I would encourage you to not let go of this and to switch doctors if needed. When I was 7 yrs old, I started having many repeated instances of "childhood illnesses" - all fairly normal, only I kept getting them over and over again - along with other "unexplainable" issues. I was able to piece together (with the help of my Mom) that I had all the symptoms of RMSF, Lyme, Bartonella and others even back then - but there wasn't one single doctor that could help. Of course, back then, there was no such thing as a LLMD and tick-borne infections weren't known about
back then (late 60's/early 70's).
This is a most wonderful site with nearly all the information about
kids with these diseases. You may find it an invaluable resource for identifying which issues may be connected to these diseases:
/sites.google.com/site/drjoneskids/symptoms-literature