you ever tried Kudzu? I'm looking to it for head symptoms but I can't say if it's calmed the head buzz specifically yet. I would have to trial it and make note. But it's my go to for all head pressures.

How do you think your circulation is doing to your extremities?


(((hugs)))


P.S. When I read the sulfer deal (how soon I forget), a bell went off. Are you sure you're ok with sulfa drugs? Some people can't tolerate them.

hi july.. the sulfa Detox is a cowden formula to remove residual left over sulfur from body after long term antibiotics...I'll check out kudzu. How can I tell what is going on with extremities? Nothing is tingling or falling asleep. Yet.

Do they feel like dead weight when you use them? Do your legs feel heavy when you walk? Weighted down?

julymorning said...

Purrrsiankitty said...

julymorning said...
I am sorry Pk. How long have you been on the treatment you're taking now?

The 40 min. in detox tub freaked me out. Especially with the jets. That much for that long would kill me.

Can you handle Braggs ACV with the mother instead of lemon water or would you get the same IC?

Have you ever tried Kudzu? I'm looking to it for head symptoms but I can't say if it's calmed the head buzz specifically yet. I would have to trial it and make note. But it's my go to for all head pressures.

How do you think your circulation is doing to your extremities?


(((hugs)))


P.S. When I read the sulfer deal (how soon I forget), a bell went off. Are you sure you're ok with sulfa drugs? Some people can't tolerate them.

hi july.. the sulfa Detox is a cowden formula to remove residual left over sulfur from body after long term antibiotics...I'll check out kudzu. How can I tell what is going on with extremities? Nothing is tingling or falling asleep. Yet.

Do they feel like dead weight when you use them? Do your legs feel heavy when you walk? Weighted down?

not really. They get stiff though. Nothing I can't stretch out

Purr, I wish I had super wonderful advice.... It stinks being our own guinea pig. It stinks not knowing if what we are doing is hurting or helping.

All I can say is Never Give Up! and do it all with any kind of laugh you can muster.

I cut out the news and violent movies when I was super sick and I only watched comedies. I even tried to stay away from the romantic comedies because I cried easily. Heck, I cry at Hallmark and Budweiser commercials.... I am super sensitive, especially to the background music. I hear the music and the tears come....

So comedies!!! I just watched an old good one called Mr. Right and it sure made me laugh.

But my all time favorites are Bill Murray movies - What about Bob is hilarious and I need to see it again for about the 20th time. LOL

I love funny movies. They would always distract me from my pains.

I have not seen Romy & Michele -- I will have to watch that one - thanks!!

Hi Purrrsiankitty,

Just sending good thoughts your way and I hope you feel better soon. Hang in there, you will figure this all out. Take care. Sincerely, Jo